The Challenges And Opportunities Of Advance Care Planning

Author : National Academies of Sciences Engineering and Medicine,Health and Medicine Division,Board on Health Sciences Policy,Board on Health Care Services,Roundtable on Quality Care for People with Serious Illness
Publisher : Unknown
Page : 128 pages
File Size : 47,7 Mb
Release : 2022-01-20
Category : Electronic
ISBN : 0309447372

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The Challenges and Opportunities of Advance Care Planning by National Academies of Sciences Engineering and Medicine,Health and Medicine Division,Board on Health Sciences Policy,Board on Health Care Services,Roundtable on Quality Care for People with Serious Illness Pdf

Advance Care Planning(ACP)has long been a staple of caring for people with serious illness. Over its history, it has been defined in different ways. Clinicians, researchers, patients, and the public have developed a variety of perspectives about the many aspects of ACP, ranging from the definition to the timing, goals, outcomes, and value of ACP. To better understand the challenges and opportunities for ACP, acknowledge and highlight divergent viewpoints, and examine what is empirically known and not known about ACP and its outcomes, the National Academies of Sciences, Engineering, and Medicine's Roundtable on Quality Care for People with Serious Illness hosted a virtual public workshop, Advance Care Planning: Challenges and Opportunities, on October 26 and November 2, 2020. The workshop explored the paradox of ACP, its evidence base, ways to think differently about ACP, and various approaches to making it more effective.This Proceedings of a Workshop summarizes the presentations and discussions from that workshop.

Author : Keri Thomas,Ben Lobo,Karen Detering
Publisher : Oxford University Press
Page : 337 pages
File Size : 43,6 Mb
Release : 2018
Category : MEDICAL
ISBN : 9780198802136

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Advance Care Planning in End of Life Care by Keri Thomas,Ben Lobo,Karen Detering Pdf

Advance Care Planning (ACP) is an essential part of end of life care in the UK and most developed countries. It enables more people to live well and die as they would choose, and has significant implications for the individual person, their family and carers, and our wider society. In the context of an ageing population and increasing possibilities for medical interventions, ACP is a particularly important aspect of quality care. Expanded and fully updated throughout, this new edition gives a comprehensive overview of ACP and explores a wide range of issues and practicalities in providing end of life care. Written by experts from around the world, the book takes a comprehensive look at the subject by exploring the wide range of issues and practicalities in providing ACP; framing the purpose, process, and outcomes of these plans; and providing an important update on national and international research, policy and practice. Chapters also discuss values, goals and priorities, and include detailed case examples to aid best practice. This book is an invaluable resource for all clinicians involved in the caring for people in their final stages of life. It is of particular value to GPs, palliative care specialists, geriatricians, social care teams, researchers and policy leads interested in improving end of life care.

Author : Institute of Medicine,Committee on Approaching Death: Addressing Key End-of-Life Issues
Publisher : National Academies Press
Page : 638 pages
File Size : 52,5 Mb
Release : 2015-03-19
Category : Medical
ISBN : 9780309303132

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Dying in America by Institute of Medicine,Committee on Approaching Death: Addressing Key End-of-Life Issues Pdf

For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.

Author : Leah Rogne, Ph.D.
Publisher : Springer Publishing Company
Page : 400 pages
File Size : 53,8 Mb
Release : 2013-07-29
Category : Social Science
ISBN : 9780826110220

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Advance Care Planning by Leah Rogne, Ph.D. Pdf

"This is a very substantive book that encompasses the various aspects of advance care planning, both prior to and after a diagnosis of a life-limiting disease. The realistic case studies help readers understand the complexities of decision-making by the individual and the family."--Doody's Medical Reviews While advance directives hold a great deal of promise for ensuring self-determination and quality of life near its end, the majority of Americans face life-threatening illness without having completed effective advance care planning.. This volume recounts the history of advance directives, chronicling the evolution of an approach that initially focused on completing forms, to one that now emphasizes more comprehensive strategies for facilitating conversations about end-of-life care and planning for dying and death. It provides helpful strategies for initiating and guiding discussions among providers, patients, and their loved ones, easing the burdens of uncertainty, and improving the efficacy of surrogate decision making near the end of life. Scholars and practitioners from a variety of disciplines provide a well-rounded view of the history and challenges of advance directives. Authors include palliative care physicians, nurses, social workers, grief counselors, educators, lawyers, psychologists, sociologists, and medical ethicists. The book shares successful strategies on how effective advance care planning can provide smoother transitions at the end of life and ensure better quality of living before death. It incorporates effective multidisciplinary, relationship-based models of advance care planning along with multidisciplinary perspectives to help caregiving professionals initiate conversations and disseminate relevant information to patients and their loved ones and advocates. Case studies illustrate the importance of, challenges with, and prospects for advance directives and advance care planning. The book addresses common barriers to advance care planning and offers ways to overcome them, as well as detailing public health, legal, and comprehensive community planning approaches to change how our current American society deals with dying, death, and end-of-life care. Key Features: Introduces a multidisciplinary, pragmatic approach to advance care planning Addresses strategies to reform advance care planning Presents case studies illustrating the importance, benefits, and challenges of advance directives Features successful initiatives in advance care planning and new directions that shift community practice related to dying, death, and end-of-life care. Includes the contributions of physicians, grief counselors, medical ethicists, social workers, psychologists, medical ethicists, lawyers, nurses, educators, and others

