Reconstructing Motherhood And Disability In The Age Of Perfect Babies
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Reconstructing Motherhood and Disability in the Age of Perfect Babies by Gail Landsman Pdf
Examining mothers of newly diagnosed disabled children within the context of new reproductive technologies and the discourse of choice, this book uses anthropology and disability studies to revise the concept of "normal" and to establish a social environment in which the expression of full lives will prevail.
This book explores the intersection between motherhood and physical disability. It is based on a study that focused on the lived experiences of women with physical disabilities, mothers and non-mothers. What meaning does motherhood have for these women? What is it like for them? What messages do they receive about themselves as women, with or without children? What barriers do they foresee and/or come across? These issues are explored from the vantage point of disabled women with and without children.
The Routledge International Handbook on Narrative and Life History by Ivor Goodson,Ari Antikainen,Pat Sikes,Molly Andrews Pdf
In recent decades, there has been a substantial turn towards narrative and life history study. The embrace of narrative and life history work has accompanied the move to postmodernism and post-structuralism across a wide range of disciplines: sociological studies, gender studies, cultural studies, social history; literary theory; and, most recently, psychology. Written by leading international scholars from the main contributing perspectives and disciplines, The Routledge International Handbook on Narrative and Life History seeks to capture the range and scope as well as the considerable complexity of the field of narrative study and life history work by situating these fields of study within the historical and contemporary context. Topics covered include: • The historical emergences of life history and narrative study • Techniques for conducting life history and narrative study • Identity and politics • Generational history • Social and psycho-social approaches to narrative history With chapters from expert contributors, this volume will prove a comprehensive and authoritative resource to students, researchers and educators interested in narrative theory, analysis and interpretation.
Disability and Qualitative Inquiry by Ronald J. Berger,Laura S. Lorenz Pdf
This groundbreaking text makes an intervention on behalf of disability studies into the broad field of qualitative inquiry. Ronald Berger and Laura Lorenz introduce readers to a range of issues involved in doing qualitative research on disabilities by bringing together a collection of scholarly work that supplements their own contributions and covers a variety of qualitative methods: participant observation, interviewing and interview coding, focus groups, autoethnography, life history, narrative analysis, content analysis, and participatory visual methods. The chapters are framed in terms of the relevant methodological issues involved in the research, bringing in substantive findings to illustrate the fruits of the methods. In doing so, the book covers a range of physical, sensory, and cognitive impairments. This work resonates with themes in disability studies such as emancipatory research, which views research as a collaborative effort with research subjects whose lives are enhanced by the process and results of the work. It is a methodological approach that requires researchers to be on guard against exploiting informants for the purpose of professional aggrandizement and to engage in a process of ongoing self-reflection to clear themselves of personal and professional biases that may interfere with their ability to hear and empathize with others.
Author : Stefan Timmermans,Mara Buchbinder Publisher : University of Chicago Press Page : 320 pages File Size : 47,8 Mb Release : 2015-05-06 Category : Medical ISBN : 9780226273617
Saving Babies? by Stefan Timmermans,Mara Buchbinder Pdf
Introduction: the consequences of newborn screening -- The expansion of newborn screening -- Patients-in-waiting -- Shifting disease ontologies -- Is my baby normal? -- The limits of prevention -- Does expanded newborn screening save lives? -- Conclusion: the future of expanded newborn screening
New Narratives of Disability by Sara E. Green,Donileen R. Loseke Pdf
This volume seeks to answer the call for richer, more diverse understandings of disability through questions about narrative frameworks in disability research.Narrative is a omnipresent meaning-producing communication form in social life that is both cultural and personal.
Author : Gareth M. Thomas Publisher : Taylor & Francis Page : 200 pages File Size : 49,9 Mb Release : 2017-03-16 Category : Health & Fitness ISBN : 9781317338215
Down's Syndrome Screening and Reproductive Politics by Gareth M. Thomas Pdf
In the UK and beyond, Down’s syndrome screening has become a universal programme in prenatal care. But why does screening persist, particularly in light of research that highlights pregnant women’s ambivalent and problematic experiences with it? Drawing on an ethnography of Down’s syndrome screening in two UK clinics, Thomas explores how and why we are so invested in this practice and what effects this has on those involved. Informed by theoretical approaches that privilege the mundane and micro practices, discourses, materials, and rituals of everyday life, Down’s Syndrome Screening and Reproductive Politics describes the banal world of the clinic and, in particular, the professionals contained within it who are responsible for delivering this programme. In so doing, it illustrates how Down’s syndrome screening is ‘downgraded’ and subsequently stabilised as a ‘routine’ part of a pregnancy. Further, the book captures how this routinisation is deepened by a systematic, but subtle, framing of Down’s syndrome as a negative pregnancy outcome. By unpacking the complex relationships between professionals, parents, technology, policy, and clinical practice, Thomas identifies how and why screening is successfully routinised and how it is embroiled in both new and familiar debates surrounding pregnancy, ethics, choice, diagnosis, care, disability, and parenthood. The book will appeal to academics, students, and professionals interested in medical sociology, medical anthropology, science and technology studies (STS), bioethics, genetics, and/or disability studies.
