Genetics And Ethics In Global Perspective

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Genetics and Ethics in Global Perspective

Dorothy C. Wertz,John C. Fletcher
Genetics and Ethics in Global Perspective Book PDF

Author : Dorothy C. Wertz,John C. Fletcher
Publisher : Springer
Page : 474 pages
File Size : 45,9 Mb
Release : 2004-01-31
Category : Medical
ISBN : 1402017685

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Genetics and Ethics in Global Perspective by Dorothy C. Wertz,John C. Fletcher Pdf

Dorothy Wertz and John Fletcher pioneered the first international study of ethical and social issues in genetics in 18 nations. This book reports and discusses their second and more representative study in 36 nations. The survey focused on actual situations that occur in the practice of medical genetics, presented as case vignettes that can also be used in teaching and policy discussion. Among the issues discussed are privacy, prenatal diagnosis, patient autonomy, directiveness in counseling, sex selection, forensic DNA banking, "genetic discrimination," and "eugenics". This is Dorothy Wertz's final book, as she died in April, 2003. It is a one of a kind cross-cultural study of complex ethical issues in the uses of genetic information. No one else has attempted to look at the international aspects of medical genetics on such a broad scale. The results provide a resource for discussion both within and among nations. Much bioethical and policy discussion now occurs in an information vacuum. The survey showed that what people would do, and their reasons for doing it, differed considerably from what ethicists think they "should" do. Many will be surprised at the results, especially in nations where bioethical discussion is just beginning. Genetics and Ethics in Global Perspective is of interest to medical geneticists, genetic counselors, social scientists and anthropologists who study cross-cultural issues, bioethicists and bioethics centers and health policy makers.

Genetics and Ethics in Global Perspective

Dorothy C. Wertz,John C. Fletcher
Genetics and Ethics in Global Perspective Book PDF

Author : Dorothy C. Wertz,John C. Fletcher
Publisher : Springer Science & Business Media
Page : 474 pages
File Size : 55,8 Mb
Release : 2012-12-06
Category : Medical
ISBN : 9789400709812

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Genetics and Ethics in Global Perspective by Dorothy C. Wertz,John C. Fletcher Pdf

Dorothy Wertz and John Fletcher pioneered the first international study of ethical and social issues in genetics in 18 nations. This book reports and discusses their second and more representative study in 36 nations. The survey focused on actual situations that occur in the practice of medical genetics, presented as case vignettes that can also be used in teaching and policy discussion. Among the issues discussed are privacy, prenatal diagnosis, patient autonomy, directiveness in counseling, sex selection, forensic DNA banking, "genetic discrimination," and "eugenics". This is Dorothy Wertz's final book, as she died in April, 2003. It is a one of a kind cross-cultural study of complex ethical issues in the uses of genetic information. No one else has attempted to look at the international aspects of medical genetics on such a broad scale. The results provide a resource for discussion both within and among nations. Much bioethical and policy discussion now occurs in an information vacuum. The survey showed that what people would do, and their reasons for doing it, differed considerably from what ethicists think they "should" do. Many will be surprised at the results, especially in nations where bioethical discussion is just beginning. Genetics and Ethics in Global Perspective is of interest to medical geneticists, genetic counselors, social scientists and anthropologists who study cross-cultural issues, bioethicists and bioethics centers and health policy makers.

Genetics and Ethics in Global Perspective

Dorothy C. Wertz,John C. Fletcher
Genetics and Ethics in Global Perspective Book PDF

Author : Dorothy C. Wertz,John C. Fletcher
Publisher : Springer Science & Business Media
Page : 494 pages
File Size : 43,9 Mb
Release : 2004-11-04
Category : Medical
ISBN : 1402028806

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Genetics and Ethics in Global Perspective by Dorothy C. Wertz,John C. Fletcher Pdf

