Global Genes Local Concerns

Author : Timo Minssen,Janne Rothmar Herrmann,Jens Schovsbo
Publisher : Edward Elgar Publishing
Page : 304 pages
File Size : 47,7 Mb
Release : 2019
Category : LAW
ISBN : 9781788116190

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Global Genes, Local Concerns by Timo Minssen,Janne Rothmar Herrmann,Jens Schovsbo Pdf

With interdisciplinary chapters written by lawyers, sociologists, doctors and biobank practitioners, Global Genes, Local Concerns identifies and discusses the most pressing issues in contemporary biobanking. Addressing pressing questions such as how do national biobanks best contribute to translational research and how could academic and industrial exploitation, ownership and IPR issues be addressed and facilitated, this book contributes to the continued development of international biobanking by highlighting and analysing the complexities in this important area of research.

Author : National Research Council,Board on Agriculture,Committee on Managing Global Genetic Resources: Agricultural Imperatives
Publisher : National Academies Press
Page : 476 pages
File Size : 52,5 Mb
Release : 1993-02-01
Category : Technology & Engineering
ISBN : 9780309131865

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Managing Global Genetic Resources by National Research Council,Board on Agriculture,Committee on Managing Global Genetic Resources: Agricultural Imperatives Pdf

This anchor volume to the series Managing Global Genetic Resources examines the structure that underlies efforts to preserve genetic material, including the worldwide network of genetic collections; the role of biotechnology; and a host of issues that surround management and use. Among the topics explored are in situ versus ex situ conservation, management of very large collections of genetic material, problems of quarantine, the controversy over ownership or copyright of genetic material, and more.

Author : Rajam Neethu
Publisher : Kluwer Law International B.V.
Page : 342 pages
File Size : 41,8 Mb
Release : 2019-06-21
Category : Law
ISBN : 9789403506227

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Governing Intellectual Property Rights Within Publicly Funded Biobanks by Rajam Neethu Pdf

Governing Intellectual Property Rights Within Publicly Funded Biobanks R. Neethu The boom in biobanks and health databases as research infrastructures have evoked various legal and ethical debates. Since then numerous new developments have emerged such as digitalization, big-data research and artificial intelligence which has important implications for biobank-based research and collaborations. This new paradigm offers new legal challenges for commercial involvement particularly within a publicly funded setting. In this innovative book, the author shows that securing maximum social benefit out of the knowledge emanating from the use of biobank resources lies in managing intellectual property inputs and outputs effectively in keeping with the values core to such research. Focusing on the challenges of involving intellectual property rights (IPRs) particularly in the precompetitive phase of biobank-based research, the book offers an extensive understanding of the role of different IPRs and identifies the gaps in the law and its implications for biobanks. The analysis covers important aspects in relation to biobanks such as: Digital integration and biomedical data storage; Ownership of biological samples; Commercialization and benefit sharing; Partnership models; Public sector research; Disposition of samples; Consent; Cross-border exchange; Trade secrecy; Privacy; Regulatory stewardship; Business strategies; Ethical considerations over biological resources; Patenting of inventions relating to personalized medicine; Ethical parameters within patent law; and Rights regarding genetic data and databases. The book includes observations, case studies and interviews conducted by the author. In conclusion, the author offers cogent recommendations for legal interoperability of IP rules and research practices designed to enhance the ability of biobanks to share, access and reuse data. This book is the first of its kind to explore the organizational and legislative choices for biobanks particularly while engaging in the protection of research results and technology transfer within a publicly funded setting. It will be of substantial interest to all stakeholders in biobanking, especially policymakers, biobankers and researchers working in the field of health law as well as for legal practitioners, academics and patient interest groups.

Author : Mary Rawlinson,Caleb Ward
Publisher : Routledge
Page : 658 pages
File Size : 41,5 Mb
Release : 2016-07-01
Category : Philosophy
ISBN : 9781317595496

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The Routledge Handbook of Food Ethics by Mary Rawlinson,Caleb Ward Pdf

While the history of philosophy has traditionally given scant attention to food and the ethics of eating, in the last few decades the subject of food ethics has emerged as a major topic, encompassing a wide array of issues, including labor justice, public health, social inequity, animal rights and environmental ethics. This handbook provides a much needed philosophical analysis of the ethical implications of the need to eat and the role that food plays in social, cultural and political life. Unlike other books on the topic, this text integrates traditional approaches to the subject with cutting edge research in order to set a new agenda for philosophical discussions of food ethics. The Routledge Handbook of Food Ethics is an outstanding reference source to the key topics, problems and debates in this exciting subject and is the first collection of its kind. Comprising over 35 chapters by a team of international contributors, the Handbook is divided into 7 parts: the phenomenology of food gender and food food and cultural diversity liberty, choice and food policy food and the environment farming and eating other animals food justice Essential reading for students and researchers in food ethics, it is also an invaluable resource for those in related disciplines such as environmental ethics and bioethics.

