Ethics And Research With Children

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Ethics and Research with Children

Eric Kodish,Robert M. Nelson
Ethics and Research with Children Book PDF

Author : Eric Kodish,Robert M. Nelson
Publisher : Oxford University Press, USA
Page : 345 pages
File Size : 45,5 Mb
Release : 2018-12-14
Category : Medical
ISBN : 9780190647254

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Ethics and Research with Children by Eric Kodish,Robert M. Nelson Pdf

Fundamental questions about the morality of pediatric medical research persist despite years of debate and the establishment of strict codes of ethics. Is it ever permissible to use a child as a means to an end? How much authority should parents have over decisions about research involving their children? Should children or their parents be paid for participation in research? Most importantly, how can the twin goals of access to the benefits of clinical research and protection from research risk be reconciled? Promoting more thoughtful attention to the complex ethical problems that arise when research involves children, this fully updated new edition of Ethics and Research with Children presents 14 case studies featuring some of the most challenging and fascinating ethical dilemmas in pediatric research. Each chapter begins with a unique case vignette, followed by rich discussion and incisive ethical analysis. Chapters represent a host of current controversies and are contributed by leading scholars from a variety of disciplines that must grapple with how to best protect children from research risk while driving innovation in the fight against childhood diseases. Chapters end with questions for discussion, providing faculty and students with accessible starting points from which to explore more in depth the thorny issues that are raised. In the final chapter, the editors provide a synthesis and summary that serve as a capstone and companion to the case-based chapters. Unique in its specific focus on research, Ethics and Research with Children provides a balanced and thorough account of the enduring dilemmas that arise when children become research subjects, and will be essential reading for those involved with pediatric research in any context.

Ethical research with children

Ann Farrell
Ethical research with children Book PDF

Author : Ann Farrell
Publisher : McGraw-Hill Education (UK)
Page : 200 pages
File Size : 45,8 Mb
Release : 2005-11-16
Category : Education
ISBN : 9780335224982

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Ethical research with children by Ann Farrell Pdf

This book focuses on doing ethical research with children in today's climate of increased globalization, surveillance and awareness of children as competent research participants. It covers a range of conceptual, methodological and procedural issues, and provides a framework for doing ethical research with children. Written by international experts in the fields of early childhood research and ethics, this book supports students, practitioner-researchers and research gatekeepers with resources on how to conduct and evaluate ethical research with children. The contributors: Use key examples of cutting-edge research from a range of countries to examine research ethics with children and those around them Provide strategies for planning, conducting and evaluating research in an ethical way Explore theoretical approaches to children and childhood that are relevant to ethical research Ethical Research with Children is key reading for students in childhood studies, teacher education, public health, nursing, human services, legal studies, psychology and social sciences, as well as practitioner-researchers in these fields.

The Ethics of Research with Children and Young People

Priscilla Alderson,Virginia Morrow
The Ethics of Research with Children and Young People Book PDF

Author : Priscilla Alderson,Virginia Morrow
Publisher : SAGE Publications
Page : 177 pages
File Size : 48,9 Mb
Release : 2011-02-09
Category : Education
ISBN : 9780857021373

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The Ethics of Research with Children and Young People by Priscilla Alderson,Virginia Morrow Pdf

Ethical questions are at the centre of research with children and young people. This clear and practical text informs students and researchers about the relevant laws and guidelines and current debates in research ethics. Priscilla Alderson and Virginia Morrow cover ethics at every stage of research, and with all kinds of young research participants, particularly those who are vulnerable or neglected. They break down the process of research into ten stages, each with its own set of related questions and problems, and they show how these need to be addressed. This practical book is essential reading for anyone who conducts or reviews research with children or young people. Priscilla Alderson is Emerita Professor of Childhood Studies at the Institute of Education University of London. Virginia Morrow is Senior Research Officer in the Department of International Development, University of Oxford.