In Disability Worlds, Faye Ginsburg and Rayna Rapp chronicle and theorize two decades of immersion in New York City’s wide-ranging disability worlds as parents, activists, anthropologists, and disability studies scholars. They situate their disabled children’s lives among the experiences of advocates, families, experts, activists, and artists in larger struggles for recognition and rights. Disability consciousness, they show, emerges in everyday politics, practices, and frictions. Chapters consider dilemmas of genetic testing and neuroscientific research, reimagining kinship and community, the challenges of “special education,” and the perils of transitioning from high school. They also highlight the vitality of neurodiversity activism, disability arts, politics, and public culture. Disability Worlds reflects the authors’ anthropological commitments to recognizing the significance of this fundamental form of human difference. Ginsburg and Rapp’s conversations with diverse New Yorkers reveal the bureaucratic constraints and paradoxes established in response to the disability rights movement, as well as the remarkable creativity of disabled people and their allies who are opening pathways into both disability justice and disability futures.
Based on years of careful ethnographic fieldwork in Hanoi, Haunting Images offers a frank and compassionate account of the moral quandaries that accompany innovations in biomedical technology. At the center of the book are case studies of thirty pregnant women whose fetuses were labeled ÒabnormalÓ after an ultrasound examination. By following these women and their relatives through painful processes of reproductive decision making, Tine M. Gammeltoft offers intimate ethnographic insights into everyday life in contemporary Vietnam and a sophisticated theoretical exploration of how subjectivities are forged in the face of moral assessments and demands. Across the globe, ultrasonography and other technologies for prenatal screening offer prospective parents new information and present them with agonizing decisions never faced in the past. For anthropologists, this diagnostic capability raises important questions about individuality and collectivity, responsibility and choice. Arguing for more sustained anthropological attention to human quests for belonging, Haunting Images addresses existential questions of love and loss that concern us all.
Psychiatry of Intellectual Disability Across Cultures by Anonim Pdf
Intellectual disability is a lifelong condition involving deficits in both intellectual and adaptive functioning. Individuals with intellectual disability experience a greater burden of co-occurring physical and mental illness compared to the general population, and often need a significant degree of support from healthcare professionals and carers, as well as family and friends. Additionally, their lives can be greatly influenced both positively and negatively by the cultures in which they exist, including societal attitudes, belief systems and norms. An insightful addition to the Oxford Cultural Psychiatry series, Psychiatry of Intellectual Disability across Cultures explores the health, support structures, and societal attitudes towards people with intellectual disabilities throughout the world. Written by international experts of intellectual disability and mental health, this comprehensive textbook covers broad topics such as anthropology, mental health, physical health, research, and sexuality. It also comprises chapters dedicated to specific geographic regions, such as Africa, America, Australasia, Europe, India, the Middle East, and the United Kingdom and Ireland.
Disability, Mothers, and Organization by Melanie Panitch Pdf
This book examines how and why mothers with disabled children became activists. Leading campaigns to close institutions and secure human rights, these women learned to mother as activists, struggling in their homes and communities against the debilitating and demoralizing effects of exclusion. Activist mothers recognized the importance of becoming advocates for change beyond their own families and contributed to building an organization to place their issues on a more public scale. In highlighting this under-examined movement, this book contributes to the scholarship on Disability Studies, Women's Students, Sociology, and Social Movement Studies.
