The Politics Of Sickle Cell And Thalassaemia

Author : Elizabeth N. Anionwu,Karl Atkin
Publisher : Unknown
Page : 184 pages
File Size : 42,8 Mb
Release : 2001
Category : Ethnic groups
ISBN : UOM:39015054270221

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The Politics of Sickle Cell and Thalassaemia by Elizabeth N. Anionwu,Karl Atkin Pdf

Sickle cell disorder (SCD) and thalassaemia are inherited blood disorders which have only recently gained serious attention among health professionals and policy makers. In this text, Anionwu (nursing, Thames Valley U.) and Atkin (U. of Leeds) explore issues regarding these disorders in the UK, and the broader problems faced by minority ethnic communities in acquiring adequate health care and support. Coverage includes a clinical introduction to haemoglobinopathies; screening and diagnosing within the context of the "new genetics," including associated ethical dilemmas and problems; general problems faced by patients and their families, and their daily coping strategies; current shortfalls in providing care; examples of existing good practice; strategies and struggles from the historical development of haemoglobinopathy services in the UK; and opportunities and threats for the future. c. Book News Inc.

Author : Simon M. Dyson,Karl Atkin
Publisher : Routledge
Page : 221 pages
File Size : 45,9 Mb
Release : 2014-06-11
Category : Medical
ISBN : 9781317977421

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Genetics and Global Public Health by Simon M. Dyson,Karl Atkin Pdf

Sickle cell and thalassaemia are among the world’s most common genetic conditions. They are especially common in Africa, Brazil, the Caribbean, the Middle East and Asia. They affect all ethnic groups but they particularly impact on minority ethnic groups in North America, Europe and Australasia. Much research has focused on clinical, laboratory and genetic studies of these conditions. Through a wide-ranging selection of readings based on social scientific research into sickle cell and thalassaemia, this book seeks to redress this imbalance. This is important as, through an examination of the different social, economic and cultural contexts of the lives of people living with sickle cell or thalassaemia, the contributors demonstrate that people are more than the sum of their genes and that their life experiences are rarely derived solely from the clinical severity of their condition but depend on the social context of their lives. Genetics and Global Public Health presents a new concluding chapter which highlights the critical nature of social science research for sickle cell and thalassaemia communities, providing key insights into the social contexts of human behaviour and analysing how societal arrangements could change to assist people living with either condition. It will be of great interest to postgraduate and research students as well as professionals working in the field of public health. This book was originally published as a special issue of the journal Ethnicity and Health.

Author : Simon Dyson
Publisher : Churchill Livingstone
Page : 220 pages
File Size : 40,6 Mb
Release : 2005
Category : Ethnic groups
ISBN : UOM:39015063087988

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Ethnicity and Screening for Sickle Cell/thalassaemia by Simon Dyson Pdf

Screening policies for sickle cell and thalassaemia have only recently been formalized in the UK. This book asks what types of ethnicity information are relevant for health professionals to ask as part of this screening and why. Through extensive use of interview material, the book draws upon the experiences of sickle cell and thalassaemia counsellors who have been at the forefront of understanding in this area. The book: . Demonstrates how best practice for screening in a multi-ethnic society requires us to better understand the myth of 'races', the meanings of concepts such as ethnicity and racialization, and the relation of racism to issues of citizenship, immigration, asylum and nationality. . Shows how learning from best practice for screening could be a model for developing cultural competency across all types of health care provision. . Clarifies, through the use of the biologically-grounded exemplar of sickle cell and thalassaemia, debates of 'race' and ethnicity for those working in social sciences. . Listens to the voices of experience and validates the hitherto unacknowledged achievements of professional women from minoritized ethnic groups. Extensive direct quotations from experienced sickle cell and thalassemia counsellors Explanations of key concepts, such as 'race', ethnicity and racism Explanation of the political, social and historical factors underlying tensions in asking an ethnicity questions Further resources and website information

