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Grandparents of Children with Disabilities by Liora Findler,Orit Taubman – Ben-Ari Pdf
This briefs offers a comprehensive view of the journey of grandparents of children with disabilities by employing a wide range of theoretical approaches such as intergenerational relationships, positive psychology, psychoanalytic views and models of stress. It presents a multidimensional view of grandparents, which begins with the general role of grandparents in the family and the transition to grandparenthood, as a major life event. The briefs moves on to discuss grandparents’ roles under unique circumstances such as illness or disability in the family and then deals with perspectives of parents of children with disabilities on the role of grandparents. Finally, it reviews attitudes of professionals toward grandparents and concludes with suggested intervention strategies for working with families on intergenerational relationships.
Grandparenting Children with Disabilities by Madonna Harrington Meyer,Ynesse Abdul-Malak Pdf
Childhood disabilities, particularly cognitive disabilities, are on the rise yet social programs and services to help US families respond to disabilities are not. Many families turn to grandparents for assistance juggling work, family responsibilities, and specialized therapies. This book is based on in-depth interviews with grandparents who are providing at least some care to grandchildren with disabilities. The analyses will help to better understand (1) under what conditions grandparents provide care and support, (2) what types and intensities of care and support grandparents provide, and (3) the impact of that care and support on grandparents’ social, emotional, physical, and financial wellbeing. In this fascinating and provocative book, Madonna Harrington Meyer and Ynesse Abdul-Malak take readers on a deep dive into the complex lives of grandparents who care for their disabled grandchildren. In Grandparenting Children with Disabilities, their interviews reveal the joy, meaning, and purpose grandparents find in caregiving, the challenges and frustrations they encounter, and the many ways they compromise their own health and well-being for the sake of their grandchildren. Drawing from theories of cumulative inequality and from their deep knowledge of the US policy context, the authors lay bare the systemic failures that leave families of children with disabilities without adequate support and that place the most vulnerable among them at grave physical, emotional, and financial risk... Jane McLeod, Provost Professor, Indiana University Grandparents in the U.S. already take on far more parenting responsibilities as compared to their peers in other countries. Grandparenting Children with Disabilities demonstrates that the intensity of these responsibilities is compounded for those whose grandchildren have disabilities given limited policy supports and a society still largely unaccommodating to those with disabilities. This book beautifully navigates the tension between the love these grandparents have for their grandchildren and the challenges they face caring for them. Pamela Herd, Professor, Georgetown University Grandparenting Children with Disabilities offers important insights about the lived experience of older adults who care for and care about their grandchildren...The authors skillfully integrate the stories they tell with consideration of macro social structural influences and life course perspectives... I recommend it highly! Eva Kahana, Distinguished University Professor, Case Western Reserve
Grandparents as Carers of Children with Disabilities by Phillip Mccallion,Matthew Janicki Pdf
Older adults caring for developmentally disabled children have special needs. Are you and your agency doing all you can to help? Grandparents as Carers of Children with Disabilities: Facing the Challenges provides the first comprehensive picture of grandparents caring for children with developmental disabilities and their related requirements. Here you'll find information on the mental and physical health of these caregivers, highlighting their unique needs and the roles that agencies and advocates need to play in order to meet them. This unique volume will assist practitioners, administrators, and policymakers in including the needs of this group into planning and service delivery efforts. Grandparents as Carers of Children with Disabilities: Facing the Challenges takes an incisive look at: characteristics of these carers and the children they care for children in kinship care and their special needs the effect of kinship foster care on caregiving grandmothers the approach of Latino grandparents to bringing up children with special needs the service needs and provision issues of grandparent carers In this book, here is some of what you'll find: data from a school-based comprehensive multigenerational program in East Harlem, New York City, which explores environmental stressors associated with children coming into kinship care, discussing the impact on grandparent caregivers, with a focus on health status and access to care correlates of self-reported depressive symptoms among urban Latino grandparent caregivers a survey of grandparents (mostly African American, mostly female) caring for children with developmental disabilities in New York City that focuses on health status, emotional state, use of formal and informal services, and general life situation helpful charts and tables that put the facts at your fingertips a demonstration project that used an intervention model to determine how a three-pronged approach using outreach, support groups, and case management could be used to aid grandparents caring for children with developmental delay or disabilities ... and much more! As editors McCallion and Janicki point out, ”Primary childcare is rapidly becoming a normative experience of grandparenting. Grandparent primary care is found among all ethnic groups, and across all socioeconomic levels of society. Concern over preserving the family often causes grandparents to assume responsibility in spite of their limited financial means or own health conditions.” Grandparents as Carers of Children with Disabilities will enable you to provide these courageous, loving people with the help they need to do this extraordinarily difficult and often thankless job.
