Thinking Through Dementia

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Thinking about Dementia

Annette Leibing,Lawrence Cohen
Thinking about Dementia Book PDF

Author : Annette Leibing,Lawrence Cohen
Publisher : Rutgers University Press
Page : 263 pages
File Size : 53,9 Mb
Release : 2006
Category : Health & Fitness
ISBN : 9780813538037

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Thinking about Dementia by Annette Leibing,Lawrence Cohen Pdf

Cultural responses to most illnesses differ; dementia is no exception. These responses, together with a society's attitudes toward its elderly population, affect the frequency of dementia-related diagnoses and the nature of treatment. Bringing together essays by nineteen respected scholars, this unique volume approaches the subject from a variety of angles, exploring the historical, psychological, and philosophical implications of dementia. Based on solid ethnographic fieldwork, the essays employ a cross-cultural perspective and focus on questions of age, mind, voice, self, loss, temporality, memory, and affect. Taken together, the essays make four important and interrelated contributions to our understanding of the mental status of the elderly. First, cross-cultural data show the extent to which the aging process, while biologically influenced, is also very much culturally constructed. Second, detailed ethnographic reports raise questions about the behavioral criteria used by health care professionals and laymen for defining the elderly as demented. Third, case studies show how a diagnosis affects a patient's treatment in both clinical and familial settings.; Finally, the collection highlights the gap that separates current biological understandings of aging from its cultural meanings. As Alzheimer's disease and other forms of dementia continue to command an ever-increasing amount of attention in medicine and psychology, this book will be essential reading for anthropologists, social scientists, and health care professionals.

Thinking Through Dementia

Julian C. Hughes
Thinking Through Dementia Book PDF

Author : Julian C. Hughes
Publisher : OUP Oxford
Page : 320 pages
File Size : 47,6 Mb
Release : 2011-02-17
Category : Medical
ISBN : 9780191019845

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Thinking Through Dementia by Julian C. Hughes Pdf

With a rapidly expanding elderly population, there has been a marked increase in the incidence of dementia, and this dreadful, debilitating illness now affects - directly or indirectly - millions of people across the world. Dementia throws up a number of particular clinical, ethical, and conceptual problems, which mostly reflect complicated evaluative decisions, for instance about diagnosis and the distinction between normal and abnormal ageing. Different disciplines approach dementia in different ways - thus there are disease, cognitive neuropsychology, and social constructivist models of dementia, Underlying these models and approaches, each of which is clinically useful, are various and differing conceptual committments. These models carry ethical implications concerning how we ought to treat people suffereing from dementia. Thinking through Dementia offers a critique of the main models used to understand dementia-the biomedical, neuropsychological, and social constructionist. It discusses both clinical issues and cases, together with philosophical work that might help us better understand and treat this illness. Drawing on philosophical critique of models of dementia, as well as empirical data and clinical experience, the book unifies the biological, psychological, and social accounts of illness and disease. Highly original and thought provoking, this book will interest psychiatrists, philosophers, psychologists, and anyone involved in the care and management of those with dementia.

Five Minutes of Amazing

Chris Graham,Wendy Holden
Five Minutes of Amazing Book PDF

Author : Chris Graham,Wendy Holden
Publisher : Sphere
Page : 183 pages
File Size : 55,7 Mb
Release : 2016-09-22
Category : Biography & Autobiography
ISBN : 9780751565423

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Five Minutes of Amazing by Chris Graham,Wendy Holden Pdf

This story poses a profound question - do we accept the hand that fate deals us, or do we battle to make the most of the life we have and help others in the process? Chris Graham, just 38 years old but already facing the advanced stages of Alzheimer's disease, has emphatically chosen the latter. Having lived through a troubled childhood, Chris joined the British Army at a young age and found that the life of a soldier provided him with a much-needed sense of stability. However, his world was turned upside down when, at just 34 years of age, he was diagnosed with a form of early onset dementia. This brutal disease had already claimed the life of his father at 42, along with several other members of his family, and tragically had already confined his brother to a nursing home at the age of 43. In his brother's life, Chris could see a terrifying window into his own near future. Chris, though, is an extraordinary human being. Having been handed nothing less than a death sentence, he decided overnight to stand up to this horrendous disease and do something to leave his mark before it was too late. And so it was that last year, Chris embarked on an awareness-raising 16,000-mile solo cycle around North America, armed only with his bike, a sense of humour, and some good old-fashioned British grit. Leaving his ever-supportive wife Vicky and baby son Dexter at home, he took on huge challenges - for instance, the fear that the ability to discern left from right might leave him at any point while navigating an entire continent - and made it home in time for Christmas, determined to spending however long he has left pouring his love and attention into his family life. Five Minutes of Amazing is both the story of Chris' epic journey and of his fight against the disease increasingly being recognised as the defining disease of our generation. Inspiring and heart-rending in equal measure, it's as important as it is moving, and it will touch everyone who reads it.

