The Ethics Of Biomedical Big Data

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The Ethics of Biomedical Big Data

Brent Daniel Mittelstadt,Luciano Floridi
The Ethics of Biomedical Big Data Book PDF

Author : Brent Daniel Mittelstadt,Luciano Floridi
Publisher : Springer
Page : 480 pages
File Size : 40,6 Mb
Release : 2016-08-03
Category : Philosophy
ISBN : 9783319335254

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The Ethics of Biomedical Big Data by Brent Daniel Mittelstadt,Luciano Floridi Pdf

This book presents cutting edge research on the new ethical challenges posed by biomedical Big Data technologies and practices. ‘Biomedical Big Data’ refers to the analysis of aggregated, very large datasets to improve medical knowledge and clinical care. The book describes the ethical problems posed by aggregation of biomedical datasets and re-use/re-purposing of data, in areas such as privacy, consent, professionalism, power relationships, and ethical governance of Big Data platforms. Approaches and methods are discussed that can be used to address these problems to achieve the appropriate balance between the social goods of biomedical Big Data research and the safety and privacy of individuals. Seventeen original contributions analyse the ethical, social and related policy implications of the analysis and curation of biomedical Big Data, written by leading experts in the areas of biomedical research, medical and technology ethics, privacy, governance and data protection. The book advances our understanding of the ethical conundrums posed by biomedical Big Data, and shows how practitioners and policy-makers can address these issues going forward.

The Big Data Agenda

Annika Richterich
The Big Data Agenda Book PDF

Author : Annika Richterich
Publisher : University of Westminster Press
Page : 156 pages
File Size : 43,7 Mb
Release : 2018-04-13
Category : Social Science
ISBN : 9781911534730

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The Big Data Agenda by Annika Richterich Pdf

This book highlights that the capacity for gathering, analysing, and utilising vast amounts of digital (user) data raises significant ethical issues. Annika Richterich provides a systematic contemporary overview of the field of critical data studies that reflects on practices of digital data collection and analysis. The book assesses in detail one big data research area: biomedical studies, focused on epidemiological surveillance. Specific case studies explore how big data have been used in academic work. The Big Data Agenda concludes that the use of big data in research urgently needs to be considered from the vantage point of ethics and social justice. Drawing upon discourse ethics and critical data studies, Richterich argues that entanglements between big data research and technology/ internet corporations have emerged. In consequence, more opportunities for discussing and negotiating emerging research practices and their implications for societal values are needed.

The Ethics of Medical Data Donation

Luciano Floridi,Jenny Krutzinna
The Ethics of Medical Data Donation Book PDF

Author : Luciano Floridi,Jenny Krutzinna
Publisher : Unknown
Page : 198 pages
File Size : 40,5 Mb
Release : 2020-10-08
Category : Medical
ISBN : 1013273508

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The Ethics of Medical Data Donation by Luciano Floridi,Jenny Krutzinna Pdf

This open access book presents an ethical approach to utilizing personal medical data. It features essays that combine academic argument with practical application of ethical principles. The contributors are experts in ethics and law. They address the challenges in the re-use of medical data of the deceased on a voluntary basis. This pioneering study looks at the many factors involved when individuals and organizations wish to share information for research, policy-making, and humanitarian purposes. Today, it is easy to donate blood or even organs, but it is virtually impossible to donate one's own medical data. This is seen as ethically unacceptable. Yet, data donation can greatly benefit the welfare of our societies. This collection provides timely interdisciplinary research on biomedical big data. Topics include the ethics of data donation, the legal and regulatory challenges, and the current and future collaborations. Readers will learn about the ethical and regulatory challenges associated with medical data donations. They will also better understand the special nature of using deceased data for research purposes with regard to ethical principles of autonomy, beneficence, and justice. In addition, the contributors identify the key governance issues of such a scheme. The essays also look at what we can learn in terms of best practice from existing medical data schemes. This work was published by Saint Philip Street Press pursuant to a Creative Commons license permitting commercial use. All rights not granted by the work's license are retained by the author or authors.

