Patient Reported Outcomes

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Patient-Reported Outcomes in Performance Measurement

David Cella,Elizabeth A. Hahn,Sally E. Jensen,Zeeshan Butt,Cindy J. Nowinski,Nan Rothrock,Kathleen N. Lohr
Patient Reported Outcomes in Performance Measurement Book PDF

Author : David Cella,Elizabeth A. Hahn,Sally E. Jensen,Zeeshan Butt,Cindy J. Nowinski,Nan Rothrock,Kathleen N. Lohr
Publisher : RTI Press
Page : 97 pages
File Size : 51,6 Mb
Release : 2015-09-17
Category : Medical
ISBN : 9781934831144

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Patient-Reported Outcomes in Performance Measurement by David Cella,Elizabeth A. Hahn,Sally E. Jensen,Zeeshan Butt,Cindy J. Nowinski,Nan Rothrock,Kathleen N. Lohr Pdf

Patient-reported outcomes (PROs) are measures of how patients feel or what they are able to do in the context of their health status; PROs are reports, usually on questionnaires, about a patient's health conditions, health behaviors, or experiences with health care that individuals report directly, without modification of responses by clinicians or others; thus, they directly reflect the voice of the patient. PROs cover domains such as physical health, mental and emotional health, functioning, symptoms and symptom burden, and health behaviors. They are relevant for many activities: helping patients and their clinicians make informed decisions about health care, monitoring the progress of care, setting policies for coverage and reimbursement of health services, improving the quality of health care services, and tracking or reporting on the performance of health care delivery organizations. We address the major methodological issues related to choosing, administering, and using PROs for these purposes, particularly in clinical practice settings. We include a framework for best practices in selecting PROs, focusing on choosing appropriate methods and modes for administering PRO measures to accommodate patients with diverse linguistic, cultural, educational, and functional skills, understanding measures developed through both classic and modern test theory, and addressing complex issues relating to scoring and analyzing PRO data.

Patient-Reported Outcomes

Joseph C. Cappelleri,Kelly H. Zou,Andrew G. Bushmakin,Jose Ma. J. Alvir,Demissie Alemayehu,Tara Symonds
Patient Reported Outcomes Book PDF

Author : Joseph C. Cappelleri,Kelly H. Zou,Andrew G. Bushmakin,Jose Ma. J. Alvir,Demissie Alemayehu,Tara Symonds
Publisher : CRC Press
Page : 354 pages
File Size : 44,5 Mb
Release : 2013-12-20
Category : Mathematics
ISBN : 9781439873670

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Patient-Reported Outcomes by Joseph C. Cappelleri,Kelly H. Zou,Andrew G. Bushmakin,Jose Ma. J. Alvir,Demissie Alemayehu,Tara Symonds Pdf

Advancing the development, validation, and use of patient-reported outcome (PRO) measures, Patient-Reported Outcomes: Measurement, Implementation and Interpretation helps readers develop and enrich their understanding of PRO methodology, particularly from a quantitative perspective. Designed for biopharmaceutical researchers and others in the health sciences community, it provides an up-to-date volume on conceptual and analytical issues of PRO measures. The book discusses key concepts relating to the measurement, implementation, and interpretation of PRO measures. It covers both introductory and advanced psychometric and biostatistical methods for constructing and analyzing PRO measures. The authors include many relevant real-life applications based on their extensive first-hand experiences in the pharmaceutical industry. They implement a wealth of simulated datasets to illustrate concepts and heighten understanding based on practical scenarios. For readers interested in conducting statistical analyses of PRO measures and delving more deeply into the analytic details, most chapters contain SAS code and output that illustrate the methodology. Along with providing numerous references, the book highlights current regulatory guidelines.

High Quality Care for All

Secretary of State for Health
High Quality Care for All Book PDF

Author : Secretary of State for Health
Publisher : The Stationery Office
Page : 92 pages
File Size : 50,8 Mb
Release : 2008
Category : Business & Economics
ISBN : 010174322X

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High Quality Care for All by Secretary of State for Health Pdf

