The Family Experience Of Dementia

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Losing Me, While Losing You

Author : Jeanette A. Auger,Diane Tedford-Litle,Brenda Wallace-Allen
Publisher : Fernwood Publishing
Page : 218 pages
File Size : 42,6 Mb
Release : 2021-09-21T00:00:00Z
Category : Health & Fitness
ISBN : 9781773635019

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Losing Me, While Losing You by Jeanette A. Auger,Diane Tedford-Litle,Brenda Wallace-Allen Pdf

Losing Me, While Losing You is a long-needed resource to those providing care for people living with dementia — and for those providing care to the caregivers. In this book, caregivers speak from their own experiences of caring for loved ones with dementia; they cover when they first noticed behavioural changes, what they did and how their roles changed when they received the diagnosis, how the experiences changed their perceptions of themselves, especially in cases where important ones no longer recognized them or their, often long-standing, relationships. The caregivers also talked about what resources, if any, were available to support them through the caregiving journey and what recommendations they would make to government policymakers and to others in similar situations. This book is unique in that it documents the personal lived experience of loss which family, friends and caregivers go through as their roles, expectations and images of self are changed throughout the caregiving process.

The Family Experience of Dementia

Author : Gary Morris,Jack Morris
Publisher : Jessica Kingsley Publishers
Page : 322 pages
File Size : 43,8 Mb
Release : 2020-12-21
Category : Health & Fitness
ISBN : 9781784509835

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The Family Experience of Dementia by Gary Morris,Jack Morris Pdf

Dementia not only affects the person presented with the diagnosis, but their family and friends too. This book provides practitioners with strategies to support the whole family and understand their dementia journey both pre- and post-diagnosis. This is facilitated through a series of activities and reflective prompts. There is also a dedicated chapter offering structured exercises for health and social care practitioners and students. The book introduces the Lawrence family, where Peter has been diagnosed with dementia, and provides perspectives from each family member, allowing practitioners to become acquainted with the lived experience of everyone involved. The reflective questions allow readers to become actively engaged to maximise their knowledge and understanding, and to better contextualize what the dementia experience feels like for family and friends. With its focus on the all-important lived experience of the whole family during the diagnostic process and beyond, this is essential reading for any practitioner working with people with dementia.

The Simplicity of Dementia

Author : Huub Buijssen
Publisher : Jessica Kingsley Publishers
Page : 176 pages
File Size : 42,7 Mb
Release : 2005-02-15
Category : Health & Fitness
ISBN : 1846420962

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The Simplicity of Dementia by Huub Buijssen Pdf

This book offers an accessible and sympathetic introduction for relatives, carers and professionals looking after or training to work with people with dementia. Drawing on the two `laws of dementia', the author explains the causes of communication problems, mood disturbances and `deviant' behaviours, with particular emphasis on how these are experienced by dementia sufferers themselves. Case examples demonstrate the typical symptoms and progression of dementia, and clear guidance is provided on how to support dementia sufferers at every stage and help them deal with the challenges posed by their condition. Relatives and carers will find this book a source of essential information and encouragement to deal confidently with the difficulties posed by the condition both for people with dementia and those around them.

Families Caring for an Aging America

Author : National Academies of Sciences, Engineering, and Medicine,Health and Medicine Division,Board on Health Care Services,Committee on Family Caregiving for Older Adults
Publisher : National Academies Press
Page : 367 pages
File Size : 53,5 Mb
Release : 2016-11-08
Category : Medical
ISBN : 9780309448093

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Families Caring for an Aging America by National Academies of Sciences, Engineering, and Medicine,Health and Medicine Division,Board on Health Care Services,Committee on Family Caregiving for Older Adults Pdf

Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.

The Family Experience of Dementia: A Reflective Workbook for Professionals

Author : Gary Morris,Jack Morris
Publisher : Unknown
Page : 320 pages
File Size : 44,8 Mb
Release : 2020-12-21
Category : Electronic
ISBN : 1785925741

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The Family Experience of Dementia: A Reflective Workbook for Professionals by Gary Morris,Jack Morris Pdf

Dementia doesn't just affect the person with the diagnosis, but their family and friends too. This book provides practitioners with strategies to support families living with dementia pre- to post-diagnosis, using the story of a family and based on research throughout to help practitioners understand the lived experiences of everyone involved.

