European Data Protection In Good Health

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European Data Protection: In Good Health?

Serge Gutwirth,Ronald Leenes,Paul de Hert,Yves Poullet
European Data Protection In Good Health Book PDF

Author : Serge Gutwirth,Ronald Leenes,Paul de Hert,Yves Poullet
Publisher : Springer Science & Business Media
Page : 368 pages
File Size : 46,5 Mb
Release : 2012-02-23
Category : Law
ISBN : 9789400729025

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European Data Protection: In Good Health? by Serge Gutwirth,Ronald Leenes,Paul de Hert,Yves Poullet Pdf

Although Europe has a significant legal data protection framework, built up around EU Directive 95/46/EC and the Charter of Fundamental Rights, the question of whether data protection and its legal framework are ‘in good health’ is increasingly being posed. Advanced technologies raise fundamental issues regarding key concepts of data protection. Falling storage prices, increasing chips performance, the fact that technology is becoming increasingly embedded and ubiquitous, the convergence of technologies and other technological developments are broadening the scope and possibilities of applications rapidly. Society however, is also changing, affecting the privacy and data protection landscape. The ‘demand’ for free services, security, convenience, governance, etc, changes the mindsets of all the stakeholders involved. Privacy is being proclaimed dead or at least worthy of dying by the captains of industry; governments and policy makers are having to manoeuvre between competing and incompatible aims; and citizens and customers are considered to be indifferent. In the year in which the plans for the revision of the Data Protection Directive will be revealed, the current volume brings together a number of chapters highlighting issues, describing and discussing practices, and offering conceptual analysis of core concepts within the domain of privacy and data protection. The book’s first part focuses on surveillance, profiling and prediction; the second on regulation, enforcement, and security; and the third on some of the fundamental concepts in the area of privacy and data protection. Reading the various chapters it appears that the ‘patient’ needs to be cured of quite some weak spots, illnesses and malformations. European data protection is at a turning point and the new challenges are not only accentuating the existing flaws and the anticipated difficulties, but also, more positively, the merits and the need for strong and accurate data protection practices and rules in Europe, and elsewhere.

Health Data Pools Under European Data Protection and Competition Law

Giulia Schneider
Health Data Pools Under European Data Protection and Competition Law Book PDF

Author : Giulia Schneider
Publisher : Springer Nature
Page : 388 pages
File Size : 52,5 Mb
Release : 2022-04-13
Category : Law
ISBN : 9783030954277

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Health Data Pools Under European Data Protection and Competition Law by Giulia Schneider Pdf

This book explores the emerging economic reality of health data pools from the perspective of European Union policy and law. The contractual sharing of health data for research purposes is giving rise to a free movement of research data, which is strongly encouraged at European policy level within the Digital Single Market Strategy. However, it has also a strong impact on data subjects' fundamental right to data protection and smaller businesses and research entities ability to carry out research and compete in innovation markets. Accordingly the work questions under which conditions health data sharing is lawful under European data protection and competition law. For these purposes, the work addresses the following sub-questions: i) which is the emerging innovation paradigm in digital health research?; ii) how are health data pools addressed at European policy level?; iii) do European data protection and competition law promote health data-driven innovation objectives, and how?; iv) which are the limits posed by the two frameworks to the free pooling of health data? The underlying assumption of the work is that both branches of European Union law are key regulatory tools for the creation of a common European health data space as envisaged in the Commissions 2020 European strategy for data. It thus demonstrates that both European data protection law, as defined under the General Data Protection Regulation, and European competition law and policy set research enabling regimes regarding health data, provided specific normative conditions are met. From a further perspective, both regulatory frameworks place external limits to the freedom to share (or not share) research valuable data.

Health Data Privacy under the GDPR

Maria Tzanou
Health Data Privacy under the GDPR Book PDF

Author : Maria Tzanou
Publisher : Routledge
Page : 171 pages
File Size : 49,7 Mb
Release : 2020-11-23
Category : Law
ISBN : 9780429663840

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Health Data Privacy under the GDPR by Maria Tzanou Pdf