Civil Disabilities by Nancy J. Hirschmann,Beth Linker Pdf
An estimated one billion people around the globe live with a disability; this number grows exponentially when family members, friends, and care providers are included. Various countries and international organizations have attempted to guard against discrimination and secure basic human rights for those whose lives are affected by disability. Yet despite such attempts many disabled persons in the United States and throughout the world still face exclusion from full citizenship and membership in their respective societies. They are regularly denied employment, housing, health care, access to buildings, and the right to move freely in public spaces. At base, such discrimination reflects a tacit yet pervasive assumption that disabled persons do not belong in society. Civil Disabilities challenges such norms and practices, urging a reconceptualization of disability and citizenship to secure a rightful place for disabled persons in society. Essays from leading scholars in a diversity of fields offer critical perspectives on current citizenship studies, which still largely assume an ableist world. Placing historians in conversation with anthropologists, sociologists with literary critics, and musicologists with political scientists, this interdisciplinary volume presents a compelling case for reimagining citizenship that is more consistent, inclusive, and just, in both theory and practice. By placing disability front and center in academic and civic discourse, Civil Disabilities tests the very notion of citizenship and transforms our understanding of disability and belonging. Contributors: Emily Abel, Douglas C. Baynton, Susan Burch, Allison C. Carey, Faye Ginsburg, Nancy J. Hirschmann, Hannah Joyner, Catherine Kudlick, Beth Linker, Alex Lubet, Rayna Rapp, Susan Schweik, Tobin Siebers, Lorella Terzi.
How communication technologies meant to empower people with speech disorders—to give voice to the voiceless—are still subject to disempowering structural inequalities. Mobile technologies are often hailed as a way to “give voice to the voiceless.” Behind the praise, though, are beliefs about technology as a gateway to opportunity and voice as a metaphor for agency and self-representation. In Giving Voice, Meryl Alper explores these assumptions by looking closely at one such case—the use of the Apple iPad and mobile app Proloquo2Go, which converts icons and text into synthetic speech, by children with disabilities (including autism and cerebral palsy) and their families. She finds that despite claims to empowerment, the hardware and software are still subject to disempowering structural inequalities. Views of technology as a great equalizer, she illustrates, rarely account for all the ways that culture, law, policy, and even technology itself can reinforce disparity, particularly for those with disabilities. Alper explores, among other things, alternative understandings of voice, the surprising sociotechnical importance of the iPad case, and convergences and divergences in the lives of parents across class. She shows that working-class and low-income parents understand the app and other communication technologies differently from upper- and middle-class parents, and that the institutional ecosystem reflects a bias toward those more privileged. Handing someone a talking tablet computer does not in itself give that person a voice. Alper finds that the ability to mobilize social, economic, and cultural capital shapes the extent to which individuals can not only speak but be heard.
Intellectual Disability and Being Human by Chrissie Rogers Pdf
Intellectual disability is often overlooked within mainstream disability studies, and theories developed about disability and physical impairment may not always be appropriate when thinking about intellectual (or learning) disability. This pioneering book, in considering intellectually disabled people's lives, sets out a care ethics model of disability that outlines the emotional caring sphere, where love and care are psycho-socially questioned, the practical caring sphere, where day-to-day care is carried out, and the socio-political caring sphere, where social intolerance and aversion to difficult differences are addressed. It does so by discussing issue-based everyday life, such as family, relationships, media representations and education, in an evocative and creative manner. This book draws from an understanding of how intellectual disability is represented in all forms of media, a feminist ethics of care, and capabilities, as well as other theories, to provide a critique and alternative to the social model of disability as well as illuminate care-less spaces that inhabit all the caring spheres. The first two chapters of the book provide an overview of intellectual disability, the debates surrounding disability, and outline the model. Having begun to develop an innovative theoretical framework for understanding intellectual disability and being human, the book then moves onto empirical and narrative driven issue-based chapters. The following chapters build on the emergent framework and discuss the application of particular theories in three different substantive areas: education, mothering and sexual politics. The concluding remarks draw together the common themes across the applied chapters and link them to the overarching theoretical framework. An important read for all those studying and researching intellectual or learning disability, this book will be an essential resource in sociology, philosophy, criminology (law), social work, education and nursing in particular.
Disability and the Sociological Imagination by Allison C. Carey Pdf
Disability and the Sociological Imagination provides an expertly developed and accessible overview of the relatively new and growing area of sociology of disability. Written by one of the field’s leading researchers, it discusses the major theorists, research methods, and bodies of knowledge that represents sociology’s key contributions to our understanding of disability. Unlike other available texts, it examines the ways in which major social structures contribute to the production and reproduction of disability, and examines how race, class, gender, and sexual orientation shape the disability experience