Dementia as Social Experience

Author : Gaynor Macdonald,Jane Mears
Publisher : Routledge
Page : 234 pages
File Size : 54,5 Mb
Release : 2018-07-26
Category : Social Science
ISBN : 9781351241793

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Dementia as Social Experience by Gaynor Macdonald,Jane Mears Pdf

A diagnosis of dementia changes the ways people engage with each other – for those living with dementia, as well their families, caregivers, friends, health professionals, neighbours, shopkeepers and the community. Medical understandings, necessary as they are, provide no insights into how we may all live good lives with dementia. This innovative volume brings together an interdisciplinary group of researchers and practitioners to focus on dementia as lived experience. It foregrounds dementia’s social, moral, political and economic dimensions, investigating the challenges of reframing the dementia experience for all involved. Part I critiques the stigmas, the negativity, language and fears often associated with a dementia diagnosis, challenging debilitating representations and examining ways to tackle these. Part II examines proactive practices that can support better long-term outcomes for those living with dementia. Part III looks at the relational aspects of dementia care, acknowledging and going beyond the notion of person-centred care. Collectively, these contributions highlight the social and relational change required to enhance life for those with dementia and those who care for them. Engaging in a critical conversation around personhood and social value, this book examines the wider social contexts within which dementia care takes place. It calls for social change, and looks for inspiration to the growing movement for relational care and the caring society. Dementia as Social Experience is important reading for all those people who, in various ways, are living with dementia, as well as for those working in this area as clinicians, researcher and carers.

Telling Tales about Dementia

Author : Lucy Whitman
Publisher : Jessica Kingsley Publishers
Page : 226 pages
File Size : 45,8 Mb
Release : 2010
Category : Health & Fitness
ISBN : 9781843109419

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Telling Tales about Dementia by Lucy Whitman Pdf

In this book, thirty carers from different backgrounds and circumstances share their experiences of caring for a parent, partner or friend with dementia. This unique collection of personal accounts will be an engaging read for anyone affected by dementia in a personal or professional context, including social workers, practitioners and care staff.

The Complete Family Guide to Dementia

Author : Thomas F. Harrison,Brent P. Forester
Publisher : Guilford Publications
Page : 255 pages
File Size : 54,8 Mb
Release : 2022-08-02
Category : Family & Relationships
ISBN : 9781462549719

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The Complete Family Guide to Dementia by Thomas F. Harrison,Brent P. Forester Pdf

If you are facing the unique challenges of caring for a parent with dementia, you are not alone. What do you do when your loved one so plainly needs assistance, but is confused, angry, or resistant to your help? Where can you find the vital information you need, when you need it? Journalist Thomas Harrison and leading geriatric psychiatrist Brent Forester show that you don’t have to be a medical expert to be a good care provider in this authoritative guide. They explain the basics of dementia and offer effective strategies for coping with the medical, emotional, and financial toll. With the right skills, you can navigate changing family roles, communicate better with your parent, keep him or her safe, and manage difficult behaviors. Learn how to "care smarter, not harder"--and help your loved one maintain the best possible quality of life.

Ageing, Dementia and the Social Mind

Author : Paul Higgs,Chris Gilleard
Publisher : John Wiley & Sons
Page : 168 pages
File Size : 50,8 Mb
Release : 2017-09-05
Category : Social Science
ISBN : 9781119397878

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Ageing, Dementia and the Social Mind by Paul Higgs,Chris Gilleard Pdf

A groundbreaking exploration of the sociology of dementia — with contributions from distinguished international scholars and practitioners. Organised around the four themes of personhood, care, social representations and social differentiation Provides a critical look at dementia and demonstrates how sociology and other disciplines can help us understand its social context as well as the challenges it poses Contributing authors explore the social terrain, responding in part, to Paul Higgs’ and Chris Gilleard’s highly influential work on ageing Breaks new ground in giving specific attention to the social and cultural dimensions of responses to dementia

Dementia with Dignity

Author : Judy Cornish
Publisher : Createspace Independent Publishing Platform
Page : 272 pages
File Size : 46,8 Mb
Release : 2019-01-22
Category : Alzheimer's disease
ISBN : 1974027627

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Dementia with Dignity by Judy Cornish Pdf

The revolutionary how-to guidebook that details ways to make it easier to provide dementia home care for people experiencing Alzheimer's or dementia. Alzheimer's home care is possible! Dementia with Dignity explains the groundbreaking new approach: the DAWN Method(R), designed so families and caregivers can provide home care. It outlines practical tools and techniques to help your loved one feel happier and more comfortable so that you can postpone the expense of long-term care. In this book you'll learn: -The basic facts about Alzheimer's and dementia, plus the skills lost and those not lost; -How to recognize and respond to the emotions caused by Alzheimer's or dementia, and avoid dementia-related behaviors; -Tools for working with an impaired person's moods and changing sense of reality; -Home care techniques for dealing with hygiene, safety, nutrition and exercise issues; -A greater understanding and appreciation of what someone with Alzheimer's or dementia is experiencing, and how your home care can increase home their emotional wellbeing. Wouldn't dementia home care be easier if you could get on the same page as your loved one? When we understand what someone experiencing Alzheimer's or dementia is going through, we can truly help them enjoy more peace and security at home. This book will help you recognize the unmet emotional needs that are causing problems, giving you a better understanding and ability to address them. The good news about dementia is that home care is possible. There are infinitely more happy times and experiences to be shared together. Be a part of caring for, honoring, and upholding the life of someone you love by helping them experience Alzheimer's or dementia with dignity. Judy Cornish is the author of The Dementia Handbook-How to Provide Dementia Care at Home, founder of the Dementia & Alzheimer's Wellbeing Network(R) (DAWN), and creator of the DAWN Method. She is also a geriatric care manager and elder law attorney, member of the National Association of Elder Law Attorneys (NAELA) and the American Society on Aging (ASA).