The Ethics of Medical Data Donation

Jenny Krutzinna,Luciano Floridi
The Ethics of Medical Data Donation Book PDF

Author : Jenny Krutzinna,Luciano Floridi
Publisher : Springer
Page : 198 pages
File Size : 46,6 Mb
Release : 2019-01-16
Category : Medical
ISBN : 9783030043636

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The Ethics of Medical Data Donation by Jenny Krutzinna,Luciano Floridi Pdf

This open access book presents an ethical approach to utilizing personal medical data. It features essays that combine academic argument with practical application of ethical principles. The contributors are experts in ethics and law. They address the challenges in the re-use of medical data of the deceased on a voluntary basis. This pioneering study looks at the many factors involved when individuals and organizations wish to share information for research, policy-making, and humanitarian purposes. Today, it is easy to donate blood or even organs, but it is virtually impossible to donate one’s own medical data. This is seen as ethically unacceptable. Yet, data donation can greatly benefit the welfare of our societies. This collection provides timely interdisciplinary research on biomedical big data. Topics include the ethics of data donation, the legal and regulatory challenges, and the current and future collaborations. Readers will learn about the ethical and regulatory challenges associated with medical data donations. They will also better understand the special nature of using deceased data for research purposes with regard to ethical principles of autonomy, beneficence, and justice. In addition, the contributors identify the key governance issues of such a scheme. The essays also look at what we can learn in terms of best practice from existing medical data schemes.

Big Data, Health Law, and Bioethics

I. Glenn Cohen,Holly Fernandez Lynch,Effy Vayena,Urs Gasser
Big Data Health Law and Bioethics Book PDF

Author : I. Glenn Cohen,Holly Fernandez Lynch,Effy Vayena,Urs Gasser
Publisher : Cambridge University Press
Page : 374 pages
File Size : 45,7 Mb
Release : 2018-03-08
Category : Law
ISBN : 9781108153645

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Big Data, Health Law, and Bioethics by I. Glenn Cohen,Holly Fernandez Lynch,Effy Vayena,Urs Gasser Pdf

When data from all aspects of our lives can be relevant to our health - from our habits at the grocery store and our Google searches to our FitBit data and our medical records - can we really differentiate between big data and health big data? Will health big data be used for good, such as to improve drug safety, or ill, as in insurance discrimination? Will it disrupt health care (and the health care system) as we know it? Will it be possible to protect our health privacy? What barriers will there be to collecting and utilizing health big data? What role should law play, and what ethical concerns may arise? This timely, groundbreaking volume explores these questions and more from a variety of perspectives, examining how law promotes or discourages the use of big data in the health care sphere, and also what we can learn from other sectors.

Big Data, Big Challenges: A Healthcare Perspective

Mowafa Househ,Andre W. Kushniruk,Elizabeth M. Borycki
Big Data Big Challenges A Healthcare Perspective Book PDF

Author : Mowafa Househ,Andre W. Kushniruk,Elizabeth M. Borycki
Publisher : Springer
Page : 144 pages
File Size : 53,7 Mb
Release : 2019-02-26
Category : Medical
ISBN : 9783030061098

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Big Data, Big Challenges: A Healthcare Perspective by Mowafa Househ,Andre W. Kushniruk,Elizabeth M. Borycki Pdf

This is the first book to offer a comprehensive yet concise overview of the challenges and opportunities presented by the use of big data in healthcare. The respective chapters address a range of aspects: from health management to patient safety; from the human factor perspective to ethical and economic considerations, and many more. By providing a historical background on the use of big data, and critically analyzing current approaches together with issues and challenges related to their applications, the book not only sheds light on the problems entailed by big data, but also paves the way for possible solutions and future research directions. Accordingly, it offers an insightful reference guide for health information technology professionals, healthcare managers, healthcare practitioners, and patients alike, aiding them in their decision-making processes; and for students and researchers whose work involves data science-related research issues in healthcare.

