The Subjectively Perceived Wellbeing Of People With Prader Willi Syndrome

Author : Norbert Hödebeck-Stuntebeck
Publisher : Logos Verlag Berlin GmbH
Page : 130 pages
File Size : 44,8 Mb
Release : 2024-05-15
Category : Psychology
ISBN : 9783832582708

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The Subjectively Perceived Wellbeing of People with Prader-Willi Syndrome by Norbert Hödebeck-Stuntebeck Pdf

Many people work towards a goal of experiencing high levels of wellbeing. However, wellbeing is a highly subjective notion. In order to determine some parameters of such a multifaceted concept, this study introduces five areas representing subjectively perceived wellbeing: positive feelings, engagement (flow), social relationships, meaningfulness, experience of self-efficacy. On the basis of these five areas, diverse methods are then presented that map individual characteristics in the respective areas of people with Prader-Willi syndrome (PWS). Different methods and procedures discussed in this work can contribute to increasing the level of development in each of the areas, enabling the evaluation of existing PWS services, the assessment of development processes and the comparison of services in the PWS area.

Author : Deepan Singh
Publisher : Cambridge University Press
Page : 201 pages
File Size : 50,5 Mb
Release : 2022-06-16
Category : Medical
ISBN : 9781108814393

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Neuro-behavioral Manifestations of Prader-Willi Syndrome by Deepan Singh Pdf

An accessible guidebook for all clinicians and caregivers addressing the neurobehavioral problems associated with Prader-Willi Syndrome.

Author : Louise R. Greenswag,Randell C. Alexander
Publisher : Springer Science & Business Media
Page : 293 pages
File Size : 42,5 Mb
Release : 2012-12-06
Category : Medical
ISBN : 9781468403169

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Management of Prader-Willi Syndrome by Louise R. Greenswag,Randell C. Alexander Pdf

Management of Prader-Willi Syndrome is the first book to provide a comprehensive source of knowledge about Prader-Willi Syndrome and to offer common-sense guidelines for management. It consists of contributions from professionals in many health and allied disciplines who have worked with this special population. The book focuses on clinical, social, familial, and community issues related to care. It is directed to health, education, and other specialists in academic, clinical, and community settings. Management of Prader-Willi Syndrome describes strategies for management which are appropriate to an interdisciplinary approach.

Author : Anonim
Publisher : Unknown
Page : 1846 pages
File Size : 40,7 Mb
Release : 1999
Category : Medicine
ISBN : OSU:32436010790556

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Cumulated Index Medicus by Anonim Pdf

Author : Gregory O'Brien,William Yule
Publisher : Cambridge University Press
Page : 236 pages
File Size : 55,5 Mb
Release : 1995
Category : Medical
ISBN : 1898683069

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Behavioural Phenotypes by Gregory O'Brien,William Yule Pdf

A timely distillation of current thinking on the presentation of behavioural disorders and their origins.

Author : Irene Cormac,David Gray
Publisher : RCPsych Publications
Page : 500 pages
File Size : 49,9 Mb
Release : 2012-12
Category : Medical
ISBN : 1908020407

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Essentials of Physical Health in Psychiatry by Irene Cormac,David Gray Pdf

Psychiatrists tend to focus on mental health of their patients, sometimes at the expense of their physical health. This gives practical information on the physical health topics that are most relevant to people with mental disorders and helps psychiatrists to increase their confidence in managing these and knowing when to refer to a specialist.

Author : Fleur Heleen Boot,Julia S. Louw,Hung Jen Kuo,Roy Chen
Publisher : Frontiers Media SA
Page : 51 pages
File Size : 52,8 Mb
Release : 2019-09-23
Category : Electronic
ISBN : 9782889459957

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Intellectual Disability and Assistive Technology by Fleur Heleen Boot,Julia S. Louw,Hung Jen Kuo,Roy Chen Pdf

The capacity of assistive technology (AT) to improve the lives of individuals with disabilities is well documented. Although promising, it is not without challenges. Historically, devices that provide mobility aids and physical supports dominate the world of AT; however, AT solution that specifically aims to address cognitive needs is scarce. The inequality of AT accessibility has left populations such as individuals with intellectual disability (ID) behind these potential benefits. This book presents six articles that highlight the need, impact, and possibilities of AT for people with ID. With the emphasis on the multidisciplinary perspectives, the objective of the book is to facilitate a better understanding of the needs of people with ID and the potential AT influences. Ultimately, we hope this book will shed some lights on this important topic and provoke more discussions and efforts devoted to improving the lives of individuals with ID through the use of AT.

