Contemporary And Innovative Practice In Palliative Care
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Contemporary and Innovative Practice in Palliative Care by Esther Chang,Amanda Johnson Pdf
This book is designed to provide a comprehensive insight unto the key and most prevalent contemporary issues associated with palliation. The reader will find viewpoints that are challenging and sometimes discerning, but at the same time motivating and thought-provoking in the care of persons requiring palliation. This book is divided into three sections. Section 1 examines contemporary practice; Section 2 looks at the challenges in practice; Section 3 discusses models of care. This book is an excellent resource for students, practising clinicians and academics. By reading the book, reflecting on the issues, challenges and opportunities ahead, we hope it will create within the reader a passion to take on, explore and further develop their palliative care practice.
Collaborative Practice in Palliative Care by Dave Roberts,Laura Green Pdf
Collaborative Practice in Palliative Care explores how different professions work collaboratively across professional, institutional, social, and cultural boundaries to enhance palliative care. Analysing palliative care as an interaction between different professionals, clients, and carers, and the social context or community within which the interaction takes place, it is grounded in up-to-date evidence, includes global aspects of palliative care and cultural diversity as themes running throughout the book, and is replete with examples of good and innovative practice. Drawing on experiences from within traditional specialist palliative care settings like hospices and community palliative care services, as well as more generalist contexts of the general hospital and primary care, this practical text highlights the social or public health model of palliative care. Designed to support active learning, it includes features such as case studies, summaries, and pointers to other learning resources. This text is an important reference for all professionals engaged in palliative care, particularly those studying for post-qualification programmes in the area.
"It has been a true pleasure to have had the opportunity to peruse the second edition ofPalliative Care Nursing.... This book, authored predominately by UK-based experts, succeeds in presenting sophisticated thoughts in readily accessible language… Each chapter begins with a summary of key points, with both classic and new relevant literature well integrated into the text. I have also been particularly impressed with the editors’ final chapter, in which they synthesize a number of crucial issues for the future development of palliative care… this second edition makes a significant contribution to both the palliative care literature as well as to nursing literature." Carol Tishelman, Karolinska Institutet, Stockholm, Sweden "I findPalliative Care Nursinga very attractive book for nurses but also for other disciplines to learn about nursing and to learn about palliative care. The book is voluminous, informative and educationally well constructed. Frameworks and models in this book will give nurses the opportunity to make up their own process to offer support and be a carer for the incurably ill person and his/her family as a skilled companion…. This book gives the possibility for nurses to spread one clear voice about palliative care nursing. Congratulations to all the authors…." Martine De Vlieger, Palliatieve Hulpverlening Antwerpen v.z.w., University of Antwerp, Belgium "This book should be compulsory reading for nurses and other health care workers who are involved in the care of people in the final stages of life. It provides a comprehensive account of the major issues (clinical, professional, sociological and political) that confront contemporary palliative care while also offering strategies to move forward. The ‘real world’ of palliative care is described and critiqued and the rhetoric is dispensed with. This book is a vital resource for nursing practice, learning and teaching." Associate Professor, Peter Hudson (RN, PhD). Director of the Centre for Palliative Care Research and Education, St Vincent’s Hospital and The University of Melbourne, Australia. "This is an excellent book for anyone completing either an academic qualification or who wants to understand the who, what and where of palliative care both in the UK and abroad. Its detail is balanced with case studies and practical illustrations that bring the academic nature of its writing to life...For reference purposes for anyone completing academic work it has to be an absolute must." Nursing Times The second edition of this innovative textbook has been extensively revised and updated to reflect new global developments in palliative care. This textbook reviews current research and examines the evidence base for palliative care policy and practice. Over a third of the chapters are newly commissioned from leading international contributors. Building on the widely acclaimed original edition, the textbook focuses on palliative care for adults in a variety of care environments. The first three sections use a novel framework – the trajectory of life-limiting illness – to cover key issues including: What happens to people as they become ill How individuals cope as they near death and are dying How families and friends deal with bereavement and loss The final section addresses contemporary issues in nursing and inter-professional working. The book is written with helpful overviews and in an informative and reader-friendly style. There are numerous examples of clinical situations and research studies which are examined in depth to illustrate debates in palliative care. The textbook spans the range of end-of-life contexts which are of relevance to practitioners, educationalists and researchers. Palliative Care Nursingis essential reading for post-qualification nursing students and all nurses and health and social care professionals who provide care to people with advanced illness and those who are near the end of life. This broad ranging critical text will be invaluable to students and practitioners working with people and their families near the end of life.
