Neurogenetic Diagnoses The Power Of Hope And The Limits Of Today S Medicine

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Neurogenetic Diagnoses, the Power of Hope, and the Limits of Today’s Medicine

Carole H. Browner,Mabel H. Preloran
Neurogenetic Diagnoses the Power of Hope and the Limits of Today s Medicine Book PDF

Author : Carole H. Browner,Mabel H. Preloran
Publisher : Routledge
Page : 152 pages
File Size : 53,9 Mb
Release : 2009-12-18
Category : Medical
ISBN : 9781135179083

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Neurogenetic Diagnoses, the Power of Hope, and the Limits of Today’s Medicine by Carole H. Browner,Mabel H. Preloran Pdf

As world populations continue to age, the incidence of very common, ultimately fatal neurodegenerative diseases (some of medicine’s most puzzling illnesses) will increase exponentially. Neurogenetic Diagnoses, the Power of Hope, and the Limits of Today’s Medicine explores the diverse impacts and intense meanings of genetic diagnoses for patients suffering from such diseases, and for their family caregivers and clinicians. Through richly-textured, often heart-wrenching longitudinal case studies, Neurogenetic Diagnoses... reveals how extremely difficult it can be for patients to obtain a definitive diagnosis for the cause of their symptoms, even with genetic testing; how, with or without definitive diagnoses, patients and family caregivers strive to come to terms with their situations; and how they are aided (or not) in these endeavors by their doctors. The analysis is framed by increasingly sharp social debate over the consequences of decoding the human genome -- and the impact of genetic technology on our lives.

Disclosure in Health and Illness

Mark Davis,Lenore Manderson
Disclosure in Health and Illness Book PDF

Author : Mark Davis,Lenore Manderson
Publisher : Routledge
Page : 212 pages
File Size : 55,6 Mb
Release : 2014-04-24
Category : Medical
ISBN : 9781134454259

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Disclosure in Health and Illness by Mark Davis,Lenore Manderson Pdf

Disclosure is a frequently used but rarely interrogated concept in health and social welfare. Abuse, disability, sexuality and health status can be ‘disclosed’ to peers and professionals, and on some occasions, disclosure is a requirement and not a choice. This innovative collection examines the new social and political implications of disclosure practices in health and illness. We make our identities and our connections with others by sharing life stories, experiences and innermost desires and are often asked to disclose facts about our lives, bodies and minds, at times with unintended consequences. Yet how and what, why and when people ‘disclose’ – and perceive, question and expose – and in what ways, has rarely received critical analytic attention. The contributors take up these problems by foregrounding the many shades of disclosure: from the secret, through the telling of diagnosis, to the more prosaic sharing of narratives from everyday life. The processes and implications of disclosing are addressed in areas such as: illness trajectories and end-of-life decisions; ethical research practices; medical procedures; and interpersonal relationships. Exploring the idea of disclosure as a moral imperative and a social act, this book offers a diverse range of empirical case studies, social theories and methodological insights to show how dominant and normative understandings of social relationships and their obligations shape our understanding of acts of disclosure, enquiry and exposure. It will be of interest to students and academics with an interest in narrative studies, medical anthropology, bioethics, health psychology, health studies and the sociology of health and illness.

The Atomized Body

Max Liljefors,Susanne Lundin,Andréa Wiszmeg
The Atomized Body Book PDF

Author : Max Liljefors,Susanne Lundin,Andréa Wiszmeg
Publisher : Nordic Academic Press
Page : 222 pages
File Size : 48,9 Mb
Release : 2015-01-01
Category : Science
ISBN : 9789187121944

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The Atomized Body by Max Liljefors,Susanne Lundin,Andréa Wiszmeg Pdf

Referring to the focus of the biosciences on molecular "particles" of the human biology, such as stem cells, genes, and neurons, this account examines the relationships between culture, society, and bioscientific research. Showing that the atomized body is indeed socially and culturally embedded, in plural and complex ways, it argues that biomedicine and biotechnology do not only intersect with the human body, but also reshape our perceptions of selfhood and life. From a multidisciplinary perspective, this volume explores the biosciences and the atomized body in their social, cultural, and philosophical contexts.

