Patient Data Protection Changing Healthb

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Patient Data Protection Changing Healthb

Griet Verhenneman
Patient Data Protection Changing Healthb Book PDF

Author : Griet Verhenneman
Publisher : Intersentia
Page : 405 pages
File Size : 52,8 Mb
Release : 2021-03-31
Category : Electronic
ISBN : 1839701242

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Patient Data Protection Changing Healthb by Griet Verhenneman Pdf

Healthcare is changing. It is moving to a paperless environment, a team-based, interdisciplinary and patient-centred profession. Value-driven strategies, evidence-based medicine, data-driven technology, decision support and automated decision-making are adopted in modern healthcare models. Health-related data are subject to eagerness characterising our data-driven economy.00Amidst these changes, is the patient and his or her right to data protection, privacy and autonomy.00The question arises how to match phenomena that characterise the predominant ethos in modern healthcare systems, such as e-health and personalised medicine, with patient autonomy and data protection laws. That matching exercise is essential. The successful adoption of ICT in healthcare depends, at least partly, on how the public?s concerns about data protection and confidentiality are addressed.00Three backbone principles of European data protection law, in particular, are considered bottlenecks for the implementation of modern healthcare systems: informed consent, anonymisation and purpose limitation. The book assesses the adequacy of these principles and considers them in the context of technological and societal evolutions. A must-read for every professional active in the field of data protection law, health law, policy development or IT-driven innovation.

Data Protection and Privacy in Healthcare

Ahmed Elngar,Ambika Pawar,Prathamesh Churi
Data Protection and Privacy in Healthcare Book PDF

Author : Ahmed Elngar,Ambika Pawar,Prathamesh Churi
Publisher : CRC Press
Page : 269 pages
File Size : 40,5 Mb
Release : 2021-03-09
Category : Technology & Engineering
ISBN : 9781000349313

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Data Protection and Privacy in Healthcare by Ahmed Elngar,Ambika Pawar,Prathamesh Churi Pdf

The Healthcare industry is one of the largest and rapidly developing industries. Over the last few years, healthcare management is changing from disease centered to patient centered. While on one side the analysis of healthcare data plays an important role in healthcare management, but on the other side the privacy of a patient’s record must be of equal concern. This book uses a research-oriented approach and focuses on privacy-based healthcare tools and technologies. It offers details on privacy laws with real-life case studies and examples, and addresses privacy issues in newer technologies such as Cloud, Big Data, and IoT. It discusses the e-health system and preserving its privacy, and the use of wearable technologies for patient monitoring, data streaming and sharing, and use of data analysis to provide various health services. This book is written for research scholars, academicians working in healthcare and data privacy domains, as well as researchers involved with healthcare law, and those working at facilities in security and privacy domains. Students and industry professionals, as well as medical practitioners might also find this book of interest.

Privacy and Healthcare Data

Christina Munns,Subhajit Basu
Privacy and Healthcare Data Book PDF

Author : Christina Munns,Subhajit Basu
Publisher : Taylor & Francis
Page : 364 pages
File Size : 52,9 Mb
Release : 2017-05-15
Category : Medical
ISBN : 9781317075721

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Privacy and Healthcare Data by Christina Munns,Subhajit Basu Pdf

In order for the information society to realise its full potential, personal data has to be disclosed, used and often shared. This book explores the disclosure and sharing of data within the area of healthcare. Including an overview of how health information is currently managed, the authors argue that with changes in modern society, the idea of personal relationships with a local GP who solely holds and controls your health records is becoming rapidly outdated. The authors aim to encourage and empower patients to make informed choices about sharing their health data. They do this by developing a three-stage theoretical model for change to the roles of the NHS and the individual. The study generates debate to stimulate and inspire new models and policy, and to provoke new visions for the sharing of healthcare data. Such discussion is framed through an exploration of the changing concept of 'privacy' and 'patient control' in healthcare information management. The volume draws on best practices from Europe and the USA and combines these to form a suggested vision for the UK as an early adopter of change. The volume will be essential reading for academics in the field of privacy and data protection, as well as healthcare and informatics professionals across different jurisdictions.