Author : Irene Calboli,Maria Lillà Montagnani
Publisher : Oxford University Press
Page : 913 pages
File Size : 43,6 Mb
Release : 2021
Category : Law
ISBN : 9780198826743

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Handbook of Intellectual Property Research by Irene Calboli,Maria Lillà Montagnani Pdf

"The relevance of intellectual property (IP) law has increased dramatically over the last several years. Globalization, digitization, and the rise of post-industrial information-based industries have all contributed to a new prominence of IP law as one of the most important factors in driving innovation and economic development. At the same time, the significant expansion of IP rules has impacted many areas of public policy such as public health, the environment, biodiversity, agriculture, information, in an unprecedented manner. The growing importance of IP law has led to an exponential growth of academic research in this area. This Book offers a comprehensive overview of the methods and approaches that can be used to address and develop scholarly research questions related to IP law. In particular, this Book aims to provide a useful resource that can be used by IP scholars who are interested in expanding their expertise in a specific research method or seek to acquire an understanding of alternative lenses that could be applied to their research. Even though this Book does not claim to include all existing research methodologies, it represents one of the largest and most diverse compilations, which has been carried out to date. In addition, the authors of this Book comprise an equally diverse group of scholars from different jurisdictions, backgrounds, and legal traditions. This diversity, both regarding the topics and the authors, is a fundamental feature of the Book, which seeks to assist IP scholars worldwide in their research journeys." --

Author : Jane Reichel,Santa Slokenberga,Olga Tzortzatou,Springer Nature
Publisher : Springer Nature
Page : 432 pages
File Size : 48,6 Mb
Release : 2021
Category : Biobanks
ISBN : 9783030493882

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GDPR and Biobanking by Jane Reichel,Santa Slokenberga,Olga Tzortzatou,Springer Nature Pdf

Part I Setting the scene -- Introduction: Individual rights, the public interest and biobank research 4000 (8) -- Genetic data and privacy protection -- Part II GDPR and European responses -- Biobank governance and the impact of the GDPR on the regulation of biobank research -- Controller' and processor's responsibilities in biobank research under GDPR -- Individual rights in biobank research under GDPR -- Safeguards and derogations relating to processing for archiving purposes in the scientific purposes: Article 89 analysis for biobank research -- A Pan-European analysis of Article 89 implementation and national biobank research regulations -- EEA, Switzerland analysis of GDPR requirements and national biobank research regulations -- Part III National insights in biobank regulatory frameworks -- Selected 10-15 countries for reports: Germany -- Greece -- France -- Finland -- Sweden -- United Kingdom -- Part IV Conclusions -- Reflections on individual rights, the public interest and biobank research, ramifications and ways forward. .

Author : Daniel J.Gervais
Publisher : Edward Elgar Publishing
Page : 384 pages
File Size : 46,8 Mb
Release : 2020-04-24
Category : Law
ISBN : 9781839104374

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Fairness, Morality and Ordre Public in Intellectual Property by Daniel J.Gervais Pdf

This incisive book explores the ways in which the major notions of fairness, morality and ordre public can be used both to justify and to limit intellectual property rights. Written by an international team of experts in the field, it provides varied and sometimes divergent perspectives on how these notions are applied to different rights and in different contexts.

Author : Mark A. Lemley,Deven Desai
Publisher : Frontiers Media SA
Page : 274 pages
File Size : 44,7 Mb
Release : 2023-04-27
Category : Science
ISBN : 9782832521953

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Scarcity, regulation, and the abundance society by Mark A. Lemley,Deven Desai Pdf

Author : Vincenzo Pavone,Joanna Goven
Publisher : Springer
Page : 350 pages
File Size : 55,5 Mb
Release : 2017-09-18
Category : Social Science
ISBN : 9783319556512

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Bioeconomies by Vincenzo Pavone,Joanna Goven Pdf

This book explores the promissory discourses and practices associated with the bioeconomy, focusing especially on the transformation of institutions; the creation, appropriation, and distribution of value; the struggle over resources, power, and meaning; and the role of altruism, kinship, and care practices. Governments and science enthusiasts worldwide are embracing the bioeconomy, championing it as the key to health, wealth, and sustainability, while citing it as justification to transform research and regulatory institutions, health and agricultural practices, ethics of privacy and ownership, and conceptions of self and kin. Drawing together studies from Asia, Australia, the Americas, and Europe, this volume encompasses subjects as diverse as regenerative medicine, population health research, agricultural finance, biobanking, assisted reproduction, immigration, breastfeeding, self-help groups, GM fish, and mining sewage.

