Surviving And Thriving With An Invisible Chronic Illness

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Surviving and Thriving with an Invisible Chronic Illness

Ilana Jacqueline
Surviving and Thriving with an Invisible Chronic Illness Book PDF

Author : Ilana Jacqueline
Publisher : New Harbinger Publications
Page : 210 pages
File Size : 53,5 Mb
Release : 2018-03
Category : Health & Fitness
ISBN : 9781626256002

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Surviving and Thriving with an Invisible Chronic Illness by Ilana Jacqueline Pdf

“An important antidote to the dogmatic ‘kale and vitamins’ tone of most ‘self-help’ literature.” —Alexa Tsoulis-Reay, senior writer, New York magazine Popular blogger Ilana Jacqueline offers smart and savvy advice, humor, and practical tips for living with an invisible chronic illness. Do you live with a chronic, debilitating, yet invisible condition? You may feel isolated, out of step, judged, lonely, or misunderstood—and that’s on top of dealing with the symptoms of your actual illness. Take heart. You are not alone, although sometimes it can feel that way. Written by a blogger who suffers from an invisible chronic illness, Surviving and Thriving with an Invisible Chronic Illness offers peer-to-peer support to help you stay sane, be your own advocate, and get back to living your life. This compelling guide is written for anyone suffering with an illness no one can see—such as postural orthostatic tachycardia syndrome (POTS), chronic fatigue syndrome (CFS), fibromyalgia, multiple chemical sensitivity (MCS), Lyme disease, lupus, dysautonomia, or even multiple sclerosis (MP). This book will tell you everything you need to know about living with a complicated, invisible condition—from how to balance sex, dating, and relationships to handling work and school with unavoidable absences. You’ll also learn to navigate judg-y or skeptical relatives and strangers and—most importantly—manage your medical care. Suffering from a chronic illness doesn’t mean you can’t live an active, engaged life. This book will show you how.

Sick and Tired of Feeling Sick and Tired: Living with Invisible Chronic Illness (New Edition)

Paul J. Donoghue,Mary E. Siegel
Sick and Tired of Feeling Sick and Tired Living with Invisible Chronic Illness New Edition Book PDF

Author : Paul J. Donoghue,Mary E. Siegel
Publisher : W. W. Norton & Company
Page : 304 pages
File Size : 47,9 Mb
Release : 2000-09-17
Category : Health & Fitness
ISBN : 9780393342833

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Sick and Tired of Feeling Sick and Tired: Living with Invisible Chronic Illness (New Edition) by Paul J. Donoghue,Mary E. Siegel Pdf

Unlike a leg in a cast, invisible chronic illness (ICI) has no observable symptoms. Consequently, people who suffer from chronic fatigue, chronic pain, and many other miseries often endure not only the ailment but dismissive and negative reactions from others. Since its first publication, Sick and Tired of Feeling Sick and Tired has offered hope and coping strategies to thousands of people who suffer from ICI. Paul Donoghue and Mary Siegel teach their readers how to rethink how they themselves view their illness and how to communicate with loved ones and doctors in a way that meets their needs. The authors' understanding makes readers feel they have been heard for the first time. For this edition, the authors include a new introduction drawing on the experiences of the many people who have responded to the book and to their lectures and television appearances. They expand the definition of ICI to include other ailments such as depression, addiction, and obsessive-compulsive disorders. They bring the resource material, including Web sites, up to the present, and they offer fresh insights on four topics that often emerge: guilt, how ICI affects the family, meaningfulness, and defining acceptance.

Surviving and Thriving with an Invisible Chronic Illness

Ilana Jacqueline
Surviving and Thriving with an Invisible Chronic Illness Book PDF

Author : Ilana Jacqueline
Publisher : Unknown
Page : 0 pages
File Size : 52,9 Mb
Release : 2018-09-20
Category : Health & Fitness
ISBN : 103876419X

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Surviving and Thriving with an Invisible Chronic Illness by Ilana Jacqueline Pdf

In this much-needed guide, popular blogger Ilana Jacqueline writes poignantly about her experience living with two debilitating, yet invisible autoimmune diseases, and offers sound advice and practical tips for living with a chronic illness or disability that others can't see. Readers will learn to deal with doctors who don't understand, are of little or no help, or outright dismiss their condition. They will also learn how to navigate friendships, family, relationships, work, and school; overcome body image and self-esteem issues; become their own best advocate; create a support system; and live an engaged and values-driven life.