The Oxford Handbook of Public Health Ethics

Anna C. Mastroianni,Jeffrey P. Kahn,Nancy E. Kass
The Oxford Handbook of Public Health Ethics Book PDF

Author : Anna C. Mastroianni,Jeffrey P. Kahn,Nancy E. Kass
Publisher : Oxford University Press
Page : 992 pages
File Size : 40,9 Mb
Release : 2019-07-23
Category : Medical
ISBN : 9780190245214

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The Oxford Handbook of Public Health Ethics by Anna C. Mastroianni,Jeffrey P. Kahn,Nancy E. Kass Pdf

Natural disasters and cholera outbreaks. Ebola, SARS, and concerns over pandemic flu. HIV and AIDS. E. coli outbreaks from contaminated produce and fast foods. Threats of bioterrorism. Contamination of compounded drugs. Vaccination refusals and outbreaks of preventable diseases. These are just some of the headlines from the last 30-plus years highlighting the essential roles and responsibilities of public health, all of which come with ethical issues and the responsibilities they create. Public health has achieved extraordinary successes. And yet these successes also bring with them ethical tension. Not all public health successes are equally distributed in the population; extraordinary health disparities between rich and poor still exist. The most successful public health programs sometimes rely on policies that, while improving public health conditions, also limit individual rights. Public health practitioners and policymakers face these and other questions of ethics routinely in their work, and they must navigate their sometimes competing responsibilities to the health of the public with other important societal values such as privacy, autonomy, and prevailing cultural norms. This Oxford Handbook provides a sweeping and comprehensive review of the current state of public health ethics, addressing these and numerous other questions. Taking account of the wide range of topics under the umbrella of public health and the ethical issues raised by them, this volume is organized into fifteen sections. It begins with two sections that discuss the conceptual foundations, ethical tensions, and ethical frameworks of and for public health and how public health does its work. The thirteen sections that follow examine the application of public health ethics considerations and approaches across a broad range of public health topics. While chapters are organized into topical sections, each chapter is designed to serve as a standalone contribution. The book includes 73 chapters covering many topics from varying perspectives, a recognition of the diversity of the issues that define public health ethics in the U.S. and globally. This Handbook is an authoritative and indispensable guide to the state of public health ethics today.

Group Privacy

Linnet Taylor,Luciano Floridi,Bart van der Sloot
Group Privacy Book PDF

Author : Linnet Taylor,Luciano Floridi,Bart van der Sloot
Publisher : Springer
Page : 237 pages
File Size : 42,9 Mb
Release : 2016-12-28
Category : Philosophy
ISBN : 9783319466088

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Group Privacy by Linnet Taylor,Luciano Floridi,Bart van der Sloot Pdf

The goal of the book is to present the latest research on the new challenges of data technologies. It will offer an overview of the social, ethical and legal problems posed by group profiling, big data and predictive analysis and of the different approaches and methods that can be used to address them. In doing so, it will help the reader to gain a better grasp of the ethical and legal conundrums posed by group profiling. The volume first maps the current and emerging uses of new data technologies and clarifies the promises and dangers of group profiling in real life situations. It then balances this with an analysis of how far the current legal paradigm grants group rights to privacy and data protection, and discusses possible routes to addressing these problems. Finally, an afterword gathers the conclusions reached by the different authors and discuss future perspectives on regulating new data technologies.

Handbook of Data Science Approaches for Biomedical Engineering

Valentina Emilia Balas,Vijender Kumar Solanki,Raghvendra Kumar,Manju Khari
Handbook of Data Science Approaches for Biomedical Engineering Book PDF

Author : Valentina Emilia Balas,Vijender Kumar Solanki,Raghvendra Kumar,Manju Khari
Publisher : Academic Press
Page : 320 pages
File Size : 46,7 Mb
Release : 2019-11-13
Category : Science
ISBN : 9780128183199

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Handbook of Data Science Approaches for Biomedical Engineering by Valentina Emilia Balas,Vijender Kumar Solanki,Raghvendra Kumar,Manju Khari Pdf