Palliative Care Nursing: Principles and Evidence for Practice by Catherine Walshe,Nancy Preston,Bridget Johnston Pdf
What can nurses do to support those receiving palliative care? How do you ensure clear communication and maintain patients’ and families’ preferences? Palliative Care Nursing is essential reading for nursing students, professional nurses and other health and social care professionals providing supportive and palliative care to those with advanced illness or who are towards the end of life. This third edition of the acclaimed textbook has been extensively revised and examines important research studies, key debates around care and strategies to advance palliative care nursing. In four sections, the book covers key elements of nursing practice towards the end of life: • Defining the palliative care patient • Providing palliative nursing care • Caring around the time of death • Challenging issues in palliative care nursing Leading authors address contemporary issues and explore how to provide high quality person-centred palliative care, encouraging application to practice through exercises and case studies. Chapters completely reworked or new for this edition include those on communication, living with uncertainty, bereavement care, the costs of caring, nurses’ decision-making and capacity, and palliative care worldwide. The clarity of evidence presented and coverage of a diverse range of topics make this the foundational textbook for all studying palliative care at pre-registration level, postgraduate level or as part of CPD study. With a foreword by last edition editor, Professor Sheila Payne, Lancaster University, UK. ‘I welcome this third edition of Palliative Care Nursing and congratulations to the new team who have provided us with a dynamic and innovative development of a core text for palliative nursing practice. As the largest workforce in palliative care, and given the changing face of clinical practice for nurses, including increased educational opportunity and expanding roles and responsibilities, this book is timely in its focus on critical issues which frame and scope the reality of palliative care and the nursing contribution to that discipline. The learning exercises, in particular, offer tools for educators and clinicians to reflect on practice and understand new ways of knowing in palliative care. It will be an excellent resource for nursing, both in the UK and Ireland and to the wider international audience, having drawn on the breadth of global nursing expertise to bring this book together’. Philip Larkin, Professor of Clinical Nursing (Palliative Care), University College Dublin and Our Lady’s Hospice and Care Services, Dublin, Ireland; President, European Association for Palliative Care ‘This is a book of substance that captures the current status of palliative nursing, including the values and research evidence that underpin it. The changing nature of palliative nursing as an evidence-based specialism is balanced with practical skills and insights from experts, and also considers the needs of those working with, or concerned about, the dying person’s well-being. It covers a range of challenging issues as well as drawing on the wisdom of those who actually undertake this work on a daily basis. I hope that students and practitioners from all disciplines will find this a useful resource to understand the art and craft of good palliative nursing’. Professor Daniel Kelly, Fellow of the Royal College of Nursing and Royal College of Nursing Chair of Nursing Research, Cardiff University, UK
International Perspectives on Public Health and Palliative Care by Libby Sallnow,Suresh Kumar,Allan Kellehear Pdf
Public health approaches to palliative care have been growing in policy importance and practice acceptance. This innovative volume explores the major concepts, practice examples, and practice guidelines for this new approach. The goal of ‘comprehensive care’ – seamless support for patients as they transition between home based care and inpatient services – relies on the principles of health promotion and community development both to ensure services are available and importantly appropriate for patients’ needs. In developing contexts, where hospitals and hospices may be inaccessible, a public health approach provides not only continuity of care but greater access to good end of life care. This book provides both a historical and conceptual overview whilst offering practical case examples from affluent and developing contexts, in a range of clinical settings. Finally, it draws together research-based guidelines for future practice. Essential reading for public health researchers and practitioners with an interest in end of life care and global health as well as those involved in developing palliative care provision, International Perspectives on Public Health and Palliative Care is the first volume to present an overview of theory and practice in this emerging field.