You Don't Look Sick!

Joy H. Selak,Steven S. Overman, MD
You Don t Look Sick Book PDF

Author : Joy H. Selak,Steven S. Overman, MD
Publisher : Demos Medical Publishing
Page : 199 pages
File Size : 52,7 Mb
Release : 2012-12-17
Category : Biography & Autobiography
ISBN : 9781936303427

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You Don't Look Sick! by Joy H. Selak,Steven S. Overman, MD Pdf

Chronicles one person's true life story of illness and her physicians compassionate commentary as they journey through the four stages of chronic illness; Getting Sick, Being Sick, Grief and Acceptance and Living Well. Designed for people at all stages of the chronic illness journey, this book is also illuminating for caregivers and loved ones.

How to Be Sick

Toni Bernhard
How to Be Sick Book PDF

Author : Toni Bernhard
Publisher : Simon and Schuster
Page : 217 pages
File Size : 44,5 Mb
Release : 2010-09-14
Category : Health & Fitness
ISBN : 9780861716265

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How to Be Sick by Toni Bernhard Pdf

This life-affirming, instructive and thoroughly inspiring book is a must-read for anyone who is--or who might one day be--sick. And it can also be the perfect gift of guidance, encouragement, and uplifting inspiration to family, friends, and loved ones struggling with the many terrifying or disheartening life changes that come so close on the heels of a diagnosis of a chronic condition or even life-threatening illness. The author--who became ill while a university law professor in the prime of her career--tells the reader how she got sick and, to her and her partner's bewilderment, stayed that way. Toni had been a longtime meditator, going on long meditation retreats and spending many hours rigorously practicing, but soon discovered that she simply could no longer engage in those difficult and taxing forms. She had to learn ways to make "being sick" the heart of her spiritual practice--and through truly learning how to be sick, she learned how, even with many physical and energetic limitations, to live a life of equanimity, compassion, and joy. And whether we ourselves are sick now or not, we can learn these vital arts of living well from "How to Be Sick."

Life Disrupted

Laurie Edwards
Life Disrupted Book PDF

Author : Laurie Edwards
Publisher : Bloomsbury Publishing USA
Page : 289 pages
File Size : 42,7 Mb
Release : 2011-02-01
Category : Family & Relationships
ISBN : 9780802779731

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Life Disrupted by Laurie Edwards Pdf

Twenty-seven-year-old Laurie Edwards is one of 125 million Americans who have a chronic illness, in her case a rare genetic respiratory disease. Because of medical advances in the treatment of serious childhood diseases, 600,000 chronically ill teens enter adulthood every year who decades ago would not have survived-they and people diagnosed in adulthood face the same challenges of college, career, and starting a family as others in their twenties and thirties, but with the added circumstance of having chronic illness. Life Disrupted is a personal and unflinching guide to living well with a chronic illness: managing your own health care without letting it take over your life, dealing with difficult doctors and frequent hospitalizations, having a productive and satisfying career that accommodates your health needs, and nurturing friendships and a loving, committed relationship regardless of recurring health problems. Laurie Edwards also addresses the particular needs of people who have more than one chronic illness or who are among the twenty-five million Americans with a rare disorder. She shares her own story and the experiences of others with chronic illness, as well as advice from life coaches, employment specialists, and health professionals. Reading Life Disrupted is like having a best friend and mentor who truly does know what you're going through.

What Doesn't Kill You

Tessa Miller
What Doesn t Kill You Book PDF

Author : Tessa Miller
Publisher : Henry Holt and Company
Page : 240 pages
File Size : 55,9 Mb
Release : 2021-02-02
Category : Biography & Autobiography
ISBN : 9781250751461

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What Doesn't Kill You by Tessa Miller Pdf