Dorothy Wertz and John Fletcher pioneered the first international study of ethical and social issues in genetics in 18 nations. This book reports and discusses their second and more representative study in 36 nations. The survey focused on actual situations that occur in the practice of medical genetics, presented as case vignettes that can also be used in teaching and policy discussion. Among the issues discussed are privacy, prenatal diagnosis, patient autonomy, directiveness in counseling, sex selection, forensic DNA banking, "genetic discrimination," and "eugenics". This is Dorothy Wertz's final book, as she died in April, 2003. It is a one of a kind cross-cultural study of complex ethical issues in the uses of genetic information. No one else has attempted to look at the international aspects of medical genetics on such a broad scale. The results provide a resource for discussion both within and among nations. Much bioethical and policy discussion now occurs in an information vacuum. The survey showed that what people would do, and their reasons for doing it, differed considerably from what ethicists think they "should" do. Many will be surprised at the results, especially in nations where bioethical discussion is just beginning. Genetics and Ethics in Global Perspective is of interest to medical geneticists, genetic counselors, social scientists and anthropologists who study cross-cultural issues, bioethicists and bioethics centers and health policy makers.

Ethical Issues in Governing Biobanks

Nikola Biller-Andorno,Alexander M. Capron
Ethical Issues in Governing Biobanks Book PDF

Author : Nikola Biller-Andorno,Alexander M. Capron
Publisher : Routledge
Page : 268 pages
File Size : 52,8 Mb
Release : 2016-05-13
Category : Science
ISBN : 9781317141495

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Ethical Issues in Governing Biobanks by Nikola Biller-Andorno,Alexander M. Capron Pdf

Population genomics research drawing on genetic databases has expanded rapidly, with some of this information being combined in 'biobanks'. Managing this information in an appropriate way is a highly complex ethical issue in the health policy arena. This book combines theoretical and empirical research to analyze the areas of conflict and consensus in the regulatory and ethical frameworks that have been developed to govern biobanks. Ethicists from the Department of Ethics, Trade, Human Rights and Health Law (ETH) of the World Health Organization, the Institute of Biomedical Ethics of Geneva University and the Institute of Biomedical Ethics of the University of Zurich, with the support of the Geneva International Academic Network (GIAN), examine the conditions under which genetic databases can be established, kept, and made use of in an ethically acceptable way. In addition to a comprehensive review of the scientific literature and a comparative analysis of existing normative frameworks, they present the results of in-depth interviews with experts around the world concerning the most unresolved and controversial issues. The results of that study, combined with their normative analysis, leads to recommendations for a better international framework.

Ethics and Human Genetics

Dorothy C. Wertz,John C. Fletcher
Ethics and Human Genetics Book PDF

Author : Dorothy C. Wertz,John C. Fletcher
Publisher : Springer Science & Business Media
Page : 564 pages
File Size : 50,7 Mb
Release : 2012-12-06
Category : Medical
ISBN : 9783642736568

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Ethics and Human Genetics by Dorothy C. Wertz,John C. Fletcher Pdf

Based in part on a survey of ethical decision-marking among 682 medical geneticists worldwide, this book includes a chapter authored by a geneticistand an ethicist in 19 nations, describing genetic services, counselling, screening, prenatal diagnosis, and major ethical problems and social controversies faced by geneticists. The concluding chapter describes ethical and policy issues that exist worldwide, and offerssome possible resolutions.

Populations and Genetics

Bartha Maria Knoppers
Populations and Genetics Book PDF

Author : Bartha Maria Knoppers
Publisher : BRILL
Page : 668 pages
File Size : 44,9 Mb
Release : 2003-12-01
Category : Law
ISBN : 9789047402930

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Populations and Genetics by Bartha Maria Knoppers Pdf

Genetic research and testing is not limited to individuals and their families. Increasingly, there is focus on communities and even whole populations. This raises legal and socio-ethical and issues that have not been addressed. In this age of international biobanking involving populations, are current legal and ethical approaches sufficient? This book of selected papers covers population research and banking as well as accompanying confidentiality, and governance concerns. Possible commercialization, patents, benefit sharing, discrimination, and the role of patient organizations and of developing countries are also discussed. New perspectives and models are provided. The book concludes with a Statement of Principles on the Ethical Conduct of Human Genetic Research Involving Populations. Policymakers, academics, legislators and researchers will find this book to be current and controversial. The human genome may be mapped but the legal and socio-ethical debate is far from over.

