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'The AIDS Generation' documents the lived experiences of HIV-positive gay men who are presently middle aged, long-term survivors of HIV/AIDS. Through the use of ethnography and life history interviews, the book delineates the resiliencies that these fifteen long-term survivors have demonstrated in coping with a life-threatening disease throughout the course of their adult lives.
For young gay men who came of age in the United States in the 1980s, the HIV/AIDS epidemic was a formative experience in fear, hardship, and loss. Those who were diagnosed before 1996 suffered an exceptionally high rate of mortality, and the survivors -- both the infected individuals and those close to them -- today constitute a "bravest generation" in American history. The AIDS Generation: Stories of Survival and Resilience examines the strategies for survival and coping employed by these HIV-positive gay men, who together constitute the first generation of long-term survivors of the disease. Through interviews conducted by the author, it narrates the stories of gay men who have survived since the early days of the epidemic; documents and delineates the strategies and behaviors enacted by men of this generation to survive it; and examines the extent to which these approaches to survival inform and are informed by the broad body of literature on resilience and health. The stories and strategies detailed here, all used to combat the profound physical, emotional, and social challenges faced by those in the crosshairs of the AIDS epidemic, provide a gateway for understanding how individuals cope with chronic and life-threatening diseases. Halkitis takes readers on a journey of first-hand data collection (the interviews themselves), the popular culture representations of these phenomena, and his own experiences as one of the men of the AIDS generation. This riveting account will be of interest to health practitioners and historians throughout the clinical and social sciences -- or to anyone with an interest in this important chapter in social history. Cover photo courtesy of Fire Island Pines Historical Preservation Society.
Christopher Zyda confronts the long-buried and painful memories of his harrowing fifteen-year journey in The Storm: One Voice from the AIDS Generation, a heart-wrenching love story and coming-of-age tale during the early years of the AIDS crisis in Los Angeles. It all begins in the spring of 1983, when Chris, a twenty-one-year-old UCLA English Literature major and aspiring writer, risks ostracism when he comes out of the closet to his fraternity brothers just as the AIDS pandemic is beginning to explode in gay communities across the United States. Soon afterward, Chris meets and falls in love with Stephen, a graduate of Yale University and Law School, and the two of them build a life together as their friends start to fall sick and die from the spreading storm of AIDS. Stephen begins showing symptoms of AIDS in early 1986, and Chris faces a difficult choice as he is certain that he, too, eventually will be stricken by the disease. He abandons his writing career and attends the UCLA business school so that he can earn enough money to pay for healthcare during Stephen's illness. The Storm is filled with heart, optimism, and love, interspersed with Los Angeles history, gay and lesbian history, AIDS history, and the backdrop of the 1980s and 1990s. It is an unflinching and, at times, raw memoir of perseverance, integrity, forgiveness, the power of love, spiritual growth, Carpe Diem, dreams, and, most of all: survival and ultimate triumph.
Between Certain Death and a Possible Future by Mattilda Bernstein Sycamore Pdf
Every queer person lives with the trauma of AIDS, and this plays out intergenerationally. Usually we hear about two generations—the first, coming of age in the era of gay liberation, and then watching entire circles of friends die of a mysterious illness as the government did nothing to intervene. And now we hear about younger people growing up with effective treatment and prevention available, unable to comprehend the magnitude of the loss. But there is another generation between these two, one that came of age in the midst of the epidemic with the belief that desire intrinsically led to death, and internalized this trauma as part of becoming queer. Between Certain Death and a Possible Future: Queer Writing on Growing up with the AIDS Crisis offers crucial stories from this missing generation in AIDS literature and cultural politics. This wide-ranging collection includes 36 personal essays on the ongoing and persistent impact of the HIV/AIDS crisis in queer lives. Here you will find an expansive range of perspectives on a specific generational story—essays that explore and explode conventional wisdom, while also providing a necessary bridge between experiences. These essays respond, with eloquence and incisiveness, to the question: How do we reckon with the trauma that continues to this day, and imagine a way out?