Grandparents as Carers of Children with Disabilities by Philip McCallion Pdf
Older adults caring for developmentally disabled children have special needs. Are you and your agency doing all you can to help? Grandparents as Carers of Children with Disabilities: Facing the Challenges provides the first comprehensive picture of grandparents caring for children with developmental disabilities and their related requirements. Here you'll find information on the mental and physical health of these caregivers, highlighting their unique needs and the roles that agencies and advocates need to play in order to meet them. This unique volume will assist practitioners, administrators, and policymakers in including the needs of this group into planning and service delivery efforts. Grandparents as Carers of Children with Disabilities: Facing the Challenges takes an incisive look at: characteristics of these carers and the children they care for children in kinship care and their special needs the effect of kinship foster care on caregiving grandmothers the approach of Latino grandparents to bringing up children with special needs the service needs and provision issues of grandparent carers In this book, here is some of what you'll find: data from a school-based comprehensive multigenerational program in East Harlem, New York City, which explores environmental stressors associated with children coming into kinship care, discussing the impact on grandparent caregivers, with a focus on health status and access to care correlates of self-reported depressive symptoms among urban Latino grandparent caregivers a survey of grandparents (mostly African American, mostly female) caring for children with developmental disabilities in New York City that focuses on health status, emotional state, use of formal and informal services, and general life situation helpful charts and tables that put the facts at your fingertips a demonstration project that used an intervention model to determine how a three-pronged approach using outreach, support groups, and case management could be used to aid grandparents caring for children with developmental delay or disabilities ... and much more! As editors McCallion and Janicki point out, "Primary childcare is rapidly becoming a normative experience of grandparenting. Grandparent primary care is found among all ethnic groups, and across all socioeconomic levels of society. Concern over preserving the family often causes grandparents to assume responsibility in spite of their limited financial means or own health conditions." Grandparents as Carers of Children with Disabilities will enable you to provide these courageous, loving people with the help they need to do this extraordinarily difficult and often thankless job.
Grandparenting a Child with Special Needs by Charlotte Thompson Pdf
When a new baby is born into a family, grandparents are excited about having a baby to enjoy and love. If the child is born with a disability, it can be difficult to know how to react and how best to help the child and the family as a whole. This book provides guidance on how to grandparent a child with special needs and give every grandchild the love and care they deserve and parents the added support they need. From coming to terms with a diagnosis, to helping with the transition from adolescence to adulthood, the book gives clear advice on grandparenting a child with special needs throughout their life. The author covers the medical, emotional and practical aspects of being a grandparent and explores important issues such as researching resources for specialized care, accessing financial and legal resources and, just as importantly, how to have fun and spend quality time with a grandchild with a disability. The book also addresses how to handle the diagnosis of a serious accident or progressive illness. Grandparenting a Child with Special Needs is a unique guide for grandparents keen to make a difference to the lives of their children and their grandchildren.
Grandparents as Carers of Children with Disabilities by Phillip Mccallion,Matthew Janicki Pdf
Older adults caring for developmentally disabled children have special needs. Are you and your agency doing all you can to help? Grandparents as Carers of Children with Disabilities: Facing the Challenges provides the first comprehensive picture of grandparents caring for children with developmental disabilities and their related requirements. Here you'll find information on the mental and physical health of these caregivers, highlighting their unique needs and the roles that agencies and advocates need to play in order to meet them. This unique volume will assist practitioners, administrators, and policymakers in including the needs of this group into planning and service delivery efforts. Grandparents as Carers of Children with Disabilities: Facing the Challenges takes an incisive look at: characteristics of these carers and the children they care for children in kinship care and their special needs the effect of kinship foster care on caregiving grandmothers the approach of Latino grandparents to bringing up children with special needs the service needs and provision issues of grandparent carers In this book, here is some of what you'll find: data from a school-based comprehensive multigenerational program in East Harlem, New York City, which explores environmental stressors associated with children coming into kinship care, discussing the impact on grandparent caregivers, with a focus on health status and access to care correlates of self-reported depressive symptoms among urban Latino grandparent caregivers a survey of grandparents (mostly African American, mostly female) caring for children with developmental disabilities in New York City that focuses on health status, emotional state, use of formal and informal services, and general life situation helpful charts and tables that put the facts at your fingertips a demonstration project that used an intervention model to determine how a three-pronged approach using outreach, support groups, and case management could be used to aid grandparents caring for children with developmental delay or disabilities ... and much more! As editors McCallion and Janicki point out, ”Primary childcare is rapidly becoming a normative experience of grandparenting. Grandparent primary care is found among all ethnic groups, and across all socioeconomic levels of society. Concern over preserving the family often causes grandparents to assume responsibility in spite of their limited financial means or own health conditions.” Grandparents as Carers of Children with Disabilities will enable you to provide these courageous, loving people with the help they need to do this extraordinarily difficult and often thankless job.