Author : Karen Joy Vander Laan
Publisher : Unknown
Page : 462 pages
File Size : 50,5 Mb
Release : 2007
Category : Advance directives (Medical care)
ISBN : MSU:31293028459901

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Deciding to Engage in Advance Care Planning by Karen Joy Vander Laan Pdf

Author : Amy S. Kelley,Diane E. Meier
Publisher : Springer
Page : 240 pages
File Size : 46,6 Mb
Release : 2014-09-01
Category : Medical
ISBN : 9781493904075

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Meeting the Needs of Older Adults with Serious Illness by Amy S. Kelley,Diane E. Meier Pdf

Meeting the Needs of Older Adults with Serious Illness: Challenges and Opportunities in the Age of Health Care Reform provides an introduction to the principles of palliative care; describes current models of delivering palliative care across care settings, and examines opportunities in the setting of healthcare policy reform for palliative care to improve outcomes for patients, families and healthcare institutions. The United States is currently facing a crisis in health care marked by unsustainable spending and quality that is poor relative to international benchmarks. Yet this is also a critical time of opportunity. Because of its focus on quality of care, the Affordable Care Act is poised to expand access to palliative care services for the sickest, most vulnerable, and therefore most costly, 5% of patients- a small group who nonetheless drive about 50% of all healthcare spending. Palliative care is specialized medical care for people with serious illnesses. It focuses on providing patients with relief from the symptoms, pain, and stress of a serious illness—whatever the diagnosis or stage of illness. The goal is to improve quality of life for both the patient and the family. Research has demonstrated palliative care’s positive impact on health care value. Patients (and family caregivers) receiving palliative care experience improved quality of life, better symptom management, lower rates of depression and anxiety, and improved survival. Because patient and family needs are met, crises are prevented, thereby directly reducing need for emergency department and hospital use and their associated costs. An epiphenomenon of better quality of care, the lower costs associated with palliative care have been observed in multiple studies. Meeting the Needs of Older Adults with Serious Illness: Challenges and Opportunities in the Age of Health Care Reform, a roadmap for effective policy and program design, brings together expert clinicians, researchers and policy leaders, who tackle key areas where real-world policy options to improve access to quality palliative care could have a substantial role in improving value.

Author : Ines Testoni,Hod Orkibi,Franca Benini,Efrat Dagan
Publisher : Frontiers Media SA
Page : 203 pages
File Size : 54,5 Mb
Release : 2022-11-17
Category : Science
ISBN : 9782832506301

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The Challenge of Palliative Psychology Across the Lifespan: Between New Health Emergencies and Paradigm Shifts by Ines Testoni,Hod Orkibi,Franca Benini,Efrat Dagan Pdf

Author : Claire J. Creutzfeldt,Benzi M. Kluger,Robert G. Holloway
Publisher : Springer
Page : 312 pages
File Size : 48,5 Mb
Release : 2018-10-01
Category : Medical
ISBN : 9783319932156

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Neuropalliative Care by Claire J. Creutzfeldt,Benzi M. Kluger,Robert G. Holloway Pdf

This comprehensive guide thoroughly covers all aspects of neuropalliative care, from symptom-specific considerations, to improving communication between clinicians, patients and families. Neuropalliative Care: A Guide to Improving the Lives of Patients and Families Affected by Neurologic Disease addresses clinical considerations for diseases such as dementia, multiple sclerosis, and severe acute brain injury, as well discussing the other challenges facing palliative care patients that are not currently sufficiently met under current models of care. This includes methods of effective communication, supporting the caregiver, how to make difficult treatment decisions in the face of uncertainty, managing grief, guilt and anger, and treating the pain itself. Written by leaders in the field of neuropalliative care, this book is an exceptional, well-rounded resource of neuropalliative care, serving as a reference for all clinicians caring for patients with neurological disease and their families: neurologists and palliative care specialists, physicians, nurses, chaplains, social workers, as well as trainees in these areas.

