Quality Of Life Research On Children And Adolescents
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Quality-of-Life Research on Children and Adolescents by Anne Dannerbeck,Ferran Casas,Marta Sadurni,Germa Coenders Pdf
This title is a must-read for anyone interested in deepening their understanding of the behaviours of children and adolescents. It focuses on measurement issues related to the subjective well-being of children and adolescents as opposed to current objective measurements. The volume contains eight chapters that represent a significant advancement in our understanding of life satisfaction in specific age groups, behavioural context, and cultures. The first chapter provides a synthesis of assessment research directed at children and youth. The subsequent chapters offer an in-depth look at subpopulations of youth and specific behaviours. Together the chapters demonstrate the importance of considering the role of life satisfaction across age groups and situations. This volume will be of interest to researchers in government and academia, social psychologists, those working in the prevention sciences, and others who focus on assessing the quality of life and well-being of children and adolescents.
Measuring Health-Related Quality of Life in Children and Adolescents by Dennis Drotar Pdf
This volume's purpose is to describe concepts and methods concerning assessment of health-related quality of life (HRQOL) in children and adolescents with a special focus on chronic health conditions. The impetus for this book came from a recognition of the increasing importance of HRQOL assessments in the evaluation of treatment outcomes and the need to increase the utilization of HRQOL assessments in research and clinical applications with a range of pediatric populations. The need to develop a volume that describes new research and clinical applications concerning this topic stemmed from several recent developments. There is a continuing need for evaluations of the efficacy of medical treatments for children and adolescents, including those with chronic health conditions. To address these critical unmet needs in the field of HRQOL assessment, and to advance scientific methods and clinical applications in this field, a conference was held at Case Western Reserve University. The conference set out to summarize current information concerning the development and implementation of measures of HRQOL assessment, to identify and consider key conceptual and methodological issues in research concerning the measurement of HRQOL, and to recommend priorities to advance the state-of-the-art in research and clinical applications of QOL assessment in children and adolescents with chronic health conditions. This volume summarizes and synthesizes the information that was presented by the conference participants in a series of lively discussions and chapters that were based on the presentations.
Quality of Life in Child and Adolescent Illness by Hans M. Koot,Jan Lance Wallander Pdf
This book introduces the reader to the emerging field of quality of life assessment and provides a comprehensive overview of the conceptual and methodological issues concerning quality of life in child and adolescent illness.
Measuring Health-Related Quality of Life in Children and Adolescents by Dennis Drotar Pdf
This volume's purpose is to describe concepts and methods concerning assessment of health-related quality of life (HRQOL) in children and adolescents with a special focus on chronic health conditions. The impetus for this book came from a recognition of the increasing importance of HRQOL assessments in the evaluation of treatment outcomes and the need to increase the utilization of HRQOL assessments in research and clinical applications with a range of pediatric populations. The need to develop a volume that describes new research and clinical applications concerning this topic stemmed from several recent developments. There is a continuing need for evaluations of the efficacy of medical treatments for children and adolescents, including those with chronic health conditions. To address these critical unmet needs in the field of HRQOL assessment, and to advance scientific methods and clinical applications in this field, a conference was held at Case Western Reserve University. The conference set out to summarize current information concerning the development and implementation of measures of HRQOL assessment, to identify and consider key conceptual and methodological issues in research concerning the measurement of HRQOL, and to recommend priorities to advance the state-of-the-art in research and clinical applications of QOL assessment in children and adolescents with chronic health conditions. This volume summarizes and synthesizes the information that was presented by the conference participants in a series of lively discussions and chapters that were based on the presentations.