Author : Merlin Butler,Phillip D.K. Lee,Barbara Y. Whitman
Publisher : Springer Science & Business Media
Page : 569 pages
File Size : 51,7 Mb
Release : 2006-10-11
Category : Medical
ISBN : 9780387335360

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Management of Prader-Willi Syndrome by Merlin Butler,Phillip D.K. Lee,Barbara Y. Whitman Pdf

Management of Prader-Willi Syndrome brings together the contributions of professionals with considerable expertise in diagnosis and management of PWS. Clinical, social, family, and community issues are explored and management strategies identified. The text presents historical, medical, and genetic information to orient the reader. The major portion deals with pragmatic guidelines, rather than research and diagnosis, and is directed to health and educational specialists in academic, clinical, and community settings. This manual is endorsed by The Prader-Willi Syndrome Association, which is recognized world-wide.

Author : Anonim
Publisher : National Library Australia
Page : 1106 pages
File Size : 54,6 Mb
Release : 2024-06-30
Category : Electronic
ISBN : 8210379456XXX

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APAIS 1994: Australian public affairs information service by Anonim Pdf

Author : David D. Eisenstat,Dan Goldowitz,Tim F. Oberlander,Jerome Y. Yager
Publisher : Springer Nature
Page : 816 pages
File Size : 46,8 Mb
Release : 2023-02-22
Category : Medical
ISBN : 9783031207921

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Neurodevelopmental Pediatrics by David D. Eisenstat,Dan Goldowitz,Tim F. Oberlander,Jerome Y. Yager Pdf

This book explores the interrelationship of genetics, the environment, or both, in the causation of three neurodevelopmental disorders: autism/autism spectrum disorder (ASD), fetal alcohol spectrum disorder (FASD), and cerebral palsy (CP). It links common clinical problems in developmental pediatrics and pediatric neurology to current concepts and translational research advances in developmental neurosciences, medical genetics, and related disciplines. The first section of the book provides a comprehensive and up-to-date overview of development of the brain, including topics such as neuronal stem cells, epigenetics, and the influence of the prenatal environment. The next three sections analyze the epidemiology, diagnosis, interventions, and controversies and research directions associated with each of the three neurodevelopmental disorders. It also examines co-morbidities common to all three disorders, such as disturbed sleep, seizures, behavioral disorders, and pain. It concludes by highlighting the impact of ASD, FASD, and CP on family dynamics and provides tools and resources based on foundational concepts such as neuroethics, bioinformatics, community engagement, and advocacy. Learning objectives, key points, clinical vignettes, and multiple choice questions are incorporated throughout the book. With its comprehensive treatment of disease mechanisms, genetics, and pathophysiology associated with these disorders and its discussion of potential therapies and novel treatments, Neurodevelopmental Pediatrics: Genetic and Environmental Influences is an essential resource for developmental pediatricians, child neurologists, fellows, residents and graduate students.

Author : Institute of Medicine,Board on Health Sciences Policy,Committee on Sleep Medicine and Research
Publisher : National Academies Press
Page : 425 pages
File Size : 44,5 Mb
Release : 2006-10-13
Category : Medical
ISBN : 9780309101110

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Sleep Disorders and Sleep Deprivation by Institute of Medicine,Board on Health Sciences Policy,Committee on Sleep Medicine and Research Pdf

Clinical practice related to sleep problems and sleep disorders has been expanding rapidly in the last few years, but scientific research is not keeping pace. Sleep apnea, insomnia, and restless legs syndrome are three examples of very common disorders for which we have little biological information. This new book cuts across a variety of medical disciplines such as neurology, pulmonology, pediatrics, internal medicine, psychiatry, psychology, otolaryngology, and nursing, as well as other medical practices with an interest in the management of sleep pathology. This area of research is not limited to very young and old patientsâ€"sleep disorders reach across all ages and ethnicities. Sleep Disorders and Sleep Deprivation presents a structured analysis that explores the following: Improving awareness among the general public and health care professionals. Increasing investment in interdisciplinary somnology and sleep medicine research training and mentoring activities. Validating and developing new and existing technologies for diagnosis and treatment. This book will be of interest to those looking to learn more about the enormous public health burden of sleep disorders and sleep deprivation and the strikingly limited capacity of the health care enterprise to identify and treat the majority of individuals suffering from sleep problems.