Clinical Ethics at the Crossroads of Genetic and Reproductive Technologies

Sorin Hostiuc
Clinical Ethics at the Crossroads of Genetic and Reproductive Technologies Book PDF

Author : Sorin Hostiuc
Publisher : Academic Press
Page : 431 pages
File Size : 46,7 Mb
Release : 2018-08-07
Category : Medical
ISBN : 9780128137659

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Clinical Ethics at the Crossroads of Genetic and Reproductive Technologies by Sorin Hostiuc Pdf

Clinical Ethics at the Crossroads of Genetic and Reproductive Technologies offers thorough discussions on preconception carrier screening, genetic engineering and the use of CRISPR gene editing, mitochondrial gene replacement therapy, sex selection, predictive testing, secondary findings, embryo reduction and the moral status of the embryo, genetic enhancement, and the sharing of genetic data. Chapter contributions from leading bioethicists and clinicians encourage a global, holistic perspective on applied challenges and the moral questions relating the implementation of genetic reproductive technology. The book is an ideal resource for practitioners, regulators, lawmakers, clinical researchers, genetic counselors and graduate and medical students. As the Human Genome Project has triggered a technological revolution that has influenced nearly every field of medicine, including reproductive medicine, obstetrics, gynecology, andrology, prenatal genetic testing, and gene therapy, this book presents a timely resource. Provides practical analysis of the ethical issues raised by cutting-edge techniques and recent advances in prenatal and reproductive genetics Contains contributions from leading bioethicists and clinicians who offer a global, holistic perspective on applied challenges and moral questions relating to genetic and genomic reproductive technology Discusses preconception carrier screening, genetic engineering and the use of CRISPR gene editing, mitochondrial gene replacement therapy, ethical issues, and more

Genomics and Bioethics: Interdisciplinary Perspectives, Technologies and Advancements

Hongladarom, Soraj
Genomics and Bioethics Interdisciplinary Perspectives Technologies and Advancements Book PDF

Author : Hongladarom, Soraj
Publisher : IGI Global
Page : 332 pages
File Size : 43,7 Mb
Release : 2010-09-30
Category : Medical
ISBN : 9781616928858

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Genomics and Bioethics: Interdisciplinary Perspectives, Technologies and Advancements by Hongladarom, Soraj Pdf

"This book focuses on ethical, social, cultural, and legal implications of genetics, genomics and genetic databanking as they relate to concrete cultural and historical traditions"--Provided by publisher.

Ethics and Human Genetics

Dorothy C. Wertz,John C. Fletcher
Ethics and Human Genetics Book PDF

Author : Dorothy C. Wertz,John C. Fletcher
Publisher : Springer
Page : 536 pages
File Size : 44,7 Mb
Release : 1989-08-10
Category : Medical
ISBN : 3540192247

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Ethics and Human Genetics by Dorothy C. Wertz,John C. Fletcher Pdf

Based in part on a survey of ethical decision-marking among 682 medical geneticists worldwide, this book includes a chapter authored by a geneticistand an ethicist in 19 nations, describing genetic services, counselling, screening, prenatal diagnosis, and major ethical problems and social controversies faced by geneticists. The concluding chapter describes ethical and policy issues that exist worldwide, and offerssome possible resolutions.