"Should be read by anyone with a body. . . . Relentlessly researched and undeniably smart." —The New York Times Named one of BuzzFeed's "Best Books of 2021" What Doesn't Kill You is the riveting account of a young journalist’s awakening to chronic illness, weaving together personal story and reporting to shed light on living with an ailment forever. Tessa Miller was an ambitious twentysomething writer in New York City when, on a random fall day, her stomach began to seize up. At first, she toughed it out through searing pain, taking sick days from work, unable to leave the bathroom or her bed. But when it became undeniable that something was seriously wrong, Miller gave in to family pressure and went to the hospital—beginning a years-long nightmare of procedures, misdiagnoses, and life-threatening infections. Once she was finally correctly diagnosed with Crohn’s disease, Miller faced another battle: accepting that she will never get better. Today, an astonishing three in five adults in the United States suffer from a chronic disease—a percentage expected to rise post-Covid. Whether the illness is arthritis, asthma, Crohn's, diabetes, endometriosis, multiple sclerosis, ulcerative colitis, or any other incurable illness, and whether the sufferer is a colleague, a loved one, or you, these diseases have an impact on just about every one of us. Yet there remains an air of shame and isolation about the topic of chronic sickness. Millions must endure these disorders not only physically but also emotionally, balancing the stress of relationships and work amid the ever-present threat of health complications. Miller segues seamlessly from her dramatic personal experiences into a frank look at the cultural realities (medical, occupational, social) inherent in receiving a lifetime diagnosis. She offers hard-earned wisdom, solidarity, and an ultimately surprising promise of joy for those trying to make sense of it all.

How to Live Well with Chronic Pain and Illness

Toni Bernhard
How to Live Well with Chronic Pain and Illness Book PDF

Author : Toni Bernhard
Publisher : Simon and Schuster
Page : 352 pages
File Size : 46,6 Mb
Release : 2015-10-06
Category : Health & Fitness
ISBN : 9781614292630

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How to Live Well with Chronic Pain and Illness by Toni Bernhard Pdf

Comfort, understanding, and advice for those who are suffering--and those who care for them. Chronic illness creates many challenges, from career crises and relationship issues to struggles with self-blame, personal identity, and isolation. Beloved author Toni Bernhard addresses these challenges and many more, using practical examples to illustrate how mindfulness, equanimity, and compassion can help readers make peace with a life turned upside down. In her characteristic conversational style, Bernhard shows how to cope and make the most of life despite the challenges of chronic illness. Benefit from: • Mindfulness exercises to mitigate physical and emotional pain • Concrete advice for negotiating the everyday hurdles of medical appointments, household chores, and social obligations • Tools for navigating the strains illness can place on relationships Several chapters are directed toward family and friends of the chronically ill, helping them to understand what their loved one is going through and how they can help. Humorous and empathetic, Bernhard shares her own struggles and setbacks with unflinching honesty, offering invaluable support in the search to find peace and well-being.

Finding Joy with an Invisible Chronic Illness

Christopher Martin
Finding Joy with an Invisible Chronic Illness Book PDF

Author : Christopher Martin
Publisher : Martin Family Bookstore
Page : 200 pages
File Size : 50,8 Mb
Release : 2021-11-14
Category : Young Adult Nonfiction
ISBN : 9780990826965

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Finding Joy with an Invisible Chronic Illness by Christopher Martin Pdf

"Christopher does a brilliant job of explaining the tools for managing the social, spiritual, mental, and physical aspects of chronic illness. I loved that the book contains straightforward tips for patients, their caregivers, and loved ones. Every chapter includes useful advice." —Edith Wairimu, 5-Star Readers' Favorite Book Review Live your best life — even when your physical health crumbles. Finding Joy presents a comprehensive, practical guide for living your best life with chronic illness. This psychology self-help book integrates personal and professional insights to give you tools for handling various aspects of living with a chronic illness. There is also a chapter specifically for the loved ones and caregivers of the chronically ill. While this book is designed for anyone with a chronic illness, the spiritual content early in the book suggests the value of sticking to your faith and offers several Bible references. Ultimately, Finding Joy is an A-to-Z guide that critiques the literature and empowers the reader with: Positive psychology techniques. These range from self-compassion, positive reappraisal, positive self-talk, and pacing to positive thoughts, emotions, and behaviors such as optimism, humor, and volunteer work. Stress-reduction methods. These include tools such as mindfulness, breathing exercises, simplification, and (therapeutic) journaling. Proven therapies. Examples include cognitive behavior therapy (CBT), dialectical behavior therapy (DBT), and acceptance and commitment therapy (ACT). Effective communication strategies and their impact on relationships and even the ability to access quality healthcare. Numerous tips to both access and optimize your your experience with high quality healthcare. Important considerations for loved ones of the chronically ill, so they too can know how to best support their loved one and take care of themselves in the process. Lastly, consider using the workbook by Oak Tree Reading on Amazon to enhance your reading experience. This could be useful for solo readers or support groups. “This book offers great value for anyone with chronic illness as it contains clear, practical, and actionable insights and steps that can be naturally implemented into daily life. An engaging, easy, and helpful read. Highly recommended.” —Alla Bogdanova, MSc, MIM, co-founder and past president of the International Empty Nose Syndrome Association "Having known Chris for decades, I am beyond fortunate to have been privy to such a work that serves others by providing a timely message, a powerhouse of practical strategies, and invaluable guidance.” —Mark Montgomery, PhD, chief diversity officer, SUNY Polytechnic Institute, and founder and chair of Joseph’s Experience, Inc., an organization that assists children impacted by cancer and/or leukemia “I have had various invisible chronic illnesses for nearly forty years, but I was still able to find suggestions that will help me. So many of the things I have gone through are reflected in this book. I highly recommend this comprehensive book.” —Sue on Amazon.ca