The growth of data-collecting goods and services, such as ehealth and mhealth apps, smart watches, mobile fitness and dieting apps, electronic skin and ingestible tech, combined with recent technological developments such as increased capacity of data storage, artificial intelligence and smart algorithms, has spawned a big data revolution that has reshaped how we understand and approach health data. Recently the COVID-19 pandemic has foregrounded a variety of data privacy issues. The collection, storage, sharing and analysis of health- related data raises major legal and ethical questions relating to privacy, data protection, profiling, discrimination, surveillance, personal autonomy and dignity. This book examines health privacy questions in light of the General Data Protection Regulation (GDPR) and the general data privacy legal framework of the European Union (EU). The GDPR is a complex and evolving body of law that aims to deal with several technological and societal health data privacy problems, while safeguarding public health interests and addressing its internal gaps and uncertainties. The book answers a diverse range of questions including: What role can the GDPR play in regulating health surveillance and big (health) data analytics? Can it catch up with internet-age developments? Are the solutions to the challenges posed by big health data to be found in the law? Does the GDPR provide adequate tools and mechanisms to ensure public health objectives and the effective protection of privacy? How does the GDPR deal with data that concern children’s health and academic research? By analysing a number of diverse questions concerning big health data under the GDPR from various perspectives, this book will appeal to those interested in privacy, data protection, big data, health sciences, information technology, the GDPR, EU and human rights law.

Handbook on European data protection law

Council of Europe,European Union Agency for Fundamental Rights
Handbook on European data protection law Book PDF

Author : Council of Europe,European Union Agency for Fundamental Rights
Publisher : Council of Europe
Page : 402 pages
File Size : 46,8 Mb
Release : 2018-04-15
Category : Political Science
ISBN : 9789287198495

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Handbook on European data protection law by Council of Europe,European Union Agency for Fundamental Rights Pdf

The rapid development of information technology has exacerbated the need for robust personal data protection, the right to which is safeguarded by both European Union (EU) and Council of Europe (CoE) instruments. Safeguarding this important right entails new and significant challenges as technological advances expand the frontiers of areas such as surveillance, communication interception and data storage. This handbook is designed to familiarise legal practitioners not specialised in data protection with this emerging area of the law. It provides an overview of the EU’s and the CoE’s applicable legal frameworks. It also explains key case law, summarising major rulings of both the Court of Justice of the European Union and the European Court of Human Rights. In addition, it presents hypothetical scenarios that serve as practical illustrations of the diverse issues encountered in this ever-evolving field.

The Regulation of Privacy and Data Protection in the Use of Electronic Health Information

Roberto J. Rodrigues,Petra Wilson,Stephen J. Schanz
The Regulation of Privacy and Data Protection in the Use of Electronic Health Information Book PDF

Author : Roberto J. Rodrigues,Petra Wilson,Stephen J. Schanz
Publisher : Pan American Health Org
Page : 230 pages
File Size : 40,7 Mb
Release : 2001
Category : Computer security
ISBN : 9789275123850

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The Regulation of Privacy and Data Protection in the Use of Electronic Health Information by Roberto J. Rodrigues,Petra Wilson,Stephen J. Schanz Pdf

This book, written by experts from PAHO, the European Commission, and the East Caroline University School of Medicine, review the fundamental concepts related to the technical and legal aspects of data protection and summarize the scope and degree of impl

P5 eHealth: An Agenda for the Health Technologies of the Future

Gabriella Pravettoni,Stefano Triberti
P5 eHealth An Agenda for the Health Technologies of the Future Book PDF

Author : Gabriella Pravettoni,Stefano Triberti
Publisher : Springer Nature
Page : 191 pages
File Size : 40,6 Mb
Release : 2019-11-29
Category : Psychology
ISBN : 9783030279943

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P5 eHealth: An Agenda for the Health Technologies of the Future by Gabriella Pravettoni,Stefano Triberti Pdf

This open access volume focuses on the development of a P5 eHealth, or better, a methodological resource for developing the health technologies of the future, based on patients’ personal characteristics and needs as the fundamental guidelines for design. It provides practical guidelines and evidence based examples on how to design, implement, use and elevate new technologies for healthcare to support the management of incurable, chronic conditions. The volume further discusses the criticalities of eHealth, why it is difficult to employ eHealth from an organizational point of view or why patients do not always accept the technology, and how eHealth interventions can be improved in the future. By dealing with the state-of-the-art in eHealth technologies, this volume is of great interest to researchers in the field of physical and mental healthcare, psychologists, stakeholders and policymakers as well as technology developers working in the healthcare sector.