Clinical Ethics at the Crossroads of Genetic and Reproductive Technologies

Sorin Hostiuc
Clinical Ethics at the Crossroads of Genetic and Reproductive Technologies Book PDF

Author : Sorin Hostiuc
Publisher : Elsevier
Page : 556 pages
File Size : 43,9 Mb
Release : 2023-08-14
Category : Science
ISBN : 9780443190469

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Clinical Ethics at the Crossroads of Genetic and Reproductive Technologies by Sorin Hostiuc Pdf

The Human Genome Project has triggered a technological revolution that has influenced nearly every field of medicine, including reproductive medicine, obstetrics, gynecology, andrology, prenatal genetic testing, and gene therapy. This second edition of Clinical Ethics at the Crossroads of Genetic and Reproductive Technologies offers a thorough, timely discussion of ethical issues raised by the latest genetic and genomic technologies applied in human reproductive and prenatal medicine, providing practical recommendations, guidelines, and algorithms to support ethical clinical practice. Here, international experts consider the ethics of technologies from preconception carrier screening to genetic engineering, CRISPR gene editing, mitochondrial gene replacement therapy, sex selection, predictive testing, secondary findings, embryo reduction, and the moral status of the embryo, genetic enhancement, and the sharing of genetic data. Throughout the book, contributors adopt a global, holistic perspective on applied challenges and the moral questions around the implementation of genetic reproductive technologies. The book is an ideal resource for practitioners, regulators, lawmakers, clinical researchers, genetic counselors, and graduate and medical students.This fully updated second edition examines new developments in the field, tackling ethical aspects of organoid development, recent advances in pharmacogenomics, direct-to-consumer genetic testing, and genetic engineering. • Provides practical analysis of the ethical issues raised by cutting-edge techniques and recent advances in prenatal and reproductive geneticsContains contributions from leading bioethicists and clinicians who offer a global, holistic perspective on applied challenges and moral questions relating to genetic and genomic reproductive technology • Discusses preconception carrier screening, genetic engineering, and the use of CRISPR gene editing, mitochondrial gene replacement therapy, and ethical issues, among others • Considers ethical aspects of recent advances and new technologies in the field, from organoid development to pharmacogenomics and direct-to-consumer genetic testing

Global Perspectives on Precision Medicine

Evangel Sarwar
Global Perspectives on Precision Medicine Book PDF

Author : Evangel Sarwar
Publisher : Springer Nature
Page : 239 pages
File Size : 43,7 Mb
Release : 2023-04-04
Category : Philosophy
ISBN : 9783031285936

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Global Perspectives on Precision Medicine by Evangel Sarwar Pdf

This book presents the promises of Precision Medicine (PM) and the challenges of its implementation in daily clinical routine, while addressing the anticipated ethical and social implications. It is the first book that critically analyzes the potential and the dilemmas relevant to genomics and precision medicine from healthcare, public health and global perspectives. The nine chapters presented in this book elaborate on pharmacogenomics' crucial role in maximizing the potential benefits and minimizing medication's potential risks in groups of people, especially in cancer treatment and other health conditions. Infectious and non-communicable diseases (NCDs) are also discussed in this book by identifying challenges and ways to overcome them. Essential concepts are addressed, such as health-related benefits and harm to individuals and the broader community, including threats to individual privacy and autonomy, which warrant just distribution of scarce resources. The book also identifies and addresses the lack of competency in the healthcare workforce in the era of PM and discusses the path to laying the ethical foundation for the implementation of PM in healthcare organizations.

Genetic Ethics

John Frederic Kilner,Rebecca Davis Pentz,Frank E. Young
Genetic Ethics Book PDF

Author : John Frederic Kilner,Rebecca Davis Pentz,Frank E. Young
Publisher : Wm. B. Eerdmans Publishing
Page : 308 pages
File Size : 49,9 Mb
Release : 1997
Category : Christianity
ISBN : 0802844286

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Genetic Ethics by John Frederic Kilner,Rebecca Davis Pentz,Frank E. Young Pdf

This timely volume, written by scholars and practitioners at the forefront of genetic research, will help readers assess from a Christian perspective the ethical questions rased by today's genetic advancements.