Thinking Through Dementia

Julian C. Hughes
Thinking Through Dementia Book PDF

Author : Julian C. Hughes
Publisher : Oxford University Press
Page : 317 pages
File Size : 55,6 Mb
Release : 2011-02-17
Category : Medical
ISBN : 9780199570669

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Thinking Through Dementia by Julian C. Hughes Pdf

Dementia affects millions of people throughout the world. 'Thinking Through Dementia' offers a critique of the main models used to understand dementia. It discusses clinical issues and cases, together with philosophical work that might help us to better understand and treat this illness.

How We Think About Dementia

Julian C. Hughes
How We Think About Dementia Book PDF

Author : Julian C. Hughes
Publisher : Jessica Kingsley Publishers
Page : 240 pages
File Size : 53,5 Mb
Release : 2014-07-21
Category : Medical
ISBN : 9780857008558

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How We Think About Dementia by Julian C. Hughes Pdf

Exploring concepts of ageing, personhood, capacity, liberty, best interests and the nature and ethics of palliative care, this book will help those in the caring professions to understand and engage with the thoughts and arguments underpinning the experience of dementia and dementia care. Dementia is associated with ageing: what is the significance of this? People speak about person-centred care, but what is personhood and how can it be maintained? What is capacity, and how is it linked with the way a person with dementia is cared for as a human being? How should we think about the law in relation to the care of older people? Is palliative care the right approach to dementia, and if so what are the consequences of this view? What role can the arts play in ensuring quality of life for people with dementia? In answering such questions, Julian Hughes brings our attention back to the philosophical and ethical underpinnings of dementia care, shedding new light on the significance and implications for those in the caring professions, academics and researchers, and those living with dementia and their families.

On Vanishing

Lynn Casteel Harper
On Vanishing Book PDF

Author : Lynn Casteel Harper
Publisher : Catapult
Page : 126 pages
File Size : 44,7 Mb
Release : 2020-04-14
Category : Social Science
ISBN : 9781948226295

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On Vanishing by Lynn Casteel Harper Pdf

A New York Times Book Review Editors’ Choice An essential book for those coping with Alzheimer’s and other cognitive disorders that “reframe[s] our understanding of dementia with sensitivity and accuracy . . . to grant better futures to our loved ones and ourselves” (The New York Times). An estimated fifty million people in the world suffer from dementia. Diseases such as Alzheimer's erase parts of one's memory but are also often said to erase the self. People don't simply die from such diseases; they are imagined, in the clichés of our era, as vanishing in plain sight, fading away, or enduring a long goodbye. In On Vanishing, Lynn Casteel Harper, a Baptist minister and nursing home chaplain, investigates the myths and metaphors surrounding dementia and aging, addressing not only the indignities caused by the condition but also by the rhetoric surrounding it. Harper asks essential questions about the nature of our outsized fear of dementia, the stigma this fear may create, and what it might mean for us all to try to “vanish well.” Weaving together personal stories with theology, history, philosophy, literature, and science, Harper confronts our elemental fears of disappearance and death, drawing on her own experiences with people with dementia both in the American healthcare system and within her own family. In the course of unpacking her own stories and encounters—of leading a prayer group on a dementia unit; of meeting individuals dismissed as “already gone” and finding them still possessed of complex, vital inner lives; of witnessing her grandfather’s final years with Alzheimer’s and discovering her own heightened genetic risk of succumbing to the disease—Harper engages in an exploration of dementia that is unlike anything written before on the subject. A rich and startling work of nonfiction, On Vanishing reveals cognitive change as it truly is, an essential aspect of what it means to be mortal.