Handbook of Data Science Approaches for Biomedical Engineering covers the research issues and concepts of biomedical engineering progress and the ways they are aligning with the latest technologies in IoT and big data. In addition, the book includes various real-time/offline medical applications that directly or indirectly rely on medical and information technology. Case studies in the field of medical science, i.e., biomedical engineering, computer science, information security, and interdisciplinary tools, along with modern tools and the technologies used are also included to enhance understanding. Today, the role of Big Data and IoT proves that ninety percent of data currently available has been generated in the last couple of years, with rapid increases happening every day. The reason for this growth is increasing in communication through electronic devices, sensors, web logs, global positioning system (GPS) data, mobile data, IoT, etc. Provides in-depth information about Biomedical Engineering with Big Data and Internet of Things Includes technical approaches for solving real-time healthcare problems and practical solutions through case studies in Big Data and Internet of Things Discusses big data applications for healthcare management, such as predictive analytics and forecasting, big data integration for medical data, algorithms and techniques to speed up the analysis of big medical data, and more

Big Data and Artificial Intelligence for Healthcare Applications

Ankur Saxena,Nicolas Brault,Shazia Rashid
Big Data and Artificial Intelligence for Healthcare Applications Book PDF

Author : Ankur Saxena,Nicolas Brault,Shazia Rashid
Publisher : CRC Press
Page : 286 pages
File Size : 52,9 Mb
Release : 2021-06-15
Category : Computers
ISBN : 9781000387315

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Big Data and Artificial Intelligence for Healthcare Applications by Ankur Saxena,Nicolas Brault,Shazia Rashid Pdf

This book covers a wide range of topics on the role of Artificial Intelligence, Machine Learning, and Big Data for healthcare applications and deals with the ethical issues and concerns associated with it. This book explores the applications in different areas of healthcare and highlights the current research. "Big Data and Artificial Intelligence for Healthcare Applications" covers healthcare big data analytics, mobile health and personalized medicine, clinical trial data management and presents how Artificial Intelligence can be used for early disease diagnosis prediction and prognosis. It also offers some case studies that describes the application of Artificial Intelligence and Machine Learning in healthcare. Researchers, healthcare professionals, data scientists, systems engineers, students, programmers, clinicians, and policymakers will find this book of interest.

The Ethics of Biomedical Research

Baruch A. Brody
The Ethics of Biomedical Research Book PDF

Author : Baruch A. Brody
Publisher : Oxford University Press, USA
Page : 412 pages
File Size : 53,9 Mb
Release : 1998
Category : Medical
ISBN : 0195090071

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The Ethics of Biomedical Research by Baruch A. Brody Pdf

Examines the many ethical issues related to biomedical research, including the use of animals in research, research on human subjects, clinical trials, international research ethics policies, and other related topics.

Ethics of Big Data

Kord Davis,Doug Patterson
Ethics of Big Data Book PDF

Author : Kord Davis,Doug Patterson
Publisher : "O'Reilly Media, Inc."
Page : 80 pages
File Size : 44,8 Mb
Release : 2012
Category : Business & Economics
ISBN : 9781449311797

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Ethics of Big Data by Kord Davis,Doug Patterson Pdf

This book contains a framework for productive discussion and thinking about ethics and Big Data in business environments. With the increasing size and scope of information that Big Data technologies can provide business, maintaining an ethical practice benefits from a common framework of understanding and vocabulary for discussing questions about coherent and consistent practices. A framework provides you with a set of conceptual terms and tools that help decision-markers to engage difficult questions the expanding role Big Data plays in an increasing variety of products and services. The approach is to develop a set of terms and concepts, consider ethical principles useful in meaningful business discussions, and then explore and compare several overall views on data handling to help inform the development of an ethics-based data strategy. The focus is to enhance effective decision-making in business rather than legislate what ought to be done with data. In this book, you will learn methods and techniques to facilitate rigorous, productive internal discussion, and express coherent and consistent positions on your organization's perspective on the use of Big Data in commerce.