Author : Klaus Wegleitner,Katharina Heimerl,Allan Kellehear
Publisher : Routledge
Page : 257 pages
File Size : 42,7 Mb
Release : 2015-06-26
Category : Social Science
ISBN : 9781317565062

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Compassionate Communities by Klaus Wegleitner,Katharina Heimerl,Allan Kellehear Pdf

Compassionate communities are communities that provide assistance for those in need of end of life care, separate from any official heath service provision that may already be available within the community. This idea was developed in 2005 in Allan Kellehear’s seminal volume- Compassionate Cities: Public Health and End of Life Care. In the ensuing ten years the theoretical aspects of the idea have been continually explored, primarily rehearsing academic concerns rather than practical ones. Compassionate Communities: Case Studies from Britain and Europe provides the first major volume describing and examining compassionate community experiments in end of life care from a highly practical perspective. Focusing on community development initiatives and practice challenges, the book offers practitioners and policy makers from the health and social care sectors practical discussions on the strengths and limitations of such initiatives. Furthermore, not limited to providing practice choices the book also offers an important and timely impetus for other practitioners and policy makers to begin thinking about developing their own possible compassionate communities. An essential read for academic, practitioner, and policy audiences in the fields of public health, community development, health social sciences, aged care, bereavement care, and hospice & palliative care, Compassionate Communities is one of only a handful of available books on end of life care that takes a strong health promotion and community development approach.

Author : Michael W. Rich,Cynthia Boyd,James T. Pacala
Publisher : Elsevier Health Sciences
Page : 217 pages
File Size : 53,8 Mb
Release : 2016-07-09
Category : Medical
ISBN : 9780323444668

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Managing Chronic Conditions in Older Adults with Cardiovascular Disease, An Issue of Clinics in Geriatric Medicine, E-Book by Michael W. Rich,Cynthia Boyd,James T. Pacala Pdf

This issue of Clinics in Geriatric Medicine, guest edited by Drs. Cynthia Boyd, James T. Pacala, and Michael W. Rich, is devoted to Chronic Conditions in Older Adults with Cardiovascular Disease. Articles in this issue include: Epidemiology of multimorbidity in older adults with cardiovascular disease; Impact of multimorbidity on clinical outcomes in older adults with cardiovascular disease; Assessment of goals of care in patients with multiple chronic conditions; Challenges in decision-making: balancing trade-offs; Multimorbidity in older adults with heart failure; Multimorbidity in older adults with acute coronary syndromes; Multimorbidity in older adults with aortic stenosis; Multimorbidity in older adults with atrial fibrillation;Anticoagulation in older adults with multimorbidity; Approach to evaluating the multimorbid patient with cardiovascular disease undergoing non-cardiac surgery; Integrating care across disciplines; Assessing risks and benefits of invasive cardiac procedures in patients with advanced multimorbidity; Multimorbidity and end of life care in patients with cardiovascular disease; and Future research directions for cardiovascular disease.

Author : Nathan E Goldstein,Christopher D. Woodrell,R. Sean Morrison
Publisher : Elsevier Health Sciences
Page : 739 pages
File Size : 53,8 Mb
Release : 2023-11-07
Category : Medical
ISBN : 9780323847032

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Evidence-Based Practice of Palliative Medicine - E-Book by Nathan E Goldstein,Christopher D. Woodrell,R. Sean Morrison Pdf