Chanda’s mother is not herself, her younger sister is acting out, and her best friend needs help. A powerful story set amid the African HIV/AIDS pandemic. In this sensitive, swiftly paced story, readers will find echoes of To Kill a Mockingbird as Chanda, a 16-year-old, astonishingly perceptive girl living in the small city of Bonang in Africa, must confront the undercurrents of shame and stigma associated with HIV/AIDS. Through his artful style and dramatic storytelling, Allan Stratton captures the enduring strength of loyalty, the profound impact of loss, and a fearlessness that is powered by the heart. Above all, it is a story about living with truth. Proceeds from the sale of this book will be used to support organizations working to better the lives of Africans living with HIV/AIDS.
Viewing contemporary history from the perspective of the AIDS crisis, Jennifer Brier provides rich, new understandings of the United States' complex social and political trends in the post-1960s era. Brier describes how AIDS workers--in groups as disparate as the gay and lesbian press, AIDS service organizations, private philanthropies, and the State Department--influenced American politics, especially on issues such as gay and lesbian rights, reproductive health, racial justice, and health care policy, even in the face of the expansion of the New Right. Infectious Ideas places recent social, cultural, and political events in a new light, making an important contribution to our understanding of the United States at the end of the twentieth century.
Winner of the 2022 Lambda Literary LGBTQ Nonfiction Award and the 2022 NLGJA Excellence in Book Writing Award. Finalist for the PEN/John Kenneth Galbriath Award for Nonfiction, the Gotham Book Prize, and the ALA Stonewall Israel Fishman Nonfiction Award. A 2021 New York Times Book Review Notable Book and a New York Times Book Review Editors' Choice. Longlisted for the 2021 Brooklyn Public Library Literary Prize. One of NPR, New York, and The Guardian's Best Books of 2021, one of Buzzfeed's Best LGBTQ+ Books of 2021, one of Electric Literature's Favorite Nonfiction Books of 2021, one of NBC's 10 Most Notable LGBTQ Books of 2021, and one of Gay Times' Best LGBTQ Books of 2021. "This is not reverent, definitive history. This is a tactician’s bible." --Parul Sehgal, The New York Times Twenty years in the making, Sarah Schulman's Let the Record Show is the most comprehensive political history ever assembled of ACT UP and American AIDS activism In just six years, ACT UP, New York, a broad and unlikely coalition of activists from all races, genders, sexualities, and backgrounds, changed the world. Armed with rancor, desperation, intelligence, and creativity, it took on the AIDS crisis with an indefatigable, ingenious, and multifaceted attack on the corporations, institutions, governments, and individuals who stood in the way of AIDS treatment for all. They stormed the FDA and NIH in Washington, DC, and started needle exchange programs in New York; they took over Grand Central Terminal and fought to change the legal definition of AIDS to include women; they transformed the American insurance industry, weaponized art and advertising to push their agenda, and battled—and beat—The New York Times, the Catholic Church, and the pharmaceutical industry. Their activism, in its complex and intersectional power, transformed the lives of people with AIDS and the bigoted society that had abandoned them. Based on more than two hundred interviews with ACT UP members and rich with lessons for today’s activists, Let the Record Show is a revelatory exploration—and long-overdue reassessment—of the coalition’s inner workings, conflicts, achievements, and ultimate fracture. Schulman, one of the most revered queer writers and thinkers of her generation, explores the how and the why, examining, with her characteristic rigor and bite, how a group of desperate outcasts changed America forever, and in the process created a livable future for generations of people across the world.
In 1981, the year when AIDS came to international attention, Randy Shilts was employed by the San Francisco Chronicle as the first openly gay journalist dealing with gay issues. He quickly devoted himself to reporting on the developing epidemic, trying to understand the cultural, medical and political impact of the disease on the gay community and United States society as a whole. Extensively researched, weaving together personal stories with political and social reporting, And the Band Played On is a masterpiece of investigative reporting that led to Randy Shilts being described as "the pre-eminent chronicler of gay life" by The New York Times. Shilts exposed why AIDS was allowed to spread - while the medical and political authorities ignored (and even denied) the threat. It was awarded the Stonewall Book Award, became an international bestseller translated into 7 languages, and was made into a major movie in 1993 starring Richard Gere and Sir Ian McKellen. And the Band Played On is one of the great works of contemporary journalism, and provides the foundation for the continuing debate about the greatest medical epidemic faced in our time.