I Was Thinking

Diana Waugh
I Was Thinking Book PDF

Author : Diana Waugh
Publisher : Lulu.com
Page : 60 pages
File Size : 51,9 Mb
Release : 2008-03-01
Category : Family & Relationships
ISBN : 9781435710511

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I Was Thinking by Diana Waugh Pdf

I WAS THINKING is a workbook that helps people better communicate with their loved ones suffering with cognitive loss. It is a guide that can lead to happy, calm conversations. The information discussed in this book may be new and different from what you have heard before. However, it truly has the potential of reconnecting you with a loved one you may have felt was lost to you because of cognitive loss.

The Last Ocean

Nicci Gerrard
The Last Ocean Book PDF

Author : Nicci Gerrard
Publisher : Penguin
Page : 272 pages
File Size : 49,5 Mb
Release : 2019-08-13
Category : Biography & Autobiography
ISBN : 9780525521976

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The Last Ocean by Nicci Gerrard Pdf

From the award-winning journalist and author, a lyrical, raw and humane investigation of dementia that explores both the journeys of the people who live with the condition and those of their loved ones After a diagnosis of dementia, Nicci Gerrard’s father, John, continued to live life on his own terms, alongside the disease. But when an isolating hospital stay precipitated a dramatic turn for the worse, Gerrard, an award-winning journalist and author, recognized that it was not just the disease, but misguided protocol and harmful practices that cause such pain at the end of life. Gerrard was inspired to seek a better course for all who suffer because of the disease. The Last Ocean is Gerrard’s investigation into what dementia does to both the person who lives with the condition and to their caregivers. Dementia is now one of the leading causes of death in the West, and this necessary book will offer both comfort and a map to those walking through it. While she begins with her father’s long slip into forgetting, Gerrard expands to examine dementia writ large. Gerrard gives raw but literary shape both to the unimaginable loss of one’s own faculties, as well as to the pain of their loved ones. Her lens is unflinching, but Gerrard honors her subjects and finds the beauty and the humanity in their seemingly diminished states. In so doing, she examines the philosophy of what it means to have a self, as well as how we can offer dignity and peace to those who suffer with this terrible disease. Not only will it aid those walking with dementia patients, The Last Ocean will prompt all of us to think on the nature of a life well lived.

Dementia and Ethics Reconsidered

Julian Hughes
Dementia and Ethics Reconsidered Book PDF

Author : Julian Hughes
Publisher : McGraw-Hill Education (UK)
Page : 312 pages
File Size : 49,8 Mb
Release : 2023-05-30
Category : Medical
ISBN : 9780335251018

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Dementia and Ethics Reconsidered by Julian Hughes Pdf

“In this masterful book, Julian Hughes makes a convincing case that many acts in clinical and care practice are ethical matters. Hughes takes us gently through a jungle of philosophical ideas and explores a series of ethical issues in dementia care, such as diagnosis, covert medication and end of life care. His humanity shines through as he favours a values-based approach to care, and concludes by declaring (in the spirit of Tom Kitwood) that the person must be placed first in order to do what is right and good for people living with dementia. A must-have volume for practitioners, social scientists and enlightened general readers.” Tom Dening, Professor of Dementia Research, School of Medicine, University of Nottingham, UK “This book is totally brilliant. The outstanding author Dr. Julian Hughes must now be considered the foremost ethicist of his generation when it comes to caring for individuals with dementia … This is now the book that everyone who cares about dementia and ethics must read, discuss, and implement. It is a huge contribution.” Stephen G. Post PhD, Director, Center for Medical Humanities, Compassionate Care & Bioethics Stony Brook University School of Medicine, USA “This book should be an essential read for all of us who support and navigate the ethical issues relating to people with dementia and their families.” Paul Edwards, Director of Clinical Services, Dementia UK Ethical issues are involved in every decision that is made in connection with someone living with dementia – from decisions about care and treatment to decisions about research and funding. This book encourages the reader to reconsider ethics in dementia care with the use of ‘patterns of practice’, an innovative idea developed by the author. The book highlights the importance of understanding the person’s narrative, of good communication, high quality care, and expert interpretation of the meaning of situations for people living with dementia. This book: • Reviews ethical theories and approaches in connection with dementia care • Considers issues such as such as stigma, quality of life, personhood, and citizenship in relation to dementia • Looks at issues relevant to research ethics • Presents case vignettes to highlight a complete spectrum of ethical issues that arise in dementia care • Is accessibly written for multiple audiences – from people living with dementia to practitioners Dementia and Ethics Reconsidered is a comprehensive account of thought and practice in relation to ethical issues that arise in the context of dementia care, which seeks to show how ethical thinking can be put into practice and prove relevant to day-to-day experience. The Reconsidering Dementia Series is an interdisciplinary series published by Open University Press that covers contemporary issues to challenge and engage readers in thinking deeply about the topic. The dementia fi eld has developed rapidly in its scope and practice over the past ten years and books in this series will unpack not only what this means for the student, academic and practitioner, but also for all those affected by dementia. Series Editors: Dr Keith Oliver and Professor Dawn Brooker MBE. Julian C. Hughes was a consultant in old age psychiatry. Having trained in both philosophy and medicine, he was appointed honorary professor of philosophy of ageing at Newcastle University, UK and subsequently professor of old age psychiatry at the University of Bristol, UK. He was deputy chair of the Nuffield Council on Bioethics, UK.