Using a practical, question-and-answer approach, Evidence-Based Practice of Palliative Medicine, 2nd Edition, helps you provide optimal care for patients and families who are dealing with serious illness. This unique reference focuses on patient and family/caregiver-centered care, highlighting the benefits of palliative care and best practices for delivery. The highly practical, user-friendly format sets it apart from other texts in the field, with concise, readable chapters organized around clinical questions that you’re most likely to encounter in everyday care. Uniquely organized using a question-and-answer approach, making it easy to find answers to common questions asked by practitioners and patients. Up-to-date, reader-friendly chapters explore interventions, assessment techniques, treatment modalities, recommendations and guidelines, communication techniques, and available resources for palliative care. Expanded discussions on hospice in every chapter, and a new emphasis on pediatrics, with increased material on pediatric malignancies, developmental delays, cystic fibrosis, and perinatal palliative care. New chapters on wellness of the palliative care practitioner, patients with opioid use disorders, telehealth in palliative care, health disparities, rural palliative care, caring for people with hematologic malignancies, integrative and alternative therapies, LGBTQ+ populations, mobile health technologies, and national palliative care implementation strategies. High-quality evidence gathered and reviewed by leading experts in palliative medicine, including clinicians, educators, and researchers across a broad range of disciplines. Numerous algorithms throughout help you make informed decisions, and “take-home” points in every chapter provide a quick summary of key content. Any additional digital ancillary content may publish up to 6 weeks following the publication date.

Author : Raymond Han Lip Ng,Diah Martina,Cheng-pei Lin,Masanori Mori
Publisher : World Scientific
Page : 529 pages
File Size : 48,9 Mb
Release : 2024-04-15
Category : Medical
ISBN : 9789811281051

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Advance Care Planning In The Asia Pacific by Raymond Han Lip Ng,Diah Martina,Cheng-pei Lin,Masanori Mori Pdf

The 21st century is facing an unprecedented trend of population aging, including in many regions in the Asia Pacific region. Governments and healthcare systems recognise the importance of Advance Care Planning (ACP) in helping people to live well and to leave well.ACP is a complex intervention that is culture and context specific. In our universal endeavour to engender person centred care in healthcare systems and a more compassionate society, we are more similar than different. In this day and age of fast developing medical technologies and evolving social norms, ACP brims with both challenges and potential and a renewed understanding is needed.This book is a paean to the multifaceted nature of ACP as well as a timely update regarding the current landscape of ACP implementation and practice across the Asia Pacific region.

Author : Sara Thorne,Sarah Bowater
Publisher : Oxford University Press
Page : 288 pages
File Size : 49,5 Mb
Release : 2017-09-22
Category : Medical
ISBN : 9780191078248

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Adult Congenital Heart Disease by Sara Thorne,Sarah Bowater Pdf

A practical approach to the investigation and treatment of adult congenital heart disease (ACHD), this fully updated Oxford Specialist Handbook is a concise and accessible overview of a complex condition. Packed with straightforward advice, management strategies and key clinical points, it equips clinicians with a sound understanding of the principles and physiology of ACHD. An ideal reference tool for cardiology trainees, general cardiologists and acute medicine physicians, this second edition of Adult Congenital Heart Disease has been fully reviewed to include new guidelines and increased illustations to aid understanding. Brand new chapters on epidemiology, heart failure, device therapy and transition and transfer of care ensure that Adult Congenital Heart Disease remains the definitive guide to supporting clinicians throughout all aspects of the patient's care.

Author : Allan Kellehear
Publisher : Oxford University Press, USA
Page : 0 pages
File Size : 50,8 Mb
Release : 1999
Category : Health promotion
ISBN : 0195507851

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Health Promoting Palliative Care by Allan Kellehear Pdf

Health promotion has traditionally focused on illness prevention, targeting the fit and well. But what about those who live with life-threatening or terminal illness? Health -Promoting Palliative Care proposes a model of care that goes beyond simply providing care in the final stages of lifeand draws on critical and participatory principles from both palliative care and health promotion. Emphasising early intervention and a social approach to the problems and experiences of dying, it encourages service providers, family members, and the dying themselves to seek ways to promoteemotional, social, and spiritual well-being, as well as physical health. The book begins by looking at the ways in which health promotion can be introduced to palliative care. It goes on to outline the goals and practice principles of a health promoting palliative care. Later chapters addresspractice strategies relevant to health and death education, social supports, interpersonal reorientation, and environmental and policy development. Health Promoting Palliative Care is a valuable, practical, and accessible resource for practitioners working alone or in health care institutions, forstudents of the health sciences, social work, or pastoral care, and for those working in policy areas.

Author : Laurinda B. Harman,Frances Cornelius
Publisher : Jones & Bartlett Publishers
Page : 801 pages
File Size : 41,8 Mb
Release : 2017
Category : Health
ISBN : 9781284053708

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Ethical Health Informatics by Laurinda B. Harman,Frances Cornelius Pdf

Preceded by: Ethical challenges in the management of health information / [edited by ] Laurinda Beebe Harman. 2nd edition. 2006.