Author : Nicolaus Kröger,Mohamad Mohty,Carlo Dufour
Publisher : Unknown
Page : 688 pages
File Size : 50,5 Mb
Release : 2020-10-08
Category : Medical
ISBN : 1013273672

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The EBMT Handbook by Nicolaus Kröger,Mohamad Mohty,Carlo Dufour Pdf

This Open Access edition of the European Society for Blood and Marrow Transplantation (EBMT) handbook addresses the latest developments and innovations in hematopoietic stem cell transplantation and cellular therapy. Consisting of 93 chapters, it has been written by 175 leading experts in the field. Discussing all types of stem cell and bone marrow transplantation, including haplo-identical stem cell and cord blood transplantation, it also covers the indications for transplantation, the management of early and late complications as well as the new and rapidly evolving field of cellular therapies. This book provides an unparalleled description of current practices to enhance readers' knowledge and practice skills. This work was published by Saint Philip Street Press pursuant to a Creative Commons license permitting commercial use. All rights not granted by the work's license are retained by the author or authors.

Author : Christine Hogg,Bernadette Modell
Publisher : Unknown
Page : 114 pages
File Size : 52,6 Mb
Release : 1998
Category : Sickle cell anemia
ISBN : 0752106244

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Sickle Cell and Thalassaemia by Christine Hogg,Bernadette Modell Pdf

Author : David Worthington (Physician),Yvonne Daniel (Physician),Joan Henthorn,NHS Sickle Cell and Thalassaemia Screening Programme
Publisher : Unknown
Page : 70 pages
File Size : 42,7 Mb
Release : 2012
Category : Genetic screening
ISBN : 0956584683

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Sickle Cell and Thalassaemia by David Worthington (Physician),Yvonne Daniel (Physician),Joan Henthorn,NHS Sickle Cell and Thalassaemia Screening Programme Pdf

Author : David Worthington (Physician),Barbara J. Bain,NHS Sickle Cell and Thalassaemia Screening Programme
Publisher : Unknown
Page : 58 pages
File Size : 50,7 Mb
Release : 2009
Category : Genetic screening
ISBN : 0955431921

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Sickle Cell and Thalassaemia by David Worthington (Physician),Barbara J. Bain,NHS Sickle Cell and Thalassaemia Screening Programme Pdf

Author : Galanello Renzo,Thalassaemia International Federation
Publisher : Unknown
Page : 190 pages
File Size : 42,5 Mb
Release : 2003
Category : Electronic
ISBN : 9963623395

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Prevention of Thalassaemias and Other Haemoglobin Disorders by Galanello Renzo,Thalassaemia International Federation Pdf

Volume 1 of the Prevention Book presents the principles of a programme for the prevention of the thalassaemia and other haemoglobin disorders, including a description of the various types of disorders requiring prenatal diagnosis, the strategies used for carrier screening, and a number of annexes listing upto date epidemiological and mutation data on thalassaemia. This book was written for use in combination with Volume 2, which describes many of the laboratory protocols in great detail.

Author : David Weatherall
Publisher : Oxford University Press
Page : 258 pages
File Size : 44,5 Mb
Release : 2010-08-26
Category : Medical
ISBN : 9780199565603

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Thalassaemia: The Biography by David Weatherall Pdf

Presents a history of thalassemia, a genetic disorder in which the body destroys abnormally-shaped hemoglobin cells at a rate that leads to anemia.

Author : Stephan Lobitz,Jacques Elion,Raffaella Colombatti,Elena Cela
Publisher : MDPI
Page : 160 pages
File Size : 47,5 Mb
Release : 2019-10-07
Category : Medical
ISBN : 9783039216147

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Newborn Screening for Sickle Cell Disease and other Haemoglobinopathies by Stephan Lobitz,Jacques Elion,Raffaella Colombatti,Elena Cela Pdf

Newborn Screening for Sickle Cell Disease and other Haemoglobinopathies is a Special Issue of the International Journal of Neonatal Screening. Sickle cell disease is one of the most common inherited blood disorders, with a huge impact on health care systems due to high morbidity and high mortality associated with the undiagnosed disease. Newborn screening helps to make the diagnosis early and to prevent fatal complications and diagnostic odysseys. This book gives an overview of diagnostic standards in newborn screening for sickle cell disease and examples of existing newborn screening programs.