Living Well with Chronic Illness

Institute of Medicine,Board on Population Health and Public Health Practice,Committee on Living Well with Chronic Disease: Public Health Action to Reduce Disability and Improve Functioning and Quality of Life
Living Well with Chronic Illness Book PDF

Author : Institute of Medicine,Board on Population Health and Public Health Practice,Committee on Living Well with Chronic Disease: Public Health Action to Reduce Disability and Improve Functioning and Quality of Life
Publisher : National Academies Press
Page : 350 pages
File Size : 53,8 Mb
Release : 2011-06-30
Category : Medical
ISBN : 9780309221276

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Living Well with Chronic Illness by Institute of Medicine,Board on Population Health and Public Health Practice,Committee on Living Well with Chronic Disease: Public Health Action to Reduce Disability and Improve Functioning and Quality of Life Pdf

In the United States, chronic diseases currently account for 70 percent of all deaths, and close to 48 million Americans report a disability related to a chronic condition. Today, about one in four Americans have multiple diseases and the prevalence and burden of chronic disease in the elderly and racial/ethnic minorities are notably disproportionate. Chronic disease has now emerged as a major public health problem and it threatens not only population health, but our social and economic welfare. Living Well with Chronic Disease identifies the population-based public health actions that can help reduce disability and improve functioning and quality of life among individuals who are at risk of developing a chronic disease and those with one or more diseases. The book recommends that all major federally funded programmatic and research initiatives in health include an evaluation on health-related quality of life and functional status. Also, the book recommends increasing support for implementation research on how to disseminate effective longterm lifestyle interventions in community-based settings that improve living well with chronic disease. Living Well with Chronic Disease uses three frameworks and considers diseases such as heart disease and stroke, diabetes, depression, and respiratory problems. The book's recommendations will inform policy makers concerned with health reform in public- and private-sectors and also managers of communitybased and public-health intervention programs, private and public research funders, and patients living with one or more chronic conditions.

From Survive to Thrive

Margaret S. Chisolm
From Survive to Thrive Book PDF

Author : Margaret S. Chisolm
Publisher : JHU Press
Page : 165 pages
File Size : 51,5 Mb
Release : 2021-10-26
Category : Health & Fitness
ISBN : 9781421441580

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From Survive to Thrive by Margaret S. Chisolm Pdf

"The author details a plan for helping individuals who have a mental health issue flourish in their lives"--

The Caregivers

Nell Lake
The Caregivers Book PDF

Author : Nell Lake
Publisher : Simon and Schuster
Page : 320 pages
File Size : 52,9 Mb
Release : 2014-02-11
Category : Social Science
ISBN : 9781451674163

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The Caregivers by Nell Lake Pdf

A moving, intimate, and compassionate book that chronicles the experiences of a group of long-term caregivers—spouses, parents, and friends of the elderly and ill—illuminating critical issues of old age, end-of-life care, medical reform, and social policy—and “providing comfort in the time-honored form of shared experience” (The Minneapolis Star-Tribune). In 2010, journalist Nell Lake began sitting in on the weekly meetings of a local hospital’s caregivers support group. Soon members invited her into their lives. For two years, she brought empathy, insight, and an eye for detail to understanding Penny, a fifty-year-old botanist caring for her aging mother; Daniel, a survivor of Nazi Germany who tends his ailing wife; William, whose wife suffers from Alzheimer’s; and others with whom all caregivers will identify. Witnessing acts of devotion and frustration, lessons in patience and in letting go, Lake illuminates the intimate exchanges of caregiving and care-receiving and considers important and timely social issues: How can we care for the aging, ill, and dying with skill and compassion, even as the costs and labors of care increase? How might the medical profession take into account the needs of caregivers as well as patients? In The Caregivers Nell Lake shares a thoughtful and tenderly reported depiction of the real-life predicaments that evoke these crucial questions. With more and more people spending their late years ill and frail, and 43 million Americans already caring for family members over age fifty, this is an important chronicle of a widely shared experience and a public concern. “The Caregivers is as elegantly constructed as a novel, but more than that, Lake writes about these people with such warmth and vividness that they feel as memorable as our favorite fictional characters. It is a beautifully written account” (The Boston Globe).