Protecting Data Privacy in Health Services Research

Institute of Medicine,Division of Health Care Services,Committee on the Role of Institutional Review Boards in Health Services Research Data Privacy Protection
Protecting Data Privacy in Health Services Research Book PDF

Author : Institute of Medicine,Division of Health Care Services,Committee on the Role of Institutional Review Boards in Health Services Research Data Privacy Protection
Publisher : National Academies Press
Page : 208 pages
File Size : 47,5 Mb
Release : 2001-01-13
Category : Computers
ISBN : 9780309071871

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Protecting Data Privacy in Health Services Research by Institute of Medicine,Division of Health Care Services,Committee on the Role of Institutional Review Boards in Health Services Research Data Privacy Protection Pdf

The need for quality improvement and for cost saving are driving both individual choices and health system dynamics. The health services research that we need to support informed choices depends on access to data, but at the same time, individual privacy and patient-health care provider confidentiality must be protected.

Beyond the HIPAA Privacy Rule

Institute of Medicine,Board on Health Care Services,Board on Health Sciences Policy,Committee on Health Research and the Privacy of Health Information: The HIPAA Privacy Rule
Beyond the HIPAA Privacy Rule Book PDF

Author : Institute of Medicine,Board on Health Care Services,Board on Health Sciences Policy,Committee on Health Research and the Privacy of Health Information: The HIPAA Privacy Rule
Publisher : National Academies Press
Page : 334 pages
File Size : 47,8 Mb
Release : 2009-03-24
Category : Computers
ISBN : 9780309124997

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Beyond the HIPAA Privacy Rule by Institute of Medicine,Board on Health Care Services,Board on Health Sciences Policy,Committee on Health Research and the Privacy of Health Information: The HIPAA Privacy Rule Pdf

In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule. In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine's Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research.

European Data Protection: In Good Health?

Serge Gutwirth,Ronald Leenes,Paul de Hert,Yves Poullet
European Data Protection In Good Health Book PDF

Author : Serge Gutwirth,Ronald Leenes,Paul de Hert,Yves Poullet
Publisher : Springer Science & Business Media
Page : 368 pages
File Size : 45,5 Mb
Release : 2012-02-23
Category : Law
ISBN : 9789400729025

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European Data Protection: In Good Health? by Serge Gutwirth,Ronald Leenes,Paul de Hert,Yves Poullet Pdf

Although Europe has a significant legal data protection framework, built up around EU Directive 95/46/EC and the Charter of Fundamental Rights, the question of whether data protection and its legal framework are ‘in good health’ is increasingly being posed. Advanced technologies raise fundamental issues regarding key concepts of data protection. Falling storage prices, increasing chips performance, the fact that technology is becoming increasingly embedded and ubiquitous, the convergence of technologies and other technological developments are broadening the scope and possibilities of applications rapidly. Society however, is also changing, affecting the privacy and data protection landscape. The ‘demand’ for free services, security, convenience, governance, etc, changes the mindsets of all the stakeholders involved. Privacy is being proclaimed dead or at least worthy of dying by the captains of industry; governments and policy makers are having to manoeuvre between competing and incompatible aims; and citizens and customers are considered to be indifferent. In the year in which the plans for the revision of the Data Protection Directive will be revealed, the current volume brings together a number of chapters highlighting issues, describing and discussing practices, and offering conceptual analysis of core concepts within the domain of privacy and data protection. The book’s first part focuses on surveillance, profiling and prediction; the second on regulation, enforcement, and security; and the third on some of the fundamental concepts in the area of privacy and data protection. Reading the various chapters it appears that the ‘patient’ needs to be cured of quite some weak spots, illnesses and malformations. European data protection is at a turning point and the new challenges are not only accentuating the existing flaws and the anticipated difficulties, but also, more positively, the merits and the need for strong and accurate data protection practices and rules in Europe, and elsewhere.

Medical Data Privacy Handbook

Aris Gkoulalas-Divanis,Grigorios Loukides
Medical Data Privacy Handbook Book PDF

Author : Aris Gkoulalas-Divanis,Grigorios Loukides
Publisher : Springer
Page : 832 pages
File Size : 49,8 Mb
Release : 2015-11-26
Category : Computers
ISBN : 9783319236339

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Medical Data Privacy Handbook by Aris Gkoulalas-Divanis,Grigorios Loukides Pdf

This handbook covers Electronic Medical Record (EMR) systems, which enable the storage, management, and sharing of massive amounts of demographic, diagnosis, medication, and genomic information. It presents privacy-preserving methods for medical data, ranging from laboratory test results to doctors’ comments. The reuse of EMR data can greatly benefit medical science and practice, but must be performed in a privacy-preserving way according to data sharing policies and regulations. Written by world-renowned leaders in this field, each chapter offers a survey of a research direction or a solution to problems in established and emerging research areas. The authors explore scenarios and techniques for facilitating the anonymization of different types of medical data, as well as various data mining tasks. Other chapters present methods for emerging data privacy applications and medical text de-identification, including detailed surveys of deployed systems. A part of the book is devoted to legislative and policy issues, reporting on the US and EU privacy legislation and the cost of privacy breaches in the healthcare domain. This reference is intended for professionals, researchers and advanced-level students interested in safeguarding medical data.