One Day At a Time

Author : Carole Le Navenec,Tina Vonhof
Publisher : Praeger
Page : 0 pages
File Size : 42,8 Mb
Release : 1996-02-16
Category : Psychology
ISBN : 9780865692572

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One Day At a Time by Carole Le Navenec,Tina Vonhof Pdf

One Day at a Time is potentially a landmark text in understanding care provision needs of families in a changing social context. Its applied and holistic orientation reflects an exceptional level of experiential insight and of scholarship that should ensure both relevance and widespread appeal. This book not only provides readers with a practical theoretical framework, but also incorporates applications that are imaginative, and yet simple to implement. (From the Foreword by Dr. Otto von Mering and Dr. Leon Earle) Dementia attacks not only the body, but in particular the mind and the very personhood of the patient. For family members, the alteration in the person's identity and the loss of a shared past and shared memories is devasting. The purpose of this book is to show how families go about day-to-day living with this condition. Le Navenec and Vonhof provide a holistic view of caring as a reciprocal relationship that involves all members of the family as well as their surrounding social network. The book is intended primarily for professionals, educators, and students in the fields of geriatrics, nursing, rehabilitation, social work, gerontology, family sociology, medical anthropology, and family therapy. Family members who are caring for an older person may also benefit from reading about the experiences of others.

Thoughtful Dementia Care

Author : Jennifer Ghent-Fuller
Publisher : Createspace Independent Publishing Platform
Page : 0 pages
File Size : 40,8 Mb
Release : 2012-04-03
Category : Aging parents
ISBN : 1480007579

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Thoughtful Dementia Care by Jennifer Ghent-Fuller Pdf

Ghent-Fuller offers insights into emotional reactions and practical suggestions based on deep understanding of the way people with dementia view many situations. She explains the loss of various types of memory and other thinking processes, and describes how these losses affect the day to day life of people with dementia, their understanding of the world around them and their personal situations.

The Person with Alzheimer's Disease

Author : Phyllis Braudy Harris
Publisher : JHU Press
Page : 336 pages
File Size : 50,7 Mb
Release : 2002-06-06
Category : Health & Fitness
ISBN : 0801868777

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The Person with Alzheimer's Disease by Phyllis Braudy Harris Pdf

The first book to provide a comprehensive look at what it's like to have dementia and the subjective experience of living with progressive memory loss. Few families are untouched by Alzheimer's disease or a related dementia. Moving accounts of what it is like to care for someone with this disease have already been published, as well as how-to books that offer caregivers advice and information on coping. But this book is the first to provide a comprehensive report of what it is like to have dementia oneself—the subjective experience of living with progressive memory loss. Each chapter discusses a different aspect of having dementia, from the initial assessment and diagnosis through placement in a nursing home. The discussions are grounded in qualitative research and case studies, which convey the variable and personal nature of the experience. They seek to help clinicians, researchers, students, and caregivers (both professionals and family members) understand the experience of dementia, and thereby to promote better caregiving through a person-centered approach. Contributors: Kathleen Kahn-Denis, Judson Retirement Community; Casey Durkin, a psychotherapist in Cleveland, Ohio; Jane Gilliard, Dementia Voice, UK; Phyllis Braudy Harris, John Carroll University; John Keady, University of Wales, UK; John Killick, University of Stirling, UK; Rebecca G. Logsdon, University of Washington; Charlie Murphy, University of Stirling, UK; Alison Phinney, University of British Columbia, Canada; Steven R. Sabat, Georgetown University; Dorothy Seman, Alzheimer's Family Care Center, Chicago; Lisa Snyder, University of California, San Diego; Jane Stansell, Alzheimer's Family Care Center, Chicago; Gloria Sterin, Shaker Heights, Ohio; Jon C. Stuckey, Messiah College; Robyn Yale, Consultant to the Alzheimer's Association, San Francisco; Rosalie Young, Wayne State University School of Medicine.

Dementia

Author : Dave Pulsford,Rachel Thompson
Publisher : Jessica Kingsley Publishers
Page : 243 pages
File Size : 53,7 Mb
Release : 2012-10-01
Category : Family & Relationships
ISBN : 9781849052436

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Dementia by Dave Pulsford,Rachel Thompson Pdf

This comprehensive yet accessible book, written specifically for friends and relatives, offers practical advice and support that can help ensure the best possible quality of life for people with dementia and the people around them.

Patient Safety and Quality

Author : Ronda Hughes
Publisher : Department of Health and Human Services
Page : 592 pages
File Size : 41,7 Mb
Release : 2008
Category : Medical
ISBN : IOWA:31858055672798

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Patient Safety and Quality by Ronda Hughes Pdf

"Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/