One in six adults in sub-Saharan Africa will die in their prime of AIDS. It is a stunning cataclysm, plunging life expectancy to pre-modern levels and orphaning millions of children. Yet political trauma does not grip Africa. People living with AIDS are not rioting in the streets or overthrowing governments. In fact, democratic governance is spreading. Contrary to fearful predictions, the social fabric is not being ripped apart by bands of unsocialized orphan children. AIDS and Power explains why social and political life in Africa goes on in a remarkably normal way, and how political leaders have successfully managed the AIDS epidemic so as to overcome any threats to their power. Partly because of pervasive denial, AIDS is not a political priority for electorates, and therefore not for democratic leaders either. AIDS activists have not directly challenged the political order, instead using international networks to promote a rights-based approach to tackling the epidemic. African political systems have proven resilient in the face of AIDS's stresses, and rulers have learned to co-opt international AIDS efforts to their own political ends. In contrast with these successes, African governments and international agencies have a sorry record of tackling the epidemic itself. AIDS and Power concludes without political incentives for HIV prevention, this failure will persist.
Although billions of dollars are being spent to find a cure for AIDS, and many drugs are now available for its treatment, millions of people worldwide continue to suffer and die from this disease. Unraveling AIDS is a timely and well-researched book that addresses a wide range of issues regarding the AIDS pandemic. Perhaps most important, the authors explore alternative therapies that appear to be safer, more effective, and less costly than the current generation of AIDS pharmaceuticals.
Living and Loving in the Age of AIDS by Derek Frost Pdf
This is the tale of a devastating pandemic, of lives cut painfully short; it's also a love letter. Derek, a distinguished designer and J, his husband, a pioneering entrepreneur and creator of both The Embassy Club, London’s answer to Studio 54, and iconic Heaven, Europe’s largest gay discotheque, met and fell in love more than 40 years ago. Their lives were high-octane, full of adventure, fun and fearless creativity. Suddenly their friends began to get sick and die – AIDS had arrived in their lives. When they got tested, J received what was then a death sentence: he was HIV Positive. While the onset of AIDS strengthened stigma and fear globally, they confronted their personal crisis with courage, humour and an indomitable resolve to survive. J’s battle lasted six long years. Turning to spiritual reflection, yoga, nature – and always to love – Derek describes a transformation of the spirit, how compassion and empathy rose phoenix-like from the flames of sickness and death. Out of this transformation also came Aids Ark, the charity they founded, which helped to save, amongst the world’s most marginalised people, more than 1,000 HIV Positive lives. This is a story of joy and triumph; about facing universal challenges; about the great rewards that come from giving back. Derek speaks for a generation who lived through a global health crisis that many in society refused even to acknowledge. His is a powerful story chronicling this extraordinary time.
“An eloquent testimonial to the power of love and the devastation of loss” from the National Book Award–winning author of Becoming a Man (Publishers Weekly). In 1974, Paul Monette met Roger Horwitz, the man with whom he would share more than a decade of his life. In 1986, Roger died of complications from AIDS. Borrowed Time traces this love story from start to tragic finish. At a time when the medical community was just beginning to understand this mysterious and virulent disease, Monette and others like him were coming to terms with unfathomable loss. This personal account of the early days of the AIDS crisis tells the story of love in the face of death. A finalist for the National Book Critics Circle Award, Borrowed Time was one of the first memoirs to deal candidly with AIDS and is as moving and relevant now as it was more than twenty-five years ago. Written with fierce honesty and heartwarming tenderness, this book is part love story, part testimony, and part requiem. This ebook features an illustrated biography of Paul Monette including rare images and never-before-seen documents from the Paul Monette papers of the UCLA Library Special Collections.