Ethical Conduct of Clinical Research Involving Children

Institute of Medicine,Board on Health Sciences Policy,Committee on Clinical Research Involving Children
Ethical Conduct of Clinical Research Involving Children Book PDF

Author : Institute of Medicine,Board on Health Sciences Policy,Committee on Clinical Research Involving Children
Publisher : National Academies Press
Page : 445 pages
File Size : 50,9 Mb
Release : 2004-07-09
Category : Medical
ISBN : 9780309133388

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Ethical Conduct of Clinical Research Involving Children by Institute of Medicine,Board on Health Sciences Policy,Committee on Clinical Research Involving Children Pdf

In recent decades, advances in biomedical research have helped save or lengthen the lives of children around the world. With improved therapies, child and adolescent mortality rates have decreased significantly in the last half century. Despite these advances, pediatricians and others argue that children have not shared equally with adults in biomedical advances. Even though we want children to benefit from the dramatic and accelerating rate of progress in medical care that has been fueled by scientific research, we do not want to place children at risk of being harmed by participating in clinical studies. Ethical Conduct of Clinical Research Involving Children considers the necessities and challenges of this type of research and reviews the ethical and legal standards for conducting it. It also considers problems with the interpretation and application of these standards and conduct, concluding that while children should not be excluded from potentially beneficial clinical studies, some research that is ethically permissible for adults is not acceptable for children, who usually do not have the legal capacity or maturity to make informed decisions about research participation. The book looks at the need for appropriate pediatric expertise at all stages of the design, review, and conduct of a research project to effectively implement policies to protect children. It argues persuasively that a robust system for protecting human research participants in general is a necessary foundation for protecting child research participants in particular.

Ethical and Inclusive Research with Children

Roseanna Bourke
Ethical and Inclusive Research with Children Book PDF

Author : Roseanna Bourke
Publisher : Routledge
Page : 176 pages
File Size : 55,5 Mb
Release : 2020-04-02
Category : Education
ISBN : 9780429817694

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Ethical and Inclusive Research with Children by Roseanna Bourke Pdf

The imperative to include children and young people in educational research, and in more participative ways, is educationally important when exploring policy and practice contexts. It is also critical to recognise that children have the right to contribute to debates, and can express their views through educational research, on matters that affect them. However, the freedom to research alongside young people is only afforded if we continue to unmask the illusion that well-intentioned research is always ethical. This book presents an international set of storied experiences, where researchers have been challenged and have changed the way they think, incorporating and exploring ethics in research. The contributors highlight the ethical dilemmas that can arise when children and young people are included in research agendas, and their reflexive approaches to these dilemmas include being responsive to the cultural, political and social contexts of the lives of the children and developing child-friendly research approaches to ensure their ‘voice’ is accessed in multiple ways. These solution-focused and local approaches facilitate a more ethical, deliberative process where the establishment of trust is central to an ethical engagement with young people and their families and where the explication of ethical dilemmas can improve research practice. This book is a critical resource for researchers and practitioners researching with and alongside children and young people. This book was originally published as a special issue of the International Journal of Inclusive Education.

Ethical Research with Children

Sarah Richards,Jessica Clark,Allison Boggis
Ethical Research with Children Book PDF

Author : Sarah Richards,Jessica Clark,Allison Boggis
Publisher : Springer
Page : 185 pages
File Size : 52,9 Mb
Release : 2015-10-26
Category : Social Science
ISBN : 9781137351319

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Ethical Research with Children by Sarah Richards,Jessica Clark,Allison Boggis Pdf

An increasing interest in children's lives has tested the ethical and practical limits of research. Rather than making tricky ethical decisions, transparent researchers tend to gloss over stories that do not fit with sanitized narratives. This book aims to fill this gap by making explicit the lived experiences of research with children.