Innovations in Hospice Architecture by Stephen Verderber,Ben J. Refuerzo Pdf
This fully revised, new edition of Innovations in Hospice Architecture responds to the need for an up-to-date, theoretically based reference book summarizing key historical and recent developments with respect to this rapidly evolving building type. This Second Edition presents: an overview of the historical origins of the contemporary hospice the diverse variations on the basic premise of hospice care a review of the scant architectural literature published on this subject to date a broad series of case studies of exemplary hospices around the world planning and design concepts for palliative care environments. Case study projects are from Japan, Canada, Europe, Africa, Australia, Indonesia, China, the United States and South America. Thirty-six case studies are individually presented and comparatively analysed, and prognostications for the future of hospice architecture are examined. Each case includes floor plans, technical drawings and beautiful, full colour illustrations. Through an in-depth discussion of the inner profundities of hospice architecture, the book presents this type as a humane, genuine expression of the spiritual, physical and psychosocial dimensions of the contemporary death and dying movement. Written with a broad audience in mind, the book provides both technical and conceptual information, blending narrative, images and diagrammation so that the audience may understand and articulate the complexities of this specialized building type in professional practice contexts.
Palliative Care Nursing by Payne,Christine Ingleton,Jane Seymour Pdf
"...this is an excellent book that is interesting, easy to read and very useful for health care professionals." Palliative Medicine This innovative interdisciplinary textbook reviews current research and examines the evidence base for palliative care practice. Focusing on palliative care for adults, the first three sections use a novel framework - the trajectory of life-limiting illness - to cover key issues including: What happens to people as they become ill How individuals cope as they near death and are dying How families and friends deal with bereavement and loss The final section addresses contemporary issues in nursing and inter-professional working. The book contains helpful overviews and is written in an informative and reader-friendly style. Palliative Care Nursingis essential reading for post-qualifying nursing students and all nurses and health/social care professionals who provide care to people with advanced illness and those who are near the end of life.
Palliative and End of Life Nursing Care by Beth Hardy,Kate Flemming Pdf
Palliative and end of life care are an essential component of nursing practice. This book provides students with the key information they need to deliver effective and safe end of life care for patients and their families. Crucially, it also creates opportunities for them to reflect on their own perspectives on death and dying and explore the impact of this on their practice. Key features Fully mapped to the NMC standards of proficiency for registered nurses (2018) Helps you to develop a holistic understanding of the fundamental principles and practice of palliative and end of life care Activities encourage you reflect on your own perspectives of death and dying and to consider the impact this has on your practice Case studies bring the theory to life and illustrate the real world applicability
Innovations in Cancer and Palliative Care Education by Lorna Foyle,Janis Hostad Pdf
"This practical, evidence-based guide has been specifically designed for teachers in cancer and palliative care. It is completely up-to-date and covers the recent complex changes in cancer and palliative care delivery, offering a range of different, creative approaches. Ideal for training, the text includes highlighted key points, self help questions for reflection, and references where applicable. It provides invaluable guidance for all healthcare professionals with palliative care teaching responsibilities, including undergraduate and postgraduate healthcare educators and Macmillan lecturers."--PUBLISHER'S WEBSITE.