Loving Someone Who Has Dementia

Pauline Boss
Loving Someone Who Has Dementia Book PDF

Author : Pauline Boss
Publisher : John Wiley & Sons
Page : 256 pages
File Size : 44,6 Mb
Release : 2011-06-24
Category : Psychology
ISBN : 9781118077283

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Loving Someone Who Has Dementia by Pauline Boss Pdf

Research-based advice for people who care for someone with dementia Nearly half of U.S. citizens over the age of 85 are suffering from some kind of dementia and require care. Loving Someone Who Has Dementia is a new kind of caregiving book. It's not about the usual techniques, but about how to manage on-going stress and grief. The book is for caregivers, family members, friends, neighbors as well as educators and professionals—anyone touched by the epidemic of dementia. Dr. Boss helps caregivers find hope in "ambiguous loss"—having a loved one both here and not here, physically present but psychologically absent. Outlines seven guidelines to stay resilient while caring for someone who has dementia Discusses the meaning of relationships with individuals who are cognitively impaired and no longer as they used to be Offers approaches to understand and cope with the emotional strain of care-giving Boss's book builds on research and clinical experience, yet the material is presented as a conversation. She shows you a way to embrace rather than resist the ambiguity in your relationship with someone who has dementia.

Alzheimer's Disease and Dementia

Steven R. Sabat
Alzheimer s Disease and Dementia Book PDF

Author : Steven R. Sabat
Publisher : Oxford University Press
Page : 273 pages
File Size : 52,5 Mb
Release : 2018
Category : Medical
ISBN : 9780190603106

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Alzheimer's Disease and Dementia by Steven R. Sabat Pdf

Sabat provides information about Alzheimer's and other dementia diseases, and also discusses the psychological and social strengths possessed by people diagnosed. By identifying and using those strengths, readers can improve the quality of life in non-pharmacological ways.

Dementia

Julian C. Hughes,Stephen J. Louw,Steven R. Sabat
Dementia Book PDF

Author : Julian C. Hughes,Stephen J. Louw,Steven R. Sabat
Publisher : International Perspectives in
Page : 326 pages
File Size : 49,9 Mb
Release : 2006
Category : Medical
ISBN : 9780198566144

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Dementia by Julian C. Hughes,Stephen J. Louw,Steven R. Sabat Pdf

This study juxtaposes philosophical analysis and clinical experience to present an overview of the issues surrounding dementia. It conveys a strong ethical message, arguing in favour of treating people with dementia with all the dignity they deserve as human beings.