This review incorporates the views and visions of 2,000 clinicians and other health and social care professionals from every NHS region in England, and has been developed in discussion with patients, carers and the general public. The changes proposed are locally-led, patient-centred and clinically driven. Chapter 2 identifies the challenges facing the NHS in the 21st century: ever higher expectations; demand driven by demographics as people live longer; health in an age of information and connectivity; the changing nature of disease; advances in treatment; a changing health workplace. Chapter 3 outlines the proposals to deliver high quality care for patients and the public, with an emphasis on helping people to stay healthy, empowering patients, providing the most effective treatments, and keeping patients as safe as possible in healthcare environments. The importance of quality in all aspects of the NHS is reinforced in chapter 4, and must be understood from the perspective of the patient's safety, experience in care received and the effectiveness of that care. Best practice will be widely promoted, with a central role for the National Institute for Health and Clinical Excellence (NICE) in expanding national standards. This will bring clarity to the high standards expected and quality performance will be measured and published. The review outlines the need to put frontline staff in control of this drive for quality (chapter 5), with greater freedom to use their expertise and skill and decision-making to find innovative ways to improve care for patients. Clinical and managerial leadership skills at the local level need further development, and all levels of staff will receive support through education and training (chapter 6). The review recommends the introduction of an NHS Constitution (chapter 7). The final chapter sets out the means of implementation.

Patient Reported Outcome Measures in Rheumatic Diseases

Yasser El Miedany
Patient Reported Outcome Measures in Rheumatic Diseases Book PDF

Author : Yasser El Miedany
Publisher : Springer
Page : 449 pages
File Size : 55,9 Mb
Release : 2016-09-14
Category : Medical
ISBN : 9783319328515

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Patient Reported Outcome Measures in Rheumatic Diseases by Yasser El Miedany Pdf

This book discusses the role of patient reported outcome measures (PROMs) in the diagnosis and management of rheumatic diseases and their implementation in patient-centered care. It aims to improve the quality and efficiency of patient care in standard practice by outlining the appropriate information-gathering and decision-making processes. The book highlights the evidence and advanced knowledge base of PROMs in rheumatic diseases such as rheumatoid arthritis, systemic lupus erythematosus, juvenile idiopathic arthritis, osteoarthritis, and systemic sclerosis. Featuring reviews of Patient Reported Outcome tools and Physician RheuMetric Measures as well as examples of patient reported outcome questionnaires, Patient Reported Outcome Measures in Rheumatic Diseases serves as an excellent introduction and resource for implementation of PROMs in clinical rheumatology practice.

Registries for Evaluating Patient Outcomes

Agency for Healthcare Research and Quality/AHRQ
Registries for Evaluating Patient Outcomes Book PDF

Author : Agency for Healthcare Research and Quality/AHRQ
Publisher : Government Printing Office
Page : 396 pages
File Size : 44,5 Mb
Release : 2014-04-01
Category : Medical
ISBN : 9781587634338

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Registries for Evaluating Patient Outcomes by Agency for Healthcare Research and Quality/AHRQ Pdf

This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.

Quality of Life

Peter M. Fayers,David Machin
Quality of Life Book PDF

Author : Peter M. Fayers,David Machin
Publisher : John Wiley & Sons
Page : 460 pages
File Size : 53,6 Mb
Release : 2013-05-23
Category : Medical
ISBN : 9781118699454

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Quality of Life by Peter M. Fayers,David Machin Pdf

Quality of life studies form an essential part of the evaluation of any treatment. Written by two authors who are well respected within this field, Quality of Life: The Assessment, Analysis and Interpretation of Patient-reported Outcomes, Second Edition lays down guidelines on assessing, analysing and interpreting quality of life data. The new edition of this standard book has been completely revised, updated and expanded to reflect many methodological developments emerged since the publication of the first edition. Covers the design of instruments, the practical aspects of implementing assessment, the analyses of the data, and the interpretation of the results Presents all essential information on Quality of Life Research in one comprehensive volume Explains the use of qualitative and quantitative methods, including the application of basic statistical methods Includes copious practical examples Fills a need in a rapidly growing area of interest New edition accommodates significant methodological developments, and includes chapters on computer adaptive testing and item banking, choosing an instrument, systematic reviews and meta analysis This book is of interest for everyone involved in quality of life research, and it is applicable to medical and non-medical, statistical and non-statistical readers. It is of particular relevance for clinical and biomedical researchers within both the pharmaceutical industry and practitioners in the fields of cancer and other chronic diseases. Reviews of the First Edition – Winner of the first prize in the Basis of Medicine Category of the BMA Medical Book Competition 2001: “This book is highly recommended to clinicians who are actively involved in the planning, analysis and publication of QoL research.” CLINICAL ONCOLOGY “This book is highly recommended reading.” QUALITY OF LIFE RESEARCH

Equity and excellence:

Great Britain: Department of Health
Equity and excellence Book PDF

Author : Great Britain: Department of Health
Publisher : The Stationery Office
Page : 64 pages
File Size : 48,6 Mb
Release : 2010-07-12
Category : Medical
ISBN : 0101788126

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Equity and excellence: by Great Britain: Department of Health Pdf

Equity and Excellence : Liberating the NHS: Presented to Parliament by the Secretary of State for Health by Command of Her Majesty

Performance Measurement for Health System Improvement

Peter C. Smith,Elias Mossialos,Irene Papanicolas,Sheila Leatherman
Performance Measurement for Health System Improvement Book PDF

Author : Peter C. Smith,Elias Mossialos,Irene Papanicolas,Sheila Leatherman
Publisher : Cambridge University Press
Page : 748 pages
File Size : 50,7 Mb
Release : 2010-01-07
Category : Business & Economics
ISBN : 9781139483933

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Performance Measurement for Health System Improvement by Peter C. Smith,Elias Mossialos,Irene Papanicolas,Sheila Leatherman Pdf

In a world where there is increasing demand for the performance of health providers to be measured, there is a need for a more strategic vision of the role that performance measurement can play in securing health system improvement. This volume meets this need by presenting the opportunities and challenges associated with performance measurement in a framework that is clear and easy to understand. It examines the various levels at which health system performance is undertaken, the technical instruments and tools available, and the implications using these may have for those charged with the governance of the health system. Technical material is presented in an accessible way and is illustrated with examples from all over the world. Performance Measurement for Health System Improvement is an authoritative and practical guide for policy makers, regulators, patient groups and researchers.

Pharmacoepidemiology

Brian L. Strom,Stephen E. Kimmel,Sean Hennessy
Pharmacoepidemiology Book PDF

Author : Brian L. Strom,Stephen E. Kimmel,Sean Hennessy
Publisher : John Wiley & Sons
Page : 1220 pages
File Size : 47,5 Mb
Release : 2019-12-16
Category : Medical
ISBN : 9781119413417

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Pharmacoepidemiology by Brian L. Strom,Stephen E. Kimmel,Sean Hennessy Pdf

This classic, field-defining textbook, now in its sixth edition, provides the most comprehensive guidance available for anyone needing up-to-date information in pharmacoepidemiology. This edition has been fully revised and updated throughout and continues to provide a rounded view on all perspectives from academia, industry and regulatory bodies, addressing data sources, applications and methodologies with great clarity.

Outcomes Assessment in Cancer

Joseph Lipscomb,Carolyn C. Gotay,Claire Snyder
Outcomes Assessment in Cancer Book PDF

Author : Joseph Lipscomb,Carolyn C. Gotay,Claire Snyder
Publisher : Cambridge University Press
Page : 0 pages
File Size : 40,9 Mb
Release : 2011-08-18
Category : Medical
ISBN : 1107403162

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Outcomes Assessment in Cancer by Joseph Lipscomb,Carolyn C. Gotay,Claire Snyder Pdf

The U.S. National Cancer Institute established the Cancer Outcomes Measurement Working Group in 2001 to evaluate measurements of the important and diverse impacts of cancer on individuals and populations. The findings and recommendations of the working group's 35 internationally recognized members provide alternative approaches for comprehensively measuring the burden of cancer and the effectiveness of preventive and therapeutic interventions.

Cochrane Handbook for Systematic Reviews of Interventions

Julian P. T. Higgins,Sally Green
Cochrane Handbook for Systematic Reviews of Interventions Book PDF

Author : Julian P. T. Higgins,Sally Green
Publisher : Wiley
Page : 672 pages
File Size : 54,9 Mb
Release : 2008-11-24
Category : Medical
ISBN : 0470699515

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Cochrane Handbook for Systematic Reviews of Interventions by Julian P. T. Higgins,Sally Green Pdf

Healthcare providers, consumers, researchers and policy makers are inundated with unmanageable amounts of information, including evidence from healthcare research. It has become impossible for all to have the time and resources to find, appraise and interpret this evidence and incorporate it into healthcare decisions. Cochrane Reviews respond to this challenge by identifying, appraising and synthesizing research-based evidence and presenting it in a standardized format, published in The Cochrane Library (www.thecochranelibrary.com). The Cochrane Handbook for Systematic Reviews of Interventions contains methodological guidance for the preparation and maintenance of Cochrane intervention reviews. Written in a clear and accessible format, it is the essential manual for all those preparing, maintaining and reading Cochrane reviews. Many of the principles and methods described here are appropriate for systematic reviews applied to other types of research and to systematic reviews of interventions undertaken by others. It is hoped therefore that this book will be invaluable to all those who want to understand the role of systematic reviews, critically appraise published reviews or perform reviews themselves.