Author : Richard A. McKay Publisher : University of Chicago Press Page : 447 pages File Size : 50,7 Mb Release : 2017-11-22 Category : History ISBN : 9780226064000
Patient Zero and the Making of the AIDS Epidemic by Richard A. McKay Pdf
Now an award-winning documentary feature film The search for a “patient zero”—popularly understood to be the first person infected in an epidemic—has been key to media coverage of major infectious disease outbreaks for more than three decades. Yet the term itself did not exist before the emergence of the HIV/AIDS epidemic in the 1980s. How did this idea so swiftly come to exert such a strong grip on the scientific, media, and popular consciousness? In Patient Zero, Richard A. McKay interprets a wealth of archival sources and interviews to demonstrate how this seemingly new concept drew upon centuries-old ideas—and fears—about contagion and social disorder. McKay presents a carefully documented and sensitively written account of the life of Gaétan Dugas, a gay man whose skin cancer diagnosis in 1980 took on very different meanings as the HIV/AIDS epidemic developed—and who received widespread posthumous infamy when he was incorrectly identified as patient zero of the North American outbreak. McKay shows how investigators from the US Centers for Disease Control inadvertently created the term amid their early research into the emerging health crisis; how an ambitious journalist dramatically amplified the idea in his determination to reframe national debates about AIDS; and how many individuals grappled with the notion of patient zero—adopting, challenging and redirecting its powerful meanings—as they tried to make sense of and respond to the first fifteen years of an unfolding epidemic. With important insights for our interconnected age, Patient Zero untangles the complex process by which individuals and groups create meaning and allocate blame when faced with new disease threats. What McKay gives us here is myth-smashing revisionist history at its best.
In the decades since it was identified in 1981, HIV/AIDS has devastated African American communities. Members of those communities mobilized to fight the epidemic and its consequences from the beginning of the AIDS activist movement. They struggled not only to overcome the stigma and denial surrounding a "white gay disease" in Black America, but also to bring resources to struggling communities that were often dismissed as too "hard to reach." To Make the Wounded Whole offers the first history of African American AIDS activism in all of its depth and breadth. Dan Royles introduces a diverse constellation of activists, including medical professionals, Black gay intellectuals, church pastors, Nation of Islam leaders, recovering drug users, and Black feminists who pursued a wide array of grassroots approaches to slow the epidemic's spread and address its impacts. Through interlinked stories from Philadelphia and Atlanta to South Africa and back again, Royles documents the diverse, creative, and global work of African American activists in the decades-long battle against HIV/AIDS.
National Research Council,Division of Behavioral and Social Sciences and Education,Commission on Behavioral and Social Sciences and Education,Panel on Monitoring the Social Impact of the AIDS Epidemic
Author : National Research Council,Division of Behavioral and Social Sciences and Education,Commission on Behavioral and Social Sciences and Education,Panel on Monitoring the Social Impact of the AIDS Epidemic Publisher : National Academies Press Page : 337 pages File Size : 46,5 Mb Release : 1993-02-01 Category : Medical ISBN : 9780309046282
The Social Impact of AIDS in the United States by National Research Council,Division of Behavioral and Social Sciences and Education,Commission on Behavioral and Social Sciences and Education,Panel on Monitoring the Social Impact of the AIDS Epidemic Pdf
Europe's "Black Death" contributed to the rise of nation states, mercantile economies, and even the Reformation. Will the AIDS epidemic have similar dramatic effects on the social and political landscape of the twenty-first century? This readable volume looks at the impact of AIDS since its emergence and suggests its effects in the next decade, when a million or more Americans will likely die of the disease. The Social Impact of AIDS in the United States addresses some of the most sensitive and controversial issues in the public debate over AIDS. This landmark book explores how AIDS has affected fundamental policies and practices in our major institutions, examining: How America's major religious organizations have dealt with sometimes conflicting values: the imperative of care for the sick versus traditional views of homosexuality and drug use. Hotly debated public health measures, such as HIV antibody testing and screening, tracing of sexual contacts, and quarantine. The potential risk of HIV infection to and from health care workers. How AIDS activists have brought about major change in the way new drugs are brought to the marketplace. The impact of AIDS on community-based organizations, from volunteers caring for individuals to the highly political ACT-UP organization. Coping with HIV infection in prisons. Two case studies shed light on HIV and the family relationship. One reports on some efforts to gain legal recognition for nonmarital relationships, and the other examines foster care programs for newborns with the HIV virus. A case study of New York City details how selected institutions interact to give what may be a picture of AIDS in the future. This clear and comprehensive presentation will be of interest to anyone concerned about AIDS and its impact on the country: health professionals, sociologists, psychologists, advocates for at-risk populations, and interested individuals.