Reforming European Data Protection Law

Serge Gutwirth,Ronald Leenes,Paul de Hert
Reforming European Data Protection Law Book PDF

Author : Serge Gutwirth,Ronald Leenes,Paul de Hert
Publisher : Springer
Page : 406 pages
File Size : 43,7 Mb
Release : 2014-11-17
Category : Law
ISBN : 9789401793858

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Reforming European Data Protection Law by Serge Gutwirth,Ronald Leenes,Paul de Hert Pdf

This book on privacy and data protection offers readers conceptual analysis as well as thoughtful discussion of issues, practices, and solutions. It features results of the seventh annual International Conference on Computers, Privacy, and Data Protection, CPDP 2014, held in Brussels January 2014. The book first examines profiling, a persistent core issue of data protection and privacy. It covers the emergence of profiling technologies, on-line behavioral tracking, and the impact of profiling on fundamental rights and values. Next, the book looks at preventing privacy risks and harms through impact assessments. It contains discussions on the tools and methodologies for impact assessments as well as case studies. The book then goes on to cover the purported trade-off between privacy and security, ways to support privacy and data protection, and the controversial right to be forgotten, which offers individuals a means to oppose the often persistent digital memory of the web. Written during the process of the fundamental revision of the current EU data protection law by the Data Protection Package proposed by the European Commission, this interdisciplinary book presents both daring and prospective approaches. It will serve as an insightful resource for readers with an interest in privacy and data protection.

Data Protection and Confidentiality in Health Informatics

Commission of the European Communities
Data Protection and Confidentiality in Health Informatics Book PDF

Author : Commission of the European Communities
Publisher : Studies in Health Technology a
Page : 365 pages
File Size : 45,6 Mb
Release : 1991
Category : Health & Fitness
ISBN : 9051990529

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Data Protection and Confidentiality in Health Informatics by Commission of the European Communities Pdf

Title Page -- Preface -- Table of Contents -- EXECUTIVE SUMMARY -- The Individual, Society and the Protection of Personal Data -- The European Challenge in Health Information Systems -- Medical Requirements in Data Protection -- Data Protection in Nursing in Europe -- Data Protection in Nursing -- Evolution and Protection of the Health Care Record as a European Document -- A Survey of Legal Issues and Gaps in Legal Coverage in the EC -- Legal Aspects of Data Protection in Medical Informatics -- Data Protection Issues in Database Management and Expert Systems -- La Protection des Données Médicales Informatisées en France -- Benefits and Threats of New Technologies -- Safety Standards in Medical Software -- Medical Database Security -- Security in Medical Networks -- Data Protection in Networks -- Medical Network Security and Viruses -- User Authorization in Distributed Hospital Information Systems -- The Six Safety First Principles of Health Information Systems: A Programme of Implementation Part 1 Safety and Security -- Management and Staff Issues in Data Protection -- Practical Aspects of Handling Data Protection and Data Security -- Administrative Aspects of Data Protection -- Risk Analysis and Management -- List of Participants -- Author Index

European Data Protection Law

European Union
European Data Protection Law Book PDF

Author : European Union
Publisher : Createspace Independent Publishing Platform
Page : 130 pages
File Size : 47,6 Mb
Release : 2016-05-04
Category : Electronic
ISBN : 1533170835

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European Data Protection Law by European Union Pdf

This book contains the General Data Protection Regulation 2016 with official justifications. Legal provisions are accompanied by their recitals. Ideal for any practitioner and anyone interested in European data privacy. "The General Data Protection Regulation is the first directly applicable legal basis valid in all EU member states for processing personal data. It was concluded in April 2016 following a three-year coordination procedure, and replaces the data protection directive from 1995. The updates in the regulation include rights related to data portability and the right to be forgotten. There are changes with regard to data transmission to third-party countries, national supervisory agencies ("one-stop-shops") and their collaboration. But above all, the drastically harsher sanctions in response to violations should be an impetus for all affected companies to review their compliance measures. The European Parliament and the Council have granted a transitional deadline of two years for this purpose."

Patient Data Protection Changing Healthb

Griet Verhenneman
Patient Data Protection Changing Healthb Book PDF

Author : Griet Verhenneman
Publisher : Intersentia
Page : 405 pages
File Size : 44,8 Mb
Release : 2021-03-31
Category : Electronic
ISBN : 1839701242

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Patient Data Protection Changing Healthb by Griet Verhenneman Pdf

Healthcare is changing. It is moving to a paperless environment, a team-based, interdisciplinary and patient-centred profession. Value-driven strategies, evidence-based medicine, data-driven technology, decision support and automated decision-making are adopted in modern healthcare models. Health-related data are subject to eagerness characterising our data-driven economy.00Amidst these changes, is the patient and his or her right to data protection, privacy and autonomy.00The question arises how to match phenomena that characterise the predominant ethos in modern healthcare systems, such as e-health and personalised medicine, with patient autonomy and data protection laws. That matching exercise is essential. The successful adoption of ICT in healthcare depends, at least partly, on how the public?s concerns about data protection and confidentiality are addressed.00Three backbone principles of European data protection law, in particular, are considered bottlenecks for the implementation of modern healthcare systems: informed consent, anonymisation and purpose limitation. The book assesses the adequacy of these principles and considers them in the context of technological and societal evolutions. A must-read for every professional active in the field of data protection law, health law, policy development or IT-driven innovation.