Compassionate Person-Centered Care for the Dying by Bonnie Freeman, RN, DNP, ANP, ACHPN,Tracey DasGupta,Margaret Fitch Pdf
A milestone resource for palliative care nurses that facilitates evidence-based compassionate and humanistic care of the dying "A valuable contribution to the evolving field of palliative nursing care. It is authored by a model for this field, Bonnie Freeman, and brings to the bedside what her practice embodies--evidence-based clinically expert care...The CARES tool is a long-needed resource and we are all grateful to the author for moving her passion to paper. It will touch the lives and deaths of patients, families, and the nurses who care for them." --Betty Ferrell, PhD, RN, MA, FAAN, FCPN, CHPN Professor and Director, Division of Nursing Research and Education City of Hope National Medical Center From the Foreword This groundbreaking reference for palliative care nurses is the first to provide realistic and achievable evidence-based methods for incorporating compassionate and humanistic care of the dying into current standards of practice. It builds on the author's research-based CARES tool; a reference that synthesizes five key elements demonstrated to enable a peaceful death, as free from suffering as possible: comfort, airway management, management of restlessness and delirium, emotional and spiritual support, and selfcare for nurses. The book describes, step by step, how nurses can easily implement the basic tenets of the CARES tool into their end-of-life practice. It provides a clearly defined plan that can be individualized for each patient and tailored to specific family needs, and facilitates caring for the dying in the most respectful and humane way possible. The book identifies the most common symptom management needs in dying patients and describes, in detail, the five components of the CARES paradigm and how to implement them to enable a peaceful death and minimize suffering. It includes palliative care prompts founded on 29 evidence-based recommendations and the National Consensus Project for Palliative Care Clinical Practice Guidelines. The resource also addresses the importance of the nurse to act as a patient advocate, how to achieve compassionate communication with the patient and family, and barriers and challenges to compassionate care. Case studies emphasize the importance of compassionate nursing care of the dying and how it can be effectively achieved. Key Features: Provides nurses with a clear understanding of the most common needs of the dying and supplies practical applications to facilitate and improve care Clarifies the current and often complex literature on care of the dying Includes case studies illustrating the most common needs of dying patients and how these are addressed effectively by the CARES tool Based on extensive evidence as well as on the National Consensus Project for Palliative Care Clinical Practice Guidelines
Since the efforts of Dame Cicely Saunders and the founders of the modern hospice movement, compassion has become a fundamental part of palliative care. In this ground-breaking book, international experts give their critical thoughts on the essence and role of compassion, in both palliative and hospice care over the past half-century. Compassion: The essence of palliative and end-of-life care provides insight into the motivations for, and practice of, compassionate palliative and hospice care, featuring the reflections of leading healthcare professionals, social workers, chaplains and educators. Chapters utilise case examples and first-hand experiences to explore the historical and contemporary discourse surrounding the concept of compassion in palliative medicine. This book is relevant to a multidisciplinary audience of palliative care practitioners, including undergraduate and graduate students in sociology, psychology and theology, and healthcare professionals in oncology and gerontology.