About the Book Our Grandfamily is an honest, yet reassuring look at the struggles and joys of living in a skip-generation family. Designed as a flip-sided book, dual stories allow readers to experience a unique type of family arrangement from the perspective of both grandparents and grandchildren. With humour, heart, and highlighted feeling words to inspire conversation, Our Grandfamily is both entertaining and educational. About Skip-Generation Families The portrait of the North American family is changing dramatically, with skip-generation families becoming increasingly common. These special households consist of grandparents and grandchildren living life together. The middle generation, parents, are absent from the home – but still loved. This complex style of family faces numerous challenges and support can be difficult to find. The purpose of this book is to raise awareness of Grandfamilies, to reduce the isolation felt by many grandparents and grandchildren, and to encourage meaningful discussions both within skip-generation families and throughout the broader community. About The SHARE Project Our Grandfamily is the result of the collective efforts of those involved in The SHARE Project. SHARE stands for Skip-Generation Families Helping Others through Awareness Resources and Education. The project was inspired by grandparents and grandchildren living in skip-generation families in Calgary, Alberta and was generously funded by the Government of Canada’s New Horizons for Seniors Program. In addition to this children’s book, the SHARE Project group also produced a resource for grandparents titled, Lasting Legacy: A Handbook of Guidance and Hope for Grandparents Raising Grandchildren. This resource is available free of charge at www.childrenslink.ca.
In Celebration of Grandparenting by Debra K. Chapuis Pdf
This book is for grandparents of children with visual impairments and perhaps with additional disabilities. It is intended to address possible concerns and to help appreciate some of the unique joys of grandparenting a child with visual impairment. Also available in Spanish.
Parentless Parents is the first book to show how the absence of grandparents impacts everything about the way mothers and fathers raise their children--from everyday parenting decisions to the relationships they have with their spouses and in-laws. For the first time in U.S. history, as the average age of women giving birth has increased significantly, millions of children are at risk of having fewer years with their grandparents than ever before. How has this substantial shift affected parents and kids? Journalist, award-winning television producer, and parentless parent Allison Gilbert has polled and studied more than 1,300 parentless parents from across the United States and a dozen other countries to find out. Through her pioneering research, Gilbert not only shares her own story and the significant and poignant effect that this trend has had on her and hundreds of other families, but also the myriad ways these mothers and fathers have learned to keep the memory of their parents alive for their children, and to find the support and understanding they need.
Family Consequences of Children’s Disabilities by Denis P. Hogan Pdf
The Americans with Disabilities Act (ADA) and other national policies are designed to ensure the greatest possible inclusion of people with disabilities in all aspects of American life. But as a matter of national policy we still place the lion's share of responsibility for raising children with disabilities on their families. While this strategy largely works, sociologist Dennis Hogan maintains, the reality is that family financial security, the parents' relationship, and the needs of other children in the home all can be stretched to the limit. In Family Consequences of Children's Disabilities Hogan delves inside the experiences of these families and examines the financial and emotional costs of raising a child with a disability. The book examines the challenges families of children with disabilities encounter and how these challenges impact family life. The first comprehensive account of the families of children with disabilities, Family Consequences of Children's Disabilities employs data culled from seven national surveys and interviews with twenty-four mothers of children with disabilities, asking them questions about their family life, social supports, and how other children in the home were faring. Not surprisingly, Hogan finds that couples who are together when their child is born have a higher likelihood of divorcing than other parents do. The potential for financial insecurity contributes to this anxiety, especially as many parents must strike a careful balance between employment and caregiving. Mothers are less likely to have paid employment, and the financial burden on single parents can be devastating. One-third of children with disabilities live in single-parent households, and nearly 30 percent of families raising a child with a disability live in poverty. Because of the high levels of stress these families incur, support networks are crucial. Grandparents are often a source of support. Siblings can also assist with personal care and, consequently, tend to develop more helpful attitudes, be more inclusive of others, and be more tolerant. But these siblings are at risk for their own health problems: they are three times more likely to experience poor health than children in homes where there is no child with a disability. Yet this book also shows that raising a child with a disability includes unexpected rewards—the families tend to be closer, and they engage in more shared activities such as games, television, and meals. Family Consequences of Children's Disabilities offers access to a world many never see or prefer to ignore. The book provides vital information on effective treatment, rehabilitation, and enablement to medical professionals, educators, social workers, and lawmakers. This compelling book demonstrates that every mirror has two faces: raising a child with a disability can be difficult, but it can also offer expanded understanding. A Volume in the American Sociological Association's Rose Series in Sociology
Children with Special Needs by Ulrika Hallberg,Gunilla Klingberg Pdf
There can be a lack of understanding of the vulnerable situation of children with disabilities and their families, even among professional caregivers whose mission is to protect the health and wellbeing of these children. Their respectful treatment should include knowledge, empathy, humanity, and an open and sympathetic dialogue. This book provides an overview of knowledge and literature review of children and adolescents with special care needs that contribute to the respect and understanding of children with disabilities and their families. It also explains possible reasons for different outcomes in research studies and why there is a lack of knowledge in some areas concerning these children. Research on children with disabilities is considerable but often can be difficult to access on many levels, which means it does not always benefit those who need this knowledge. This compact book addresses this by presenting the international research in the field in an understandable way for people who work with children with disabilities and their families. The authors provide a broad picture of the background, reality of life, opportunities for professional help and support, as well as outlook of these children and families. Among the topics covered: The Health and Well-being of Children with Disabilities The Health and Well-being of Relatives Occupation On the Road to Adulthood Children with Special Needs: An Overview of Knowledge on Disability is pertinent reading for students in all areas of health care (including nursing and psychology), social work, sociology, and education aimed at children and young people. The text also would be of interest to those who practice in these areas and/or encounter children with disabilities in their daily work.