European Data Protection: Coming of Age

Serge Gutwirth,Ronald Leenes,Paul de Hert,Yves Poullet
European Data Protection Coming of Age Book PDF

Author : Serge Gutwirth,Ronald Leenes,Paul de Hert,Yves Poullet
Publisher : Springer
Page : 0 pages
File Size : 53,5 Mb
Release : 2012-11-22
Category : Law
ISBN : 9400751842

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European Data Protection: Coming of Age by Serge Gutwirth,Ronald Leenes,Paul de Hert,Yves Poullet Pdf

On 25 January 2012, the European Commission presented its long awaited new “Data protection package”. With this proposal for a drastic revision of the data protection framework in Europe, it is fair to say that we are witnessing a rebirth of European data protection, and perhaps, its passage from an impulsive youth to a more mature state. Technology advances rapidly and mobile devices are significantly changing the landscape. Increasingly, we carry powerful, connected, devices, whose location and activities can be monitored by various stakeholders. Very powerful social network sites emerged in the first half of last decade, processing personal data of many millions of users. Updating the regulatory network was imminent and the presentation of the new package will initiate a period of intense debate in which the proposals will be thoroughly commented upon and criticized, and numerous amendments will undoubtedly be proposed. This volume brings together some 19 chapters offering conceptual analyses, highlighting issues, proposing solutions, and discussing practices regarding privacy and data protection. In the first part of the book, conceptual analyses of concepts such as privacy and anonymity are provided. The second section focuses on the contrasted positions of digital natives and ageing users in the information society. The third section provides four chapters on privacy by design, including discussions on roadmapping and concrete techniques. The fourth section is devoted to surveillance and profiling, with illustrations from the domain of smart metering, self-surveillance and the benefits and risks of profiling. The book concludes with case studies pertaining to communicating privacy in organisations, the fate of a data protection supervisor in one of the EU member states and data protection in social network sites and online media. This volume brings together some 19 chapters offering conceptual analyses, highlighting issues, proposing solutions, and discussing practices regarding privacy and data protection. In the first part of the book, conceptual analyses of concepts such as privacy and anonymity are provided. The second section focuses on the contrasted positions of digital natives and ageing users in the information society. The third section provides four chapters on privacy by design, including discussions on roadmapping and concrete techniques. The fourth section is devoted to surveillance and profiling, with illustrations from the domain of smart metering, self-surveillance and the benefits and risks of profiling. The book concludes with case studies pertaining to communicating privacy in organisations, the fate of a data protection supervisor in one of the EU member states and data protection in social network sites and online media.

European Data Protection: In Good Health?

Serge Gutwirth,Ronald Leenes,Paul De Hert,Yves Poullet
European Data Protection In Good Health Book PDF

Author : Serge Gutwirth,Ronald Leenes,Paul De Hert,Yves Poullet
Publisher : Springer Science & Business Media
Page : 368 pages
File Size : 51,9 Mb
Release : 2012-02-22
Category : Law
ISBN : 9789400729032

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European Data Protection: In Good Health? by Serge Gutwirth,Ronald Leenes,Paul De Hert,Yves Poullet Pdf

Although Europe has a significant legal data protection framework, built up around EU Directive 95/46/EC and the Charter of Fundamental Rights, the question of whether data protection and its legal framework are ‘in good health’ is increasingly being posed. Advanced technologies raise fundamental issues regarding key concepts of data protection. Falling storage prices, increasing chips performance, the fact that technology is becoming increasingly embedded and ubiquitous, the convergence of technologies and other technological developments are broadening the scope and possibilities of applications rapidly. Society however, is also changing, affecting the privacy and data protection landscape. The ‘demand’ for free services, security, convenience, governance, etc, changes the mindsets of all the stakeholders involved. Privacy is being proclaimed dead or at least worthy of dying by the captains of industry; governments and policy makers are having to manoeuvre between competing and incompatible aims; and citizens and customers are considered to be indifferent. In the year in which the plans for the revision of the Data Protection Directive will be revealed, the current volume brings together a number of chapters highlighting issues, describing and discussing practices, and offering conceptual analysis of core concepts within the domain of privacy and data protection. The book’s first part focuses on surveillance, profiling and prediction; the second on regulation, enforcement, and security; and the third on some of the fundamental concepts in the area of privacy and data protection. Reading the various chapters it appears that the ‘patient’ needs to be cured of quite some weak spots, illnesses and malformations. European data protection is at a turning point and the new challenges are not only accentuating the existing flaws and the anticipated difficulties, but also, more positively, the merits and the need for strong and accurate data protection practices and rules in Europe, and elsewhere.