Quality of Life in Child and Adolescent Illness by Hans Koot,Jan Wallander Pdf
How can we measure the quality of life in children and adolescents with chronic disease? Major progress in the diagnosis and treatment of severe and chronic disease has led to an increased number of children and their families having to adapt and cope with the impact of disease, survival, and the cost of treatment. Health professionals have responded to this by developing a diversity of instruments for measuring quality of life for use in paediatrics, psychology and public health. This book introduces the reader to the emerging field of quality of life assessment and provides a comprehensive overview of the conceptual and methodological issues concerning quality of life in child and adolescent illness. Particular emphasis is provided on current efforts to measure the impact of specific chronic conditions on different domains of child functioning. Future directions are outlined for the development of appropriate instruments for measuring quality of life in children and adolescents. Quality of Life in Child and Adolescent Illness is intended for psychologists, paediatricians, paediatric nurses, child psychiatrists, public health professionals, researchers and other interested readers from the undergraduate to the working professional.
The Quality of Life in Youth Services Scale (QOLYSS) by Chris Swerts Pdf
Individual quality of life has been widely used as a frame of reference guiding service provision in social and health services, as well as a critical objective or outcome of these services. Yet, the topic of quality of life in the context of child and youth care remains a relatively uncharted territory. This dissertation is based on a practice-oriented project that focuses on bridging the gap between research and practice on the topic of quality of life of adolescents in youth care. This work concentrates on the development, validation, and application of a new self-report tool, grounded in youngsters’ experiences and perceptions, to methodically and systematically assess the quality of life of adolescents in youth care from their own perspectives: the Quality of Life in Youth Services Scale (QOLYSS). The QOLYSS aims to help understand how youngsters perceive, evaluate, and make sense of varying discrete aspects and circumstances of their lives. This line of work offers valuable insights to develop person-centered planning and implement individualized support, tailored to youngsters’ characteristics, perceptions of life, wishes, and expectations. It further helps unveil critical opportunities and barriers regarding a life of quality on the different layers of everyday life of youngsters. The work presented here provides a concrete tool and a number of cross-cutting implications for research, practice and policy when aiming to build quality of life-enhancing environments for youngsters in youth care that help them (re-)claim ownership of their lives and care pathways.
Research, Applications, and Interventions for Children and Adolescents by Carmel Proctor,P. Alex Linley Pdf
This book presents recent positive psychological research, applications and interventions being used among adolescents and children. Currently there is a wave of change occurring whereby educators, and others working with children and adolescents, are beginning to recognize the benefits of looking at well-being from a positive perspective, specifically the integration of positive psychological theory into the school curriculum in order to improve student well-being. Moreover, although the positive psychological field has grown tremendously since its inception, there remains an imbalance in the publication of research findings, applications, and interventions among children and adolescents in comparison to adults. This book fills the need for a reference to this valuable information and benefits a wide range of professionals, including educators, clinicians, psychologists, students, and many other working with children and adolescents.
National Academies of Sciences, Engineering, and Medicine,Division of Behavioral and Social Sciences and Education,Board on Children, Youth, and Families,Committee on Supporting the Parents of Young Children
Author : National Academies of Sciences, Engineering, and Medicine,Division of Behavioral and Social Sciences and Education,Board on Children, Youth, and Families,Committee on Supporting the Parents of Young Children Publisher : National Academies Press Page : 525 pages File Size : 43,7 Mb Release : 2016-11-21 Category : Social Science ISBN : 9780309388573
Parenting Matters by National Academies of Sciences, Engineering, and Medicine,Division of Behavioral and Social Sciences and Education,Board on Children, Youth, and Families,Committee on Supporting the Parents of Young Children Pdf
Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.
Mental Health and Quality of Life of Adolescents with Physical, Intellectual and Developmental Disabilities by Zenon Gajdzica,Stanisława Byra,Anna Kołodziej-Zaleska,Katarzyna Rutkowska,Daniela Dzienniak-Pulina Pdf
This timely volume addresses issues related to the mental health and health-related quality of life of adolescents through a study with three groups: those with physical, intellectual, and other developmental disabilities, specifically fetal alcohol spectrum disorder (FASD). Investigating the physical, cognitive, and social-emotional dimension of adolescents' quality of life, the chapters explore the meaning of personal and social resources of adolescents with disability and their parents in the context of the Polish system of support for families with disabled children, further highlighting difficulties intensified by the COVID-19 pandemic. Another field-defining work on the progression of mental health research for children and adolescents, this book will be a useful and timely contribution to researchers, post-graduate students, and scholars in the fields of developmental and social psychology, mental health research, adolescent psychotherapy, and disability. It will also be of interest to school counselors, parents, and caregivers.