Author : Institute of Medicine,Committee on Assessing Genetic Risks
Publisher : National Academies Press
Page : 353 pages
File Size : 41,6 Mb
Release : 1994-01-01
Category : Medical
ISBN : 9780309047982

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Assessing Genetic Risks by Institute of Medicine,Committee on Assessing Genetic Risks Pdf

Raising hopes for disease treatment and prevention, but also the specter of discrimination and "designer genes," genetic testing is potentially one of the most socially explosive developments of our time. This book presents a current assessment of this rapidly evolving field, offering principles for actions and research and recommendations on key issues in genetic testing and screening. Advantages of early genetic knowledge are balanced with issues associated with such knowledge: availability of treatment, privacy and discrimination, personal decision-making, public health objectives, cost, and more. Among the important issues covered: Quality control in genetic testing. Appropriate roles for public agencies, private health practitioners, and laboratories. Value-neutral education and counseling for persons considering testing. Use of test results in insurance, employment, and other settings.

Author : Samuel O. Idowu,René Schmidpeter,Matthias S. Fifka
Publisher : Springer
Page : 518 pages
File Size : 40,9 Mb
Release : 2015-02-12
Category : Business & Economics
ISBN : 9783319135663

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Corporate Social Responsibility in Europe by Samuel O. Idowu,René Schmidpeter,Matthias S. Fifka Pdf

This book explores the current state of Corporate Social Responsibility (CSR) in 24 European nations, examining the state of the development and practice of CSR and sustainability for organizations in these countries. The common denominator for all of the book’s 25 chapters is a management perspective rather than an ethical discourse. The book therefore represents a comprehensive survey of initiatives and activities in the field of CSR and provides a wealth of complete cases and examples for different approaches to sustainable and responsible management practice. The book also reviews the relevant political and governmental guidelines and frameworks for organizations, both on a national and a European level. Europe has taken a leading role in the promotion and implementation of CSR. This book showcases how, through CSR, enterprises can significantly contribute to achieving the European Union’s treaty objectives of sustainable development and a highly competitive social market economy.

Author : Panos Constantinides
Publisher : Taylor & Francis
Page : 151 pages
File Size : 40,5 Mb
Release : 2023-12-08
Category : Health & Fitness
ISBN : 9781003807414

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Digital Transformation in Healthcare by Panos Constantinides Pdf

In an era of digital transformation within healthcare management, this important book outlines an ecosystem perspective to illustrate how a range of actors can use digital technologies to offer better value within the provision of healthcare services. From mobile applications to point-of-care diagnostic devices, from AI-enabled applications for data analysis to cloud models for service delivery and blockchain infrastructures, it provides a roadmap for how healthcare organizations can leverage these digital technologies. The book is also illustrated with case studies from different areas, including software for medical diagnostics, blockchain infrastructures for use in pharmaceutical supply chains and clinical trials, and federated learning platforms for genomics. Covering key issues such as patients’ rights to data and written in the aftermath of the COVID-19 pandemic, the book will be essential reading for researchers, postgraduate students, and professionals interested in how technology can support and enable healthcare service provision.

Author : Steven M. Druker
Publisher : Unknown
Page : 0 pages
File Size : 53,7 Mb
Release : 2015
Category : Generic engineering
ISBN : 0985616903

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Altered Genes, Twisted Truth by Steven M. Druker Pdf

Offers an exposé on the genetic engineering of foods, maintaining that the unduly reckless way it has been practiced is based, not on sound science, but the subversion of science, and that its promotion has been marked by corruption and the suppression or distortion of facts.

Author : Françoise Baylis
Publisher : Harvard University Press
Page : 305 pages
File Size : 50,9 Mb
Release : 2019-09-17
Category : Science
ISBN : 9780674976719

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Altered Inheritance by Françoise Baylis Pdf

With the advent of CRISPR gene-editing technology, designer babies have become a reality. Françoise Baylis insists that scientists alone cannot decide the terms of this new era in human evolution. Members of the public, with diverse interests and perspectives, must have a role in determining our future as a species.

Author : Jean-Paul Gaudilliere,Claire Beaudevin,Christoph Gradmann,Laurent Pordi,Anne M. Lovell
Publisher : Unknown
Page : 248 pages
File Size : 47,9 Mb
Release : 2020-11-09
Category : History
ISBN : 1526149672

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Global Health and the New World Order by Jean-Paul Gaudilliere,Claire Beaudevin,Christoph Gradmann,Laurent Pordi,Anne M. Lovell Pdf

This book proposes an encompassing view of the transition from international public health to global health, bringing together historians and anthropologists exploring the relationship between knowledge, practices and policies. Historical and anthropological studies of the governance of health outside Europe and North America leave us with two gaps. The first is a temporal gap between the historiography of international public health through the 1970s and the numerous current anthropological studies of global health. The second gap originates in problems of scale. Macro-inquiries of institutions and politics abound, as do micro-investigations of local configurations. The book interrogates these gaps through an engagement between the disciplines, the harnessing of concepts (circulation, scale, transnationalism) that cross both domains, and the selection of four domains of interventions and globalisation: tuberculosis, mental health, medical genetics and traditional (Asian) medicines.