European Union Health Law

Herman Nys
European Union Health Law Book PDF

Author : Herman Nys
Publisher : Kluwer Law International B.V.
Page : 380 pages
File Size : 40,7 Mb
Release : 2022-10-20
Category : Law
ISBN : 9789403548746

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European Union Health Law by Herman Nys Pdf

Derived from the renowned multi-volume International Encyclopaedia of Laws, this convenient volume provides comprehensive analysis of the law at EU level affecting the physician-patient relationship and the interaction of physicians with other healthcare providers and the healthcare system. Although the legal aspects of healthcare in Europe most often fall under national law, the past two decades have witnessed the emergence of a distinctive field of EU health law with its own underlying principles and structural coherence, founded in a series of directives and CJEU decisions. This book examines the areas in which EU law now must be taken into account in healthcare, including aspects of patients’ rights, recognition of professional qualifications and minimum training conditions, professional rules of conduct, clinical trials and investigations of medicinal products and medical devices, health and genetic data, and beginning and end of life issues. Succinct and practical, this book will prove to be of great value to professional organizations of physicians, nurses, hospitals, and relevant government agencies. Lawyers representing parties with interests in the European Union will welcome this very useful guide, and academics and researchers will appreciate its comparative value as a contribution to the study of health law and medical law in the international context.

Research Handbook on EU Data Protection Law

Kosta, Eleni,Leenes, Ronald,Kamara, Irene
Research Handbook on EU Data Protection Law Book PDF

Author : Kosta, Eleni,Leenes, Ronald,Kamara, Irene
Publisher : Edward Elgar Publishing
Page : 672 pages
File Size : 40,9 Mb
Release : 2022-04-19
Category : Law
ISBN : 9781800371682

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Research Handbook on EU Data Protection Law by Kosta, Eleni,Leenes, Ronald,Kamara, Irene Pdf

Bringing together leading European scholars, this thought-provoking Research Handbook provides a state-of-the-art overview of the scope of research and current thinking in the area of European data protection. Offering critical insights on prominent strands of research, it examines key challenges and potential solutions in the field. Chapters explore the fundamental right to personal data protection, government-to-business data sharing, data protection as performance-based regulation, privacy and marketing in data-driven business models, data protection and judicial automation, and the role of consent in an algorithmic society.

Data Protection and Privacy: (In)visibilities and Infrastructures

Ronald Leenes,Rosamunde van Brakel,Serge Gutwirth,Paul De Hert
Data Protection and Privacy In visibilities and Infrastructures Book PDF

Author : Ronald Leenes,Rosamunde van Brakel,Serge Gutwirth,Paul De Hert
Publisher : Springer
Page : 295 pages
File Size : 42,5 Mb
Release : 2017-02-07
Category : Law
ISBN : 9783319507965

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Data Protection and Privacy: (In)visibilities and Infrastructures by Ronald Leenes,Rosamunde van Brakel,Serge Gutwirth,Paul De Hert Pdf

This book features peer reviewed contributions from across the disciplines on themes relating to protection of data and to privacy protection. The authors explore fundamental and legal questions, investigate case studies and consider concepts and tools such as privacy by design, the risks of surveillance and fostering trust. Readers may trace both technological and legal evolution as chapters examine current developments in ICT such as cloud computing and the Internet of Things. Written during the process of the fundamental revision of revision of EU data protection law (the 1995 Data Protection Directive), this volume is highly topical. Since the European Parliament has adopted the General Data Protection Regulation (Regulation 2016/679), which will apply from 25 May 2018, there are many details to be sorted out. This volume identifies and exemplifies key, contemporary issues. From fundamental rights and offline alternatives, through transparency requirements to health data breaches, the reader is provided with a rich and detailed picture, including some daring approaches to privacy and data protection. The book will inform and inspire all stakeholders. Researchers with an interest in the philosophy of law and philosophy of technology, in computers and society, and in European and International law will all find something of value in this stimulating and engaging work.