Registries for Evaluating Patient Outcomes

Agency for Healthcare Research and Quality/AHRQ
Registries for Evaluating Patient Outcomes Book PDF

Author : Agency for Healthcare Research and Quality/AHRQ
Publisher : Government Printing Office
Page : 396 pages
File Size : 43,6 Mb
Release : 2014-04-01
Category : Medical
ISBN : 9781587634338

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Registries for Evaluating Patient Outcomes by Agency for Healthcare Research and Quality/AHRQ Pdf

This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.

HIPAA

June M. Sullivan
HIPAA Book PDF

Author : June M. Sullivan
Publisher : American Bar Association
Page : 274 pages
File Size : 43,7 Mb
Release : 2004
Category : Law
ISBN : 1590313968

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HIPAA by June M. Sullivan Pdf

This concise, practical guide helps the advocate understand the sometimes dense rules in advising patients, physicians, and hospitals, and in litigating HIPAA-related issues.

Building on Values

Commission on the Future of Health Care in Canada,Roy J. Romanow
Building on Values Book PDF

Author : Commission on the Future of Health Care in Canada,Roy J. Romanow
Publisher : Saskatoon : Commission on the Future of Health Care in Canada
Page : 396 pages
File Size : 41,9 Mb
Release : 2002
Category : Medical
ISBN : UIUC:30112059382330

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Building on Values by Commission on the Future of Health Care in Canada,Roy J. Romanow Pdf

In April 2001, the Prime Minister established the Commission on the Future of Health Care in Canada. Its mandate was to review medicare, engage Canadians in a national dialogue on its future, and make recommendations to enhance the system's quality and sustainability. The 47 recommendations in this report outline actions that must be taken in 10 critical areas, starting by renewing the foundations of medicare and considering Canada's role in improving health around the world.

Data Protection and Privacy in Healthcare

Ahmed Elngar,Ambika Pawar,Prathamesh Churi
Data Protection and Privacy in Healthcare Book PDF

Author : Ahmed Elngar,Ambika Pawar,Prathamesh Churi
Publisher : CRC Press
Page : 188 pages
File Size : 41,5 Mb
Release : 2021-03-10
Category : Technology & Engineering
ISBN : 9781000349351

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Data Protection and Privacy in Healthcare by Ahmed Elngar,Ambika Pawar,Prathamesh Churi Pdf

The Healthcare industry is one of the largest and rapidly developing industries. Over the last few years, healthcare management is changing from disease centered to patient centered. While on one side the analysis of healthcare data plays an important role in healthcare management, but on the other side the privacy of a patient’s record must be of equal concern. This book uses a research-oriented approach and focuses on privacy-based healthcare tools and technologies. It offers details on privacy laws with real-life case studies and examples, and addresses privacy issues in newer technologies such as Cloud, Big Data, and IoT. It discusses the e-health system and preserving its privacy, and the use of wearable technologies for patient monitoring, data streaming and sharing, and use of data analysis to provide various health services. This book is written for research scholars, academicians working in healthcare and data privacy domains, as well as researchers involved with healthcare law, and those working at facilities in security and privacy domains. Students and industry professionals, as well as medical practitioners might also find this book of interest.

How artificial intelligence will change healthcare forever, for better

Dirk Pickuth
How artificial intelligence will change healthcare forever for better Book PDF

Author : Dirk Pickuth
Publisher : Troubador Publishing Ltd
Page : 199 pages
File Size : 45,9 Mb
Release : 2024-01-26
Category : Medical
ISBN : 9781805147763

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How artificial intelligence will change healthcare forever, for better by Dirk Pickuth Pdf

'How artificial intelligence will change healthcare forever, for better' provides a comprehensive and exciting panorama of AI’s groundbreaking impact across the entire spectrum of medicine and healthcare – from diagnosis and treatment to research, patient care, hospital administration and public health. At the heart of this book is a message of hope. AI has the power to lead us to a future where healthcare is not only more accessible and accurate, but also more proactive and, indeed, more empathetic. 'How artificial intelligence will change healthcare forever, for better' is not just a title – it is an optimistic assurance, a vibrant declaration of an uplifting future that is within our reach. We invite you to join us on an exciting journey through the fascinating world of AI in healthcare, setting sail for a future where healthcare is not only improved, but changed forever, for better.