Quality of Life Measurement in Neurodegenerative and Related Conditions by Crispin Jenkinson,Michele Peters,Mark B. Bromberg Pdf
Patient reported outcome measures are central to the evaluation of medical care and treatment regimes. Such measures depart from traditional clinical assessments as they are based on issues known to be of importance to patients. This book outlines the development and application of a variety of such measures in a wide range of neurological conditions. Introductory chapters outline issues in the application and validation of quality-of-life measures in neurology. Subsequent chapters survey the most widely used quality-of-life instruments in Parkinson's disease, motor neurone disease, multiple sclerosis, multiple system atrophy, progressive supranuclear palsy, and Alzheimer's/dementia. A chapter on cerebral palsy deals with the particular challenges to developing outcome measures for children. The book also addresses issues relating to the translation of measures for use in cross-cultural studies, handling missing data, carer experiences of long-term conditions, and methodological challenges. Essential reading for clinicians and researchers working in the field of neurology.
The Science of Subjective Well-Being by Michael Eid,Randy J. Larsen Pdf
This authoritative volume reviews the breadth of current scientific knowledge on subjective well-being (SWB): its definition, causes and consequences, measurement, and practical applications that may help people become happier. Leading experts explore the connections between SWB and a range of intrapersonal and interpersonal phenomena, including personality, health, relationship satisfaction, wealth, cognitive processes, emotion regulation, religion, family life, school and work experiences, and culture. Interventions and practices that enhance SWB are examined, with attention to both their benefits and limitations. The concluding chapter from Ed Diener dispels common myths in the field and presents a thoughtful agenda for future research.
Quality of Life in Child and Adolescent Illness by Hans Koot Pdf
How can we measure the quality of life in children and adolescents with chronic disease? Major progress in the diagnosis and treatment of severe and chronic disease has led to an increased number of children and their families having to adapt and cope with the impact of disease, survival, and the cost of treatment. Health professionals have responded to this by developing a diversity of instruments for measuring quality of life for use in paediatrics, psychology and public health. This book introduces the reader to the emerging field of quality of life assessment and provides a comprehensive overview of the conceptual and methodological issues concerning quality of life in child and adolescent illness. Particular emphasis is provided on current efforts to measure the impact of specific chronic conditions on different domains of child functioning. Future directions are outlined for the development of appropriate instruments for measuring quality of life in children and adolescents. Quality of Life in Child and Adolescent Illness is intended for psychologists, paediatricians, paediatric nurses, child psychiatrists, public health professionals, researchers and other interested readers from the undergraduate to the working professional.
Comprehensive Handbook of Childhood Cancer and Sickle Cell Disease by Ronald T. Brown Pdf
Over recent decades, tremendous advances in the prevention, medical treatment, and quality of life issues in children and adolescents surviving cancer have spawned a host of research on pediatric psychosocial oncology. This important volume fulfills the clear need for an up-to-date, comprehensive handbook for practitioners that delineates the most recent research in the field--the first of its kind in over a decade. Over 60 renowned authors have been assembled to provide a thorough presentation of the state-of-the art research and literature, with topics including: -Neuropsychological effects of chemotherapy and radiation therapy -Bone marrow transplantation -Important issues about quality of life during and following treatment -Collaborative research among child-focused psychologists -Standards of psychological care for children and adolescents -Stress and coping in the pediatric cancer experience -The role of family and peer relationships The Comprehensive Handbook of Childhood Cancer and Sickle Cell Disease represents both multidisciplinary and international efforts, an alliance between physicians and parents, and a combination of research and service. With a wealth of information of great interest to patients and their families, this volume will also be a welcome resource to the psychologists, psychiatrists, pediatricians, oncologists, nurses, and social workers who confront these issues as they help children and their families through the treatment, recovery, and grieving processes.