Doing Ethical Research With Children

Harcourt, Deborah,Sargeant, Jonathon
Doing Ethical Research With Children Book PDF

Author : Harcourt, Deborah,Sargeant, Jonathon
Publisher : McGraw-Hill Education (UK)
Page : 138 pages
File Size : 45,5 Mb
Release : 2012-08-01
Category : Education
ISBN : 9780335246427

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Doing Ethical Research With Children by Harcourt, Deborah,Sargeant, Jonathon Pdf

"Doing Ethical Research with Children is an invaluable resource for all student and practitioner-researchers who wish to honour children as active agents and significant voices in research. The book guides the reader through the processes of ethical research with (not on!) children, positioning the child as competent and capable. It includes practical guidance and examples of research so that issues that may emerge during a research project can be anticipated. My advice is - do not embark on an Early Years research project before reading it!" Lyn Trodd, Chair of the National Sector-Endorsed Foundation Degree in Early Years Network (SEFDEY), University of Hertfordshire, UK "Doing Ethical Research with Children provides an invaluable guide to understanding and managing the ethical implications of research projects with children. The highly accessible format includes useful case-study examples, questions and checklists and the four-phased approach supports the reader to reflect on ethical considerations at every stage of the research process. This book is a welcome and essential resource that positions ethical perspectives at the heart of research activity with children." Shirley Allen, Senior Lecturer Early Childhood Studies, Middlesex University, UK "This is an admirably clear and well-structured book that will be invaluable for anyone serious about research with children. The authors write from long experience, and provide a very helpful 'step by step' guide that is always underpinned by deeply principled, insightful considerations that exemplify good practice and respect for children. The use of real examples along with the authors' questions, invite the reader to reflect on their own thinking and actions, and the extensive checklists and sample documentation provide clear guidance that will be a valuable support for students and their supervisors, researchers, and practitioners alike. I look forward to making good use of this book in my own work and in my work with students of early childhood." Sue Robson, Principal Lecturer, Subject Leader for Early Childhood Studies University of Roehampton, London, UK This book provides a step-by-step guide to approaching your research project and will support you in developing, conducting and disseminating research relating to children and childhood with an ethical imperative. Doing Ethical Research with Children will help you focus and identify many of the key issues surrounding research with children. The book presents an overview of both contemporary and traditional perspectives relating to child related research practices. The authors combine relevant theoretical and practical information, offering a guide to the essential elements for conducting ethical research with children. You are prompted to consider and systematically address these elements, with the help of: Real world 'points to ponder', offering unique insights 'Over to you' reflection activities Case studies considering ethical dilemmas Written specifically as a guide and reflection tool for beginning researchers studying early years and childhood, the book follows the research journey from conceptualisation to dissemination and looks at the unique considerations for research involving children.

The Ethics of Research with Children and Young People

Priscilla Alderson,Virginia Morrow
The Ethics of Research with Children and Young People Book PDF

Author : Priscilla Alderson,Virginia Morrow
Publisher : SAGE
Page : 258 pages
File Size : 40,8 Mb
Release : 2020-07-27
Category : Education
ISBN : 9781529738469

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The Ethics of Research with Children and Young People by Priscilla Alderson,Virginia Morrow Pdf

A practical guide to carrying out ethical research with children and young people, this practical handbook examines the ethical questions that arise at each stage of research, from first plans to dissemination and impact. Illustrated with case studies from international and inter-disciplinary research, it offers advice for addressing each ethical question, issue or uncertainty. Including: • A showcase of the best practice on a range of topics including data protection • Practical guidance for responding to recent global changes in policy and practice in ethics and law • Discussion of the challenges and opportunities of digital research with children The updated second edition continues to provide an excellent resource for those exploring the old, current and new consensuses on the ethics of researching with children.

Ethical Issues in Mental Health Research With Children and Adolescents

Kimberly Hoagwood,Peter S. Jensen,Celia B. Fisher
Ethical Issues in Mental Health Research With Children and Adolescents Book PDF

Author : Kimberly Hoagwood,Peter S. Jensen,Celia B. Fisher
Publisher : Routledge
Page : 334 pages
File Size : 52,8 Mb
Release : 2014-06-03
Category : Psychology
ISBN : 9781317824602

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Ethical Issues in Mental Health Research With Children and Adolescents by Kimberly Hoagwood,Peter S. Jensen,Celia B. Fisher Pdf