Compassionate Person-Centered Care for the Dying by Bonnie Freeman Pdf
A milestone resource for palliative care nurses that facilitates evidence-based compassionate and humanistic care of the dying A valuable contribution to the evolving field of palliative nursing care. It is authored by a model for this field, Bonnie Freeman, and brings to the bedside what her practice embodies--evidence-based clinically expert care...The CARES tool is a long-needed resource and we are all grateful to the author for moving her passion to paper. It will touch the lives and deaths of patients, families, and the nurses who care for them. --Betty Ferrell, PhD, RN, MA, FAAN, FCPN, CHPN Professor and Director, Division of Nursing Research and Education City of Hope National Medical Center From the Foreword This groundbreaking reference for palliative care nurses is the first to provide realistic and achievable evidence-based methods for incorporating compassionate and humanistic care of the dying into current standards of practice. It builds on the author's research-based CARES tool; a reference that synthesizes five key elements demonstrated to enable a peaceful death, as free from suffering as possible: comfort, airway management, management of restlessness and delirium, emotional and spiritual support, and selfcare for nurses. The book describes, step by step, how nurses can easily implement the basic tenets of the CARES tool into their end-of-life practice. It provides a clearly defined plan that can be individualized for each patient and tailored to specific family needs, and facilitates caring for the dying in the most respectful and humane way possible. The book identifies the most common symptom management needs in dying patients and describes, in detail, the five components of the CARES paradigm and how to implement them to enable a peaceful death and minimize suffering. It includes palliative care prompts founded on 29 evidence-based recommendations and the National Consensus Project for Palliative Care Clinical Practice Guidelines. The resource also addresses the importance of the nurse to act as a patient advocate, how to achieve compassionate communication with the patient and family, and barriers and challenges to compassionate care. Case studies emphasize the importance of compassionate nursing care of the dying and how it can be effectively achieved. Key Features: Provides nurses with a clear understanding of the most common needs of the dying and supplies practical applications to facilitate and improve care Clarifies the current and often complex literature on care of the dying Includes case studies illustrating the most common needs of dying patients and how these are addressed effectively by the CARES tool Based on extensive evidence as well as on the National Consensus Project for Palliative Care Clinical Practice Guidelines Bonnie Freeman, DNP, ANP, RN, ACHPN, is an adult nurse practitioner in the Department of Supportive Care Medicine at the City of Hope National Medical Center in Duarte, California. She is involved with treating the symptom management needs of many chronically and terminally ill individuals diagnosed with various forms of cancer. Dr. Freeman trained at such excellent facilities as the in-patient units at San Diego Hospice and the Institute of Palliative Medicine in San Diego, California, and the home care hospice program in Owensboro, Kentucky. While in Kentucky, she completed her advanced practice clinical training for adult nurse practitioners with a specialty focus on palliative care through Vanderbilt University in Nashville, Tennessee. This program exposed Dr. Freeman to current concepts in caring for the dying, and enhanced her already significant clinical experience caring for dying individuals acquired from over 30 years working in critical care. Dr. Freeman obtained her MSN from Indiana Wesleyan University, and her DNP from Azusa Pacific University in Azusa, California. Contributors Tracey Das Gupta, MN, RN, CON, is director of Interprofessional Practice at Sunnybrook Health Sciences Centre in Toronto, Ontario, Canada. She is also the colead of the Quality Dying Initiative with Dr. Jeff Myers. Tracey has been passionate about health care, quality of life, and leadership since becoming a nurse in 1991. Her decision to become a nurse was influenced by her father who lived with muscular dystrophy. Ms. Das Gupta has fulfilled various frontline nursing roles along the continuum of care and has had the opportunity to continue to grow in leadership roles such as educator, professional practice leader, and director of nursing practice. In her current role, she also provides leadership for the development and implementation of Sunnybrook's interprofessional care (IPC) strategy. Margaret Fitch, PhD, MScN, is a nurse researcher and holds an appointment at the Bloomberg Faculty of Nursing and School of Graduate Studies at the University of Toronto. She also serves as expert lead for cancer survivorship and patient experience for the Person-Centered Perspective Portfolio of the Canadian Partnership Against Cancer. She is also editor-in-chief for the Canadian Oncology Nursing Journal. Dr. Fitch has an extensive publication record based on her many years of research regarding patient perspectives, coping and adaptation with illness, and screening for psychosocial distress. She has particular expertise in measurement and evaluation, qualitative methods, and knowledge integration. During her career, she has held clinical and administrative positions and has maintained an ongoing role in education of both undergraduate and graduate students and health professionals in practice.
Taking as its focus a highly emotive area of study, The Dying Process draws on the experiences of daycare and hospice patients to provide a forceful new analysis of the period of decline prior to death. Placing the bodily realities of dying very firmly centre stage and questioning the ideology central to the modern hospice movement of enabling patients to 'live until they die', Julia Lawton shows how our concept of a 'good death' is open to interpretation. Her study examines the non-negotiable effects of a patient's bodily deterioration on their sense of self and, in so doing, offers a powerful new perspective in embodiment and emotion in death and dying. A detailed and subtle ethnographic study, The Dying Process engages with a range of deeply complex and ethically contentious issues surrounding the care of dying patients in hospices and elsewhere.