Finding a New Normal

Suzan Linn Jackson
Finding a New Normal Book PDF

Author : Suzan Linn Jackson
Publisher : Unknown
Page : 182 pages
File Size : 52,8 Mb
Release : 2019-12-14
Category : Chronic diseases
ISBN : 1734299010

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Finding a New Normal by Suzan Linn Jackson Pdf

This guide provides inspiration, advice on emotional coping, and support on living your best life with chronic illness from someone who's been there. The emphasis in this book is on LIVING your life, not just enduring it.

But You Look Good

Wayne Connell,Sherri Connell
But You Look Good Book PDF

Author : Wayne Connell,Sherri Connell
Publisher : Invisible Disabilities Association
Page : 84 pages
File Size : 43,7 Mb
Release : 2014-09-14
Category : Chronic diseases
ISBN : 0692258450

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But You Look Good by Wayne Connell,Sherri Connell Pdf

Do your loved ones have a hard time understanding your chronic illness or pain, because to them you LOOK fine? But You LOOK Good is a book that gives those living with chronic illness and pain a voice about how they feel, what they need and how others can be an encouragement to them. It is a convenient, informative way to educate loved ones about what people living with ongoing illness and pain struggle with, fight for and need from their friends and family. It is easy to read, gives practical ideas on how loved ones can be supportive and is not too long for readers to lose interest! But You LOOK Good gets to the heart of why our friends and family have difficulty with understanding ongoing illness and pain. It serves as a tool to help explain to loved ones how extreme fatigue, pain, dizziness, cognitive impairments and other symptoms can be limiting, even though the person may not look sick or in pain. Moreover, it gives them simple, pragmatic ways to truly be an encouragement, what to say, what not to say and how to help. Often loved ones are enlightened as to why their well-meaning advice is not always well-received. It is cherished by both those living with illness or injury, as well as those who love them!

Trauma: The Invisible Epidemic

Paul Conti, MD
Trauma The Invisible Epidemic Book PDF

Author : Paul Conti, MD
Publisher : Sounds True
Page : 244 pages
File Size : 42,7 Mb
Release : 2021-10-05
Category : Psychology
ISBN : 9781683647362

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Trauma: The Invisible Epidemic by Paul Conti, MD Pdf

A Journey Toward Understanding, Active Treatment, and Societal Prevention of Trauma Imagine, if you will, a disease—one that has only subtle outward symptoms but can hijack your entire body without notice, one that transfers easily between parent and child, one that can last a lifetime if untreated. According to Dr. Paul Conti, this is exactly how society should conceptualize trauma: as an out-of-control epidemic with a potentially fatal prognosis. In Trauma: The Invisible Epidemic, Dr. Conti examines the most recent research, clinical best practices, and dozens of real-life stories to present a deeper and more urgent view of trauma. Not only does Dr. Conti explain how trauma affects the body and mind, he also demonstrates that trauma is transmissible among close family and friends, as well as across generations and within vast demographic groups. With all this in mind, Trauma: The Invisible Epidemic proposes a course of treatment for the seemingly untreatable. Here, Dr. Conti traces a step-by-step series of concrete changes that we can make both as individuals and as a society to alleviate trauma’s effects and prevent further traumatization in the future. You will discover: The different post-trauma syndromes, how they are classified, and their common symptomsAn examination of how for-profit health care systems can inhibit diagnosis and treatment of traumaHow social crises and political turmoil encourage the spread of group traumaMethods for confronting and managing your fears as they arise in the momentHow trauma disrupts mental processes such as memory, emotional regulation, and logical decision-makingThe argument for a renewed humanist social commitment to mental health and wellness It’s only when we understand how a disease spreads and is sustained that we are able to create its ultimate cure. With Trauma: The Invisible Epidemic, Dr. Conti reveals that what we once considered a lifelong, unbeatable mental illness is both treatable and preventable.