Studies involving children with mental, emotional, or behavioral problems--or their families--have to meet certain standards of research ethics. This book contains chapters on the kinds of ethical dilemmas that typically occur in different types of studies of children, and then presents 65 real-world cases from experts who study children's mental health. These experts offer practical suggestions for how to handle these dilemmas. Chapters on the perspectives of parents, regulators, and bioethicists provide additional points of view on these issues. Written in down-to-earth language, this book will be useful for professionals who study children, for those who train students in research methods, and for parents who are thinking about participating in research studies. In attempting to bridge the apparent gap between ethics and science, the editors close this volume on a note commonly sounded by researchers: more research is needed. Yet in this area, a new kind of research is required. The science of scientific ethics must be developed and expanded, and better understanding of the determinants and circumstances under which children can comprehend and evaluate risks and benefits is needed. Likewise, fuller knowledge of the contextual factors affecting children's and families' consent to participate in research is essential. In particular, development of scales to assess children's ability to comprehend risk-benefit issues, studies of families' reactions to research procedures, and empirical data on the impact of various forms of participant reimbursement will advance both science and ethics. This volume should spur further research, serving as a guide for current investigators, participating families, institutional review boards, and policymakers who shape the research enterprise.

Researching Young Children's Perspectives

Deborah Harcourt,Bob Perry,Tim Waller
Researching Young Children s Perspectives Book PDF

Author : Deborah Harcourt,Bob Perry,Tim Waller
Publisher : Taylor & Francis
Page : 225 pages
File Size : 44,9 Mb
Release : 2011-03-08
Category : Education
ISBN : 9781136822308

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Researching Young Children's Perspectives by Deborah Harcourt,Bob Perry,Tim Waller Pdf

What ethical dilemmas face researchers who work with young children? Researching Young Children’s Perspectives critically examines the challenges and complexities of rights based, participatory research with children. Rather than approaching these dilemmas as problematic issues, this book positions them as important topics for discussion and reflection. Drawing from their own rich experiences as research collaborators with young children in internationally diverse settings, the authors consider the ethical, methodological and theoretical frameworks that guide best-practice in research with young children. Each chapter poses points for consideration that will inform and challenge both the novice and experienced researcher, such as: How ‘participatory’ can research be with infants under eighteen months? When should listening through observation stand alone? What is the distinction between methodologies and methods? How can all young children be assured of a voice in research? The authors also present seven separate case studies which demonstrate exemplary research with young children. Each study is accompanied by insightful commentary from the authors, who highlight the issues or difficulties faced and propose potential solutions. If you are a student at undergraduate level and above, this book will give you all the confidence you need to conduct your own high quality research with children.

Ethics and Research with Young Children

Christopher M. Schulte
Ethics and Research with Young Children Book PDF

Author : Christopher M. Schulte
Publisher : Bloomsbury Publishing
Page : 248 pages
File Size : 51,8 Mb
Release : 2019-12-26
Category : Education
ISBN : 9781350076457

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Ethics and Research with Young Children by Christopher M. Schulte Pdf

As researchers and theorists, teachers and teacher educators, parents and grandparents and advocates for children, the authors featured in Ethics and Research with Young Children share a common inclination to counter the idea of an ethics that is conventional-i.e., an ethics that reinforces existing models and discourses, which position children as irrational and incompetent; that de-anonymize children's ways of working and being in the world; that reduces and distorts the social, cultural and political forces that shape children's everyday realities; and, that routinely subtracts from these realities the complex responsibilities that adults have (especially as researchers) to recognize ethics as situated, relational, intersectional, and provisional. Aligned with the interdisciplinary commitments of a Childhood Studies approach and informed by a range of theoretical and practical frameworks, the perspectives offered in this volume are grounded in relationships between and among adults and children, their shifting social, cultural, political and material realities, and a world of ideas and experiences that impel them to face and reorient their ethical commitments to each other.