Author : Anonim
Publisher : Newnes
Page : 5036 pages
File Size : 44,8 Mb
Release : 2008-09-01
Category : Science
ISBN : 9780444522726

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Encyclopedia of Environmental Health by Anonim Pdf

Environmental health has evolved over time into a complex, multidisciplinary field. Many of the key determinants and solutions to environmental health problems lie outside the direct realm of health and are strongly dependent on environmental changes, water and sanitation, industrial development, education, employment, trade, tourism, agriculture, urbanization, energy, housing and national security. Environmental risks, vulnerability and variability manifest themselves in different ways and at different time scales. While there are shared global and transnational problems, each community, country or region faces its own unique environmental health problems, the solution of which depends on circumstances surrounding the resources, customs, institutions, values and environmental vulnerability. This work contains critical reviews and assessments of environmental health practices and research that have worked in places and thus can guide programs and economic development in other countries or regions. The Encyclopedia of Environmental Health, Five Volume Set seeks to conceptualize the subject more clearly, to describe the best available scientific methods that can be used in characterizing and managing environmental health risks, to extend the field of environmental health through new theoretical perspectives and heightened appreciation of social, economic and political contexts, and to encourage a richer analysis in the field through examples of diverse experiences in dealing with the health-environment interface. The Encyclopedia of Environmental Health contains numerous examples of policy options and environmental health practices that have worked and thus can guide programs in other countries or regions It includes a wide range of tools and strategies that can assist communities and countries in assessing environmental health conditions, monitoring progress of intervention implementation and evaluating outcomes Provides a comprehensive overview of existing knowledge in this emerging field Articles contain summaries and assessments of environmental health practices and research, providing a framework for further research Places environmental health in the broader context of environmental change and related ecological, political, economic, social, and cultural issues

Author : Anonim
Publisher : Elsevier
Page : 328 pages
File Size : 44,6 Mb
Release : 2022-09-25
Category : Psychology
ISBN : 9780323988841

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Contemporary Issues in Evaluating Treatment in Neurodevelopmental Disorders by Anonim Pdf

Contemporary Issues in Evaluating Treatment in Neurodevelopmental Disorders, Volume 62 in the International Review of Research in Developmental Disabilities series, highlights new advances in the field, with this new volume presenting interesting chapters on topics such as Considerations for measuring individual outcomes across contexts in Down syndrome: Implications for research and clinical trials, Remotely Monitoring Development and Treatment Outcomes in Families affected by IDD, Psychometric perspectives on developmental outcome and endpoint selection in treatment trials for genetic conditions associated with neurodevelopmental disorder, Evaluating Outcomes within Culturally Diverse Contexts for Children and Youth with Developmental Disabilities, and much more. Other chapters in this release cover Measurement of Social Skills Treatment Outcome in Autism: Moving Beyond Informant Report and Considering Diversity, Cognitive Outcome Measures for tracking Alzheimer's Disease in Down syndrome, A Scoping Review of Psychosocial Interventions for Neurogenetic Conditions across the Lifespan, Clinical Trials and Outcome Measures: Lessons Learned from Chromosome 15 disorders, and more. Provides the authority and expertise of leading contributors from an international board of authors Presents the latest release in the International Review of Research in Developmental Disabilities series

Author : Adelle M. Cadieux
Publisher : Springer
Page : 159 pages
File Size : 47,8 Mb
Release : 2017-04-18
Category : Psychology
ISBN : 9783319559247

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Assessing and Treating Pediatric Obesity in Neurodevelopmental Disorders by Adelle M. Cadieux Pdf

This book reviews strategies for assessing and treating pediatric obesity in children with neurodevelopmental disorders (ND). It synthesizes empirical findings and clinical strategies to offer the latest knowledge in key areas, including risk factors, physical activity, nutrition, treatment planning, goal-setting, and engagement with patients. A four-stage treatment model presents clinical guidance in triaging treatment and tailoring interventions to children’s changing medical, behavioral, emotional, and cognitive needs. The book complements current pediatric ND literature by presenting clear guidelines for integrating treatment for obesity into existing treatment of these young patients. Topics featured in this book include: The effect of neurodevelopmental disorders on the assessment of obesity in children. The impact of developmental delays on physical activities and health behaviors. Strategies for promoting weight management goals in pediatric ND. Suggestions on how to engage and support families and caregivers. The role of prevention in weight management within pediatric ND. Assessing and Treating Pediatric Obesity in Neurodevelopmental Disorders is a must-have resource for clinicians, scientist-practitioners, and related professionals as well as researchers, professors, and graduate students in clinical child and school psychology, public health, social work, pediatrics, occupational therapy, and nutrition.

Author : Michael L. Wehmeyer
Publisher : Oxford University Press
Page : 561 pages
File Size : 54,6 Mb
Release : 2013-09-19
Category : Medical
ISBN : 9780195398786

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The Oxford Handbook of Positive Psychology and Disability by Michael L. Wehmeyer Pdf

This handbook is the first comprehensive text on positive psychology and disability. Emphasizing paradigmatic changes in understanding disability, the text covers traditional disciplines in positive psychology; and applications of positive psychology to domains like education or work.