Palliative Care for Chronic Cancer Patients in the Community by Michael Silbermann Pdf
The new global cancer data suggests that the global burden has risen to 18.1 million new cases per year and 9.6 million cancer deaths per year. A number of factors appear to be driving this increase, in particular, a growing and aging global population and an increase of exposure to cancer risk factors linked to social and economic development. For rapidly-growing economies, the data suggests a shift from poverty- or infection-related cancers to those associated with lifestyles more typical in industrialized countries. There is still large geographical diversity in cancer occurrence and variations in the magnitude and profile of the disease between and within world regions. There are specific types of cancer that dominate globally: lung, female breast and colorectal cancer, and the regional variations in common cancer types signal the extent to which societal, economic and lifestyle changes interplay to deferentially impact on the profile of this most complex group of diseases. Unfortunately, despite advances in cancer care, a significant proportion of patients at home, experience sub-optimal outcomes. Barriers to successful treatment outcomes include, but are not limited to: access to oncologists in the primary health centers, non-adherence, lack of experienced oncology and palliative care nurses in the community, inadequate monitoring and the lack of training of family and pediatric physicians. Telemedicine approaches, including telephone triage/education, telemonitoring, teleconsultation and status tracking through mobile applications, have shown promise in further improving outcomes, in particular for chronic cancer patients following their hospitalization. Lessons can be learned from existing hospices in North America, the United Kingdom, Australia, Centers of Excellence in African (Uganda) and modern community services in India (Kerala). An important goal of this book is to describe and encourage professionals to develop new community programs in palliative care, which include training and empowering physicians and nurses in the community on the principles of palliative care. The Middle East Cancer Consortium (MECC) together with the American Society of Clinical Oncology (ASCO) and the American Oncology Nursing Society (ONS) have conducted multiple courses ranging from basic palliative care to more specialized training in palliative care for multiple nationalities in Europe, Asia and Africa. Our experience clearly indicates that, to promote such activities, one needs strong leadership and confirmed political will to support the endeavor. The new book will emphasize the importance of having a core of multiple stakeholders including community leaders, government, NGOs and media to be actively involved in advocating for the cause and generating public awareness. This text will provide the reader with a comprehensive understanding of the outside-of-the-hospital treatment of cancer patients by medical, paramedical and volunteer personnel. In doing so, this text will encourage the creation of new palliative care services improving upon the existing ones and stimulate further research in this field. Part 1 of the text will begin with an overview of the current state of affairs of services provided to cancer patients while being cared for by primary health centers. It will also review the current literature regarding medical and psychological-based therapy options in the community for cancer patients at different stages of their disease. Part 2 will address the unique role of the community nurse, within the framework of the multidisciplinary team treating the patient, in the attempt to provide optimal evaluation and care in very challenging situations (such as with terminal patients). Part 3 will provide insightful models of this new discipline and serve as a valuable resource for physicians, nurses, social workers and others involved in the care of cancer patients. The book will take a multidisciplinary approach, integrating clinical and environmental data for practical management to enhance the efficacy of treatment while relieving suffering. Part 4 will also discuss the application of modern technological approaches to track symptoms, quality of life, diet, mobility, duration of sleep and medication use (including pain killers) in chronic cancer patients in the community. Part 5 of the book will also be devoted to modes of developing a collaborative program between governmental and non-governmental organization sectors. This includes volunteer workers in close collaboration with medical professionals for providing emotional and spiritual support, nursing care, nutritional support and empowering family caregivers. Such a model makes palliative care in the community a “people’s movement”, thus transferring part of the responsibility and ownership to the community.