Author : Lola Oni,Brent Sickle Cell & Thalassaemia Centre
Publisher : Unknown
Page : 38 pages
File Size : 41,7 Mb
Release : 2004
Category : Midwifery
ISBN : 0953190242

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Midwives Introduction to Sickle Cell and Thalassaemia by Lola Oni,Brent Sickle Cell & Thalassaemia Centre Pdf

Author : Martin H. Steinberg
Publisher : Cambridge University Press
Page : 883 pages
File Size : 48,8 Mb
Release : 2009-08-17
Category : Medical
ISBN : 9780521875196

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Disorders of Hemoglobin by Martin H. Steinberg Pdf

Completely revised new edition of the definitive reference on disorders of hemoglobin.

Author : Lola Oni
Publisher : Unknown
Page : 39 pages
File Size : 44,5 Mb
Release : 2004
Category : Electronic
ISBN : 0953190250

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Community Health Care Nurses Introduction to Sickle Cell and Thalassaemia by Lola Oni Pdf

Author : Sue Pavord,Beverley Hunt
Publisher : Cambridge University Press
Page : 128 pages
File Size : 40,7 Mb
Release : 2010-04-15
Category : Medical
ISBN : 9781139487092

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The Obstetric Hematology Manual by Sue Pavord,Beverley Hunt Pdf

Obstetric hematology is a fast-growing area of medicine covering the diagnosis and management of hematological problems of pregnancy. Comprehensive in approach, The Obstetric Hematology Manual addresses the many hematological conditions that can cause serious problems in pregnancy, delivery and the post-partum period for both mother and baby. Written by a team of international authorities, this text provides up-to-date, evidence-based guidelines on best care, as well as sound advice based on the experience and opinion of experts. Where appropriate, basic principles are discussed to clarify the rationale for management, and systems and procedures for disease prevention are highlighted. Many conditions and cases are discussed, including venous thromboembolism, pre-eclampsia, anemia, thrombocytopenia and inherited disorders. This book will appeal to both trainees and practitioners in obstetrics, obstetric medicine, obstetric anesthesia and hematology. It is also an accessible text for midwives, nurses, and laboratory staff.

Author : Chaim Hershko
Publisher : Springer Science & Business Media
Page : 275 pages
File Size : 54,8 Mb
Release : 2012-12-06
Category : Science
ISBN : 9781461505938

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Iron Chelation Therapy by Chaim Hershko Pdf

Within the last few years, iron research has yielded exciting new insights into the under standing of normal iron homeostasis. However, normal iron physiology offers little protec tion from the toxic effects of pathological iron accumulation, because nature did not equip us with effective mechanisms of iron excretion. Excess iron may be effectively removed by phlebotomy in hereditary hemochromatosis, but this method cannot be applied to chronic anemias associated with iron overload. In these diseases, iron chelating therapy is the only method available for preventing early death caused mainly by myocardial and hepatic iron toxicity. Iron chelating therapy has changed the quality of life and life expectancy of thalassemic patients. However, the high cost and rigorous requirements of deferoxamine therapy, and the significant toxicity of deferiprone underline the need for the continued development of new and improved orally effective iron chelators. Such development, and the evolution of improved strategies of iron chelating therapy require better understanding of the pathophysiology of iron toxicity and the mechanism of action of iron chelating drugs. The timeliness of the present volume is underlined by several significant develop ments in recent years. New insights have been gained into the molecular basis of aberrant iron handling in hereditary disorders and the pathophysiology of iron overload (Chapters 1-5).