Navigating Life with Dementia

James M. Noble
Navigating Life with Dementia Book PDF

Author : James M. Noble
Publisher : Oxford University Press
Page : 305 pages
File Size : 47,5 Mb
Release : 2022
Category : Medical
ISBN : 9780190495688

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Navigating Life with Dementia by James M. Noble Pdf

"Since you have opened this book, you or a close friend or family member have likely been impacted by the upsetting and frightening diagnosis of dementia. You may have been told about this diagnosis in a number of different ways. Either the term dementia was used, or other words associated with or more specific than dementia, such as Alzheimer's disease, vascular dementia, Lewy Body disease, frontotemporal dementia, or Pick's disease, were used. You may even have been misinformed at first and told that you were simply facing the normal changes of aging, such as forgetfulness or mild depression. Sometimes these terms are relatable based on others we know who have been affected by them. But they can be shocking to hear and hard to understand when talking about yourself or a loved one. Even more difficult is that none of the most common forms of dementia currently have treatments that can cure or slow the disease"--

Design for People Living with Dementia

Paul A. Rodgers
Design for People Living with Dementia Book PDF

Author : Paul A. Rodgers
Publisher : Routledge
Page : 371 pages
File Size : 45,5 Mb
Release : 2022-05-05
Category : Design
ISBN : 9781000568653

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Design for People Living with Dementia by Paul A. Rodgers Pdf

This book presents the latest research that shows how design thinking, making, and acting contribute to the co-designing and development of products, spaces, and services with people living with dementia. We know that there is currently no cure for the 130+ kinds of dementia that millions of people live with all over the world, but the designed interventions such as the products, spaces, and services described in this book can address stigma, isolation, loss of confidence, and raise awareness and greater understanding of dementia. This book showcases a range of innovative and creative design interventions that have been developed to break the cycle of well-established opinions, strategies, mindsets, and ways of doing that tend to remain unchallenged in the health and social care of people living with dementia. The book will be of interest to scholars working in product design, service design, experience design, architecture, design research, information design, user-centred design, and design for health.

A Deeper Perspective on Alzheimer's and other Dementias

Megan Carnarius
A Deeper Perspective on Alzheimer s and other Dementias Book PDF

Author : Megan Carnarius
Publisher : Simon and Schuster
Page : 192 pages
File Size : 54,5 Mb
Release : 2015-02-23
Category : Health & Fitness
ISBN : 9781844098286

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A Deeper Perspective on Alzheimer's and other Dementias by Megan Carnarius Pdf

Soul-searing, life-testing situations have what some call “fall-out blessings.” The book is about understanding some of the deeper lessons we are exposed to through caring for individuals with Alzheimer’s and other types of dementia. We all want a cure. But in the meantime, while this illness is still with us, how can we create a quality of life for each person in each stage of the disease? How can we look deeper into situations that, at first glance, look hopeless and destructive in order to find opportunities for insight, inspiration, and great understanding of ourselves and those we love? How can we allow the full measure of the experience to unfold and be felt with as much of ourselves as we can bring to bear? This book will help people caring for those going through the difficult dementia journey find a way, through the tumultuous waves, to remain awake and open to the blessing of a journey that opens the heart, nurtures compassion, and ultimately enables each of us to be better human beings. It is also for those brave individuals living with memory loss illnesses, so that they be supported and allowed to live their experience fully in their own unique way, to express themselves, to love and be loved, and to be sheltered from harm—that with each stage of the progression, those around the person with dementia find ways to emphasize the loved one’s remaining strengths rather than spotlight their weaknesses. A person with dementia has a whole and well spirit and, in the broadest sense, their brain is a vehicle of self-expression; it does not define their essence. Finally, this book addresses head on the final stage of the disease, when the brain has exhausted all its compensatory ability and the individual is no longer able to take part in regular day-to-day life. At this advanced stage of the disease process, people with dementia are in a deep, internal state that caregivers generally cannot access and share. It can be a very disheartening time. This internal state separates the person with dementia from those around them; however, rather than thinking of it as a prison wall separating the person with dementia from the caregiver, it may be more helpful to think of the person having retreated into a cloistered existence for a while, affording them the time needed by the soul to attend to deeper aspect of the self on a spiritual level. This phase also allows those around the person to honor the vessel, or body, that has housed the loved in in this life and prepare to let them go. When ready the individual will know the time to leave, and if allowed, will let go. Coming from a rich professional background in caring, Megan Carnarius clearly outlines the different stages of dementia and highlights many practical aspects of dementia care, suggesting accessible tools for family and professionals alike. She also addresses the more subtle, spiritual dimensions of this illness with much compassion and understanding, offering new insights into areas that have not been explored in other books on the disease.