Evaluating Human Genetic Diversity

National Research Council,Division on Earth and Life Studies,Commission on Life Sciences,Committee on Human Genome Diversity
Evaluating Human Genetic Diversity Book PDF

Author : National Research Council,Division on Earth and Life Studies,Commission on Life Sciences,Committee on Human Genome Diversity
Publisher : National Academies Press
Page : 101 pages
File Size : 54,6 Mb
Release : 1998-01-19
Category : Science
ISBN : 9780309184748

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Evaluating Human Genetic Diversity by National Research Council,Division on Earth and Life Studies,Commission on Life Sciences,Committee on Human Genome Diversity Pdf

This book assesses the scientific value and merit of research on human genetic differencesâ€"including a collection of DNA samples that represents the whole of human genetic diversityâ€"and the ethical, organizational, and policy issues surrounding such research. Evaluating Human Genetic Diversity discusses the potential uses of such collection, such as providing insight into human evolution and origins and serving as a springboard for important medical research. It also addresses issues of confidentiality and individual privacy for participants in genetic diversity research studies.

Negotiating Bioethics

Adèle Langlois
Negotiating Bioethics Book PDF

Author : Adèle Langlois
Publisher : Routledge
Page : 221 pages
File Size : 47,6 Mb
Release : 2013-08-15
Category : Political Science
ISBN : 9781136237003

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Negotiating Bioethics by Adèle Langlois Pdf

A PDF version of this book is available for free in Open Access at www.tandfebooks.com. It has been made available under a Creative Commons Attribution-Non Commercial-No Derivatives 3.0 license. The sequencing of the entire human genome has opened up unprecedented possibilities for healthcare, but also ethical and social dilemmas about how these can be achieved, particularly in developing countries. UNESCO’s Bioethics Programme was established to address such issues in 1993. Since then, it has adopted three declarations on human genetics and bioethics (1997, 2003 and 2005), set up numerous training programmes around the world and debated the need for an international convention on human reproductive cloning. Negotiating Bioethics presents Langlois' research on the negotiation and implementation of the three declarations and the human cloning debate, based on fieldwork carried out in Kenya, South Africa, France and the UK, among policy-makers, geneticists, ethicists, civil society representatives and industry professionals. The book examines whether the UNESCO Bioethics Programme is an effective forum for (a) decision-making on bioethics issues and (b) ensuring ethical practice. Considering two different aspects of the UNESCO Bioethics Programme – deliberation and implementation – at international and national levels, Langlois explores: how relations between developed and developing countries can be made more equal who should be involved in global level decision-making and how this should proceed how overlap between initiatives can be avoided what can be done to improve the implementation of international norms by sovereign states how far universal norms can be contextualized what impact the efficacy of national level governance has at international level

Assessing Genetic Risks

Institute of Medicine,Committee on Assessing Genetic Risks
Assessing Genetic Risks Book PDF

Author : Institute of Medicine,Committee on Assessing Genetic Risks
Publisher : National Academies Press
Page : 353 pages
File Size : 49,9 Mb
Release : 1994-01-01
Category : Medical
ISBN : 9780309047982

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Assessing Genetic Risks by Institute of Medicine,Committee on Assessing Genetic Risks Pdf

Raising hopes for disease treatment and prevention, but also the specter of discrimination and "designer genes," genetic testing is potentially one of the most socially explosive developments of our time. This book presents a current assessment of this rapidly evolving field, offering principles for actions and research and recommendations on key issues in genetic testing and screening. Advantages of early genetic knowledge are balanced with issues associated with such knowledge: availability of treatment, privacy and discrimination, personal decision-making, public health objectives, cost, and more. Among the important issues covered: Quality control in genetic testing. Appropriate roles for public agencies, private health practitioners, and laboratories. Value-neutral education and counseling for persons considering testing. Use of test results in insurance, employment, and other settings.