Raising a child with a disability can often be more isolating and frustrating than any parent ever imagines. Finally, here is a book that honestly describes the inner needs and range of issues parents with disabled children face. Changed by a Child invites parents to take a moment for themselves. Each of the brief readings offers comfort and hope as they capture the unique challenges and joys of raising a disabled child.
The Handbook of Intellectual Disability and Clinical Psychology Practice by Alan Carr,Christine Linehan,Gary O'Reilly,Patricia Noonan Walsh,John McEvoy Pdf
The Handbook of Intellectual Disability and Clinical Psychology Practice will equip clinical psychologists in training with the skills necessary to complete a clinical placement in the field of intellectual disability. Building on the success of the previous edition this handbook has been extensively revised. Throughout, the text, references, and website addresses and have been updated to reflect important developments since the publication the first edition. Recent research findings on the epidemiology, aetiology, course, outcome, assessment and treatment of all psychological problems considered in the book have been incorporated into the text. Account has been taken of changes in the diagnosis and classification of intellectual disability and psychological problems reflected in the AAIDD-11 and the DSM-5. New chapters on the assessment of adaptive behaviour and support needs, person-centred active support, and the assessment of dementia in people with intellectual disability have been added. The book is divided into eight sections: Section 1: Covers general conceptual frameworks for practice - diagnosis, classification, epidemiology and lifespan development. Section 2: Focuses on assessment of intelligence, adaptive behaviour, support needs, quality of life, and the processes of interviewing and report writing. Section 3: Covers intervention frameworks, specifically active support, applied behavioural analysis and cognitive behaviour therapy. Section 4: Deals with supporting families of children with intellectual disability, genetic syndromes and autism spectrum disorders. Section 5: Covers issues associated with intellectual disability first evident or prevalent in middle childhood. Section 6: Deals with adolescent concerns including life skills training, relationships and sexuality. Section 7: Focuses on residential, vocational and family-related challenges of adulthood and aging. Section 8: Deals with professional issues and risk assessment. Chapters cover theoretical and empirical issues on the one hand and practice issues on the other. They close with summaries and suggestions for further reading for practitioners and families containing a member with an intellectual disability. Where appropriate, in many chapters, practice exercises to aid skills development have been included. The second edition of the Handbook of Intellectual Disability and Clinical Psychology Practice is one of a set of three volumes which cover the lion’s share of the curriculum for clinical psychologists in training in the UK and Ireland. The other two volumes are the Handbook of Child and Adolescent Clinical Psychology, Third Edition (by Alan Carr) and the Handbook of Adult Clinical Psychology Practice, Second Edition (edited by Alan Carr & Muireann McNulty).
National Academies of Sciences, Engineering, and Medicine,Division of Behavioral and Social Sciences and Education,Board on Children, Youth, and Families,Committee on Supporting the Parents of Young Children
Author : National Academies of Sciences, Engineering, and Medicine,Division of Behavioral and Social Sciences and Education,Board on Children, Youth, and Families,Committee on Supporting the Parents of Young Children Publisher : National Academies Press Page : 525 pages File Size : 42,6 Mb Release : 2016-11-21 Category : Social Science ISBN : 9780309388573
Parenting Matters by National Academies of Sciences, Engineering, and Medicine,Division of Behavioral and Social Sciences and Education,Board on Children, Youth, and Families,Committee on Supporting the Parents of Young Children Pdf
Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.