Integrative Bioinformatics for Biomedical Big Data

Xiuzhen Huang,Jason H. Moore,Yu Zhang
Integrative Bioinformatics for Biomedical Big Data Book PDF

Author : Xiuzhen Huang,Jason H. Moore,Yu Zhang
Publisher : Cambridge University Press
Page : 183 pages
File Size : 48,6 Mb
Release : 2023-09-28
Category : Science
ISBN : 9781009477147

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Integrative Bioinformatics for Biomedical Big Data by Xiuzhen Huang,Jason H. Moore,Yu Zhang Pdf

This volume introduces researchers to the idea of no-boundary thinking (NBT) in biological and biomedical research. Written by a team of specialists, drawing on their own experience, it provides a guide to integrating and synthesizing data and knowledge from bioinformatics to define important problems and articulate impactful research questions.

Ethical Reasoning in Big Data

Jeff Collmann,Sorin Adam Matei
Ethical Reasoning in Big Data Book PDF

Author : Jeff Collmann,Sorin Adam Matei
Publisher : Springer
Page : 192 pages
File Size : 41,5 Mb
Release : 2016-04-22
Category : Computers
ISBN : 9783319284224

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Ethical Reasoning in Big Data by Jeff Collmann,Sorin Adam Matei Pdf

This book springs from a multidisciplinary, multi-organizational, and multi-sector conversation about the privacy and ethical implications of research in human affairs using big data. The need to cultivate and enlist the public’s trust in the abilities of particular scientists and scientific institutions constitutes one of this book’s major themes. The advent of the Internet, the mass digitization of research information, and social media brought about, among many other things, the ability to harvest – sometimes implicitly – a wealth of human genomic, biological, behavioral, economic, political, and social data for the purposes of scientific research as well as commerce, government affairs, and social interaction. What type of ethical dilemmas did such changes generate? How should scientists collect, manipulate, and disseminate this information? The effects of this revolution and its ethical implications are wide-ranging. This book includes the opinions of myriad investigators, practitioners, and stakeholders in big data on human beings who also routinely reflect on the privacy and ethical issues of this phenomenon. Dedicated to the practice of ethical reasoning and reflection in action, the book offers a range of observations, lessons learned, reasoning tools, and suggestions for institutional practice to promote responsible big data research on human affairs. It caters to a broad audience of educators, researchers, and practitioners. Educators can use the volume in courses related to big data handling and processing. Researchers can use it for designing new methods of collecting, processing, and disseminating big data, whether in raw form or as analysis results. Lastly, practitioners can use it to steer future tools or procedures for handling big data. As this topic represents an area of great interest that still remains largely undeveloped, this book is sure to attract significant interest by filling an obvious gap in currently available literature.

Big Data in Psychiatry and Neurology

Ahmed Moustafa
Big Data in Psychiatry and Neurology Book PDF

Author : Ahmed Moustafa
Publisher : Academic Press
Page : 386 pages
File Size : 45,9 Mb
Release : 2021-06-11
Category : Medical
ISBN : 9780128230022

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Big Data in Psychiatry and Neurology by Ahmed Moustafa Pdf

Big Data in Psychiatry and Neurology provides an up-to-date overview of achievements in the field of big data in Psychiatry and Medicine, including applications of big data methods to aging disorders (e.g., Alzheimer’s disease and Parkinson’s disease), mood disorders (e.g., major depressive disorder), and drug addiction. This book will help researchers, students and clinicians implement new methods for collecting big datasets from various patient populations. Further, it will demonstrate how to use several algorithms and machine learning methods to analyze big datasets, thus providing individualized treatment for psychiatric and neurological patients. As big data analytics is gaining traction in psychiatric research, it is an essential component in providing predictive models for both clinical practice and public health systems. As compared with traditional statistical methods that provide primarily average group-level results, big data analytics allows predictions and stratification of clinical outcomes at an individual subject level. Discusses longitudinal big data and risk factors surrounding the development of psychiatric disorders Analyzes methods in using big data to treat psychiatric and neurological disorders Describes the role machine learning can play in the analysis of big data Demonstrates the various methods of gathering big data in medicine Reviews how to apply big data to genetics