Children As Research Subjects : Science, Ethics, and Law

Program in Medical Ethics Michael A. Grodin Director,Leonard H. Glantz Associate Director and Professor of Health Law both at the Boston University Schools of Medicine and Public Health
Children As Research Subjects Science Ethics and Law Book PDF

Author : Program in Medical Ethics Michael A. Grodin Director,Leonard H. Glantz Associate Director and Professor of Health Law both at the Boston University Schools of Medicine and Public Health
Publisher : Oxford University Press, USA
Page : 290 pages
File Size : 48,6 Mb
Release : 1994-02-08
Category : Medical
ISBN : 0199771421

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Children As Research Subjects : Science, Ethics, and Law by Program in Medical Ethics Michael A. Grodin Director,Leonard H. Glantz Associate Director and Professor of Health Law both at the Boston University Schools of Medicine and Public Health Pdf

Is using children as research subjects ever justified? Are there limits to such use? Does the fact that children are medically and psychosocially different from adults have implications for research? What can we learn from the history of the use and abuse of children as research subjects? Do parents have the authority to volunteer their children for research projects? How should children participate in the decision to be involved in research? How should research risks be assessed and balanced? These perplexing questions and others are addressed by a distinguished group of experts in the field of biomedical and behavioral research with children. This book adopts an integrated multidisciplinary approach which uses science, ethics, and law as guides for exploring these most difficult issues. The tension between acquiring important new knowledge and fulfilling the obligation to protect children from exploitation and harm is a recurring theme. As the first book to be devoted solely to the science, ethics, and law of research with children, it is an indispensable resource to physicians, psychologists, educators, lawyers, ethicists, Institutional Review Board members, child advocates and others involved in performing or reviewing research with children.

Ethics and Integrity in Research with Children and Young People

Grace Spencer
Ethics and Integrity in Research with Children and Young People Book PDF

Author : Grace Spencer
Publisher : Emerald Group Publishing
Page : 272 pages
File Size : 52,6 Mb
Release : 2021-11-04
Category : Social Science
ISBN : 9781800434004

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Ethics and Integrity in Research with Children and Young People by Grace Spencer Pdf

This international and multi-disciplinary edited collection unpacks some of the ethical complexities of conducting research with children and young people. The chapters in the volume offer an applied perspective to navigating contemporary and complicated ethical issues that can arise in the field of childhood and youth-centred research.

Studying Children in Context

M. Elizabeth Graue,Daniel J. Walsh
Studying Children in Context Book PDF

Author : M. Elizabeth Graue,Daniel J. Walsh
Publisher : SAGE Publications
Page : 291 pages
File Size : 52,5 Mb
Release : 1998-02-19
Category : Psychology
ISBN : 9781452250410

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Studying Children in Context by M. Elizabeth Graue,Daniel J. Walsh Pdf

What is the world like for todayÆs children? How do they construct meaning in it? Answering these key questions, Studying Children in Context explains the art and science of doing qualitative research involving children. Authors M. Elizabeth Graue and Daniel J. Walsh carefully discuss the research process, dealing succinctly with generic research issues yet emphasizing where work with children presents its own particular challenges. They look across the research enterprise in the first part of the book, conceptualizing it as a holistic activity. They next focus on fieldwork, and in the final section examine the interpreting and reporting aspects of qualitative research. In addition to presenting their own considerable experiences in fieldwork with children, Graue and Walsh also present the contributions of numerous researchers with their own insights on key issues. Studying Children in Context will be an invaluable addition to the libraries of teachers and researchers interested in qualitative research methods in general and in doing fieldwork with children in particular.

Doing Research with Children

Anne D Greig,Jayne Taylor,Tommy MacKay
Doing Research with Children Book PDF

Author : Anne D Greig,Jayne Taylor,Tommy MacKay
Publisher : SAGE
Page : 312 pages
File Size : 51,7 Mb
Release : 2012-11-16
Category : Education
ISBN : 9781446271605

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Doing Research with Children by Anne D Greig,Jayne Taylor,Tommy MacKay Pdf

This Third Edition of Doing Research with Children is practical introduction to the process of designing, doing and writing up research with children and young people. At the centre is a commitment to engaging with children and young people as active research participants rather than as passive subjects. In the new edition, you'll find up to date information on the fast-changing political and ethical debates around research with children and young people as well as guidance on how to carry out research yourself. Divided into three sections, the new edition covers: -the main theories and approaches of research with children and young people -expanded guidance on research ethics -techniques for conducting both qualitative and quantitative research -more on analysing your research -a brand new chapter on communicating your research findings. This is a must-have guide for students and practitioners who are engaging in research with children and young people.