Health Data Processing

Marius Fieschi
Health Data Processing Book PDF

Author : Marius Fieschi
Publisher : Elsevier
Page : 340 pages
File Size : 40,7 Mb
Release : 2018-07-13
Category : Science
ISBN : 9780081027585

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Health Data Processing by Marius Fieschi Pdf

Health Data Processing: Systemic Approaches focuses on the design of health information systems and touches on the main themes of medical informatics and public health. The book is written for health professionals in practice or training, and is especially useful for decision-makers or future decision-makers in the field of health information systems. Users will find sections on the question of reusing data for other purposes, protection of individual liberties that this data and technologies make more acute, and the irruption of large masses of genetic data and its related problems. This book develops the methodological and conceptual aspects related to these issues. Proposes a methodology for the development of health information systems for the better use of digital technologies Illustrates a systemic, transversal, conceptual vision that supports the complex reality of the healthcare world, where the interoperability of agents (professionals and software) is central Discusses the reuse of resources of data for knowledge improvement, health security and public health

Connecting Healthcare Worker Well-Being, Patient Safety and Organisational Change

Anthony Montgomery,Margot van der Doef,Efharis Panagopoulou,Michael P. Leiter
Connecting Healthcare Worker Well Being Patient Safety and Organisational Change Book PDF

Author : Anthony Montgomery,Margot van der Doef,Efharis Panagopoulou,Michael P. Leiter
Publisher : Springer Nature
Page : 345 pages
File Size : 49,9 Mb
Release : 2021-01-25
Category : Psychology
ISBN : 9783030609986

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Connecting Healthcare Worker Well-Being, Patient Safety and Organisational Change by Anthony Montgomery,Margot van der Doef,Efharis Panagopoulou,Michael P. Leiter Pdf

This volume delineates the ways in which key areas of healthcare, well-being, patient safety and organisational change overlap with and contribute to unhealthy workplaces for healthcare professionals. There is a growing realisation within healthcare that healthcare worker well-being, patient outcomes and organisational change are symbiotically linked. Burnout and stress in healthcare workers and toxic organisational cultures can lead to a cycle of patient neglect, medical errors, sub-optimal care and further stress. This topical volume therefore outlines the ways in which worker well-being, patient outcomes and organisational change can be aligned to contribute to a healthy workplace and therefore better medical care. The volume includes an array of authors from different disciplines including primary care, clinical medicine, psychology, sociology, management, clinical governance, health policy and health services research. It succeeds in integrating different voices and reaches meaningful conclusions to address the challenges facing the healthcare workforce.

The Ethics of Medical Data Donation

Luciano Floridi,Jenny Krutzinna
The Ethics of Medical Data Donation Book PDF

Author : Luciano Floridi,Jenny Krutzinna
Publisher : Unknown
Page : 198 pages
File Size : 40,9 Mb
Release : 2020-10-08
Category : Medical
ISBN : 1013273508

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The Ethics of Medical Data Donation by Luciano Floridi,Jenny Krutzinna Pdf

This open access book presents an ethical approach to utilizing personal medical data. It features essays that combine academic argument with practical application of ethical principles. The contributors are experts in ethics and law. They address the challenges in the re-use of medical data of the deceased on a voluntary basis. This pioneering study looks at the many factors involved when individuals and organizations wish to share information for research, policy-making, and humanitarian purposes. Today, it is easy to donate blood or even organs, but it is virtually impossible to donate one's own medical data. This is seen as ethically unacceptable. Yet, data donation can greatly benefit the welfare of our societies. This collection provides timely interdisciplinary research on biomedical big data. Topics include the ethics of data donation, the legal and regulatory challenges, and the current and future collaborations. Readers will learn about the ethical and regulatory challenges associated with medical data donations. They will also better understand the special nature of using deceased data for research purposes with regard to ethical principles of autonomy, beneficence, and justice. In addition, the contributors identify the key governance issues of such a scheme. The essays also look at what we can learn in terms of best practice from existing medical data schemes. This work was published by Saint Philip Street Press pursuant to a Creative Commons license permitting commercial use. All rights not granted by the work's license are retained by the author or authors.