Patient Reported Outcomes

Annabel Nixon,Diane Wild,Willie Muehlhausen
Patient Reported Outcomes Book PDF

Author : Annabel Nixon,Diane Wild,Willie Muehlhausen
Publisher : SEEd
Page : 42 pages
File Size : 41,5 Mb
Release : 2015-07-01
Category : Medical
ISBN : 9788897419600

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Patient Reported Outcomes by Annabel Nixon,Diane Wild,Willie Muehlhausen Pdf

Patient reported outcomes (PROs) are a measurement based on a report that comes directly from the patient about the status of their health condition without amendment or interpretation of the patient’s response by a clinician or anyone else. Valid and reliable PRO instruments are able to provide a standardized, quantifiable measure of treatment benefit, upon which the outcomes of interventions and treatment effect from the patient’s perspective can be judged. In some instances, PROs provide the best evidence of a treatment’s effectiveness, for example when evaluating treatments for pain, gastrointestinal and urological symptoms, or psychological well-being. This book aims to provide an overview of PRO applications, methodology and validation in order to help reader approach this measurement that are playing an increasingly central role in drug development decision making.

Bereavement Care for Families

David W. Kissane,Francine Parnes
Bereavement Care for Families Book PDF

Author : David W. Kissane,Francine Parnes
Publisher : Routledge
Page : 296 pages
File Size : 49,5 Mb
Release : 2014-01-03
Category : Psychology
ISBN : 9781136192838

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Bereavement Care for Families by David W. Kissane,Francine Parnes Pdf

Grief is a family affair. When a loved one dies, the distress reverberates throughout the immediate and extended family. Family therapy has long attended to issues of loss and grief, yet not as the dominant therapeutic paradigm. Bereavement Care for Families changes that: it is a practical resource for the clinician, one that draws upon the evidence supporting family approaches to bereavement care and also provides clinically oriented, strategic guidance on how to incorporate family approaches into other models. Subsequent chapters set forth a detailed, research-based therapeutic model that clinicians can use to facilitate therapy, engage the ambivalent, deal with uncertainty, manage family conflict, develop realistic goals, and more. Any clinician sensitive to the roles family members play in bereavement care need look no further than this groundbreaking text.

Health Measurement Scales

David L. Streiner,Geoffrey R. Norman,John Cairney
Health Measurement Scales Book PDF

Author : David L. Streiner,Geoffrey R. Norman,John Cairney
Publisher : Oxford University Press, USA
Page : 415 pages
File Size : 48,6 Mb
Release : 2015
Category : Language Arts & Disciplines
ISBN : 9780199685219

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Health Measurement Scales by David L. Streiner,Geoffrey R. Norman,John Cairney Pdf

A new edition of this practical guide for clinicians who are developing tools to measure subjective states, attitudes, or non-tangible outcomes in their patients, suitable for those who have no knowledge of statistics.

Outcome Measures and Metrics in Systemic Lupus Erythematosus

Zahi Touma
Outcome Measures and Metrics in Systemic Lupus Erythematosus Book PDF

Author : Zahi Touma
Publisher : Springer Nature
Page : 418 pages
File Size : 46,7 Mb
Release : 2021-07-22
Category : Medical
ISBN : 9783030733032

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Outcome Measures and Metrics in Systemic Lupus Erythematosus by Zahi Touma Pdf

Systemic Lupus Erythematosus (SLE) is a chronic autoimmune disease that manifests with a myriad of clinical and laboratory features. The assessment of SLE is comprehensive and includes different core set domains; disease activity, damage, health-related quality of life, adverse events and economic impact. This comprehensive book is focused on the instruments and outcome measures utilized in the assessment of SLE. It targets different audiences including physicians, scientists/researchers and different health professionals interested in learning about the art of measurement in SLE. The book highlights the importance of measurement in the assessment of SLE in a clinical settings, research and clinical trials. Each of the chapters provide a systematic approach to the instruments utilized in the assessment of a specific construct in SLE (e.g., disease activity, fatigue, etc.) and incorporate a comprehensive coverage of disease specific and disease generic measures. It also discusses different patient-reported outcomes that are crucial to reflect patient perceptions of their health condition and cover constructs such as fatigue, pain, anxiety and depression, cognition, frailty, and many others.