Breast Cancer Gene Research and Medical Practices

Sahra Gibbon,Galen Joseph,Jessica Mozersky,Andrea zur Nieden,Sonja Palfner
Breast Cancer Gene Research and Medical Practices Book PDF

Author : Sahra Gibbon,Galen Joseph,Jessica Mozersky,Andrea zur Nieden,Sonja Palfner
Publisher : Routledge
Page : 248 pages
File Size : 42,6 Mb
Release : 2014-03-05
Category : Social Science
ISBN : 9781135925451

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Breast Cancer Gene Research and Medical Practices by Sahra Gibbon,Galen Joseph,Jessica Mozersky,Andrea zur Nieden,Sonja Palfner Pdf

The discovery of the two inherited susceptibility genes BRCA1 and BRCA2 in the mid-1990s created the possibility of predictive genetic testing and led to the establishment of specific medical programmes for those at high risk of developing breast cancer in the UK, US and Europe. The book provides a coherent structure for examining the diversity of practices and discourses that surround developments linked to BRCA genetics, and to the evolving field of genetics more broadly. It will be of interest to students and scholars of anthropology, sociology, history of science, STS, public health and bioethics. Chapter 8 of this book is freely available as a downloadable Open Access PDF at http://www.taylorfrancis.com under a Creative Commons Attribution-Non Commercial-No Derivatives (CC-BY-NC-ND) 3.0 license.

Science and Democracy

Stephen Hilgartner,Clark Miller,Rob Hagendijk
Science and Democracy Book PDF

Author : Stephen Hilgartner,Clark Miller,Rob Hagendijk
Publisher : Routledge
Page : 248 pages
File Size : 52,6 Mb
Release : 2015-03-05
Category : Social Science
ISBN : 9781136748202

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Science and Democracy by Stephen Hilgartner,Clark Miller,Rob Hagendijk Pdf

In the life sciences and beyond, new developments in science and technology and the creation of new social orders go hand in hand. In short, science and society are simultaneously and reciprocally coproduced and changed. Scientific research not only produces new knowledge and technological systems but also constitutes new forms of expertise and contributes to the emergence of new modes of living and new forms of exchange. These dynamic processes are tightly connected to significant redistributions of wealth and power, and they sometimes threaten and sometimes enhance democracy. Understanding these phenomena poses important intellectual and normative challenges: neither traditional social sciences nor prevailing modes of democratic governance have fully grappled with the deep and growing significance of knowledge-making in twenty-first century politics and markets. Building on new work in science and technology studies (STS), this book advances the systematic analysis of the coproduction of knowledge and power in contemporary societies. Using case studies in the new life sciences, supplemented with cases on informatics and other topics such as climate science, this book presents a theoretical framing of coproduction processes while also providing detailed empirical analyses and nuanced comparative work. Science and Democracy: Knowledge as Wealth and Power in the Biosciences and Beyond will be interesting for students of sociology, science & technology studies, history of science, genetics, political science, and public administration.

The Gene, the Clinic, and the Family

Joanna Latimer
The Gene the Clinic and the Family Book PDF

Author : Joanna Latimer
Publisher : Routledge
Page : 256 pages
File Size : 41,7 Mb
Release : 2013-07-04
Category : Medical
ISBN : 9781135070144

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The Gene, the Clinic, and the Family by Joanna Latimer Pdf

While some theorists argue that medicine is caught in a relentless process of ‘geneticization’ and others offer a thesis of biomedicalization, there is still little research that explores how these effects are accomplished in practice. Joanna Latimer, whose groundbreaking ethnography on acute medicine gave us the social science classic The Conduct of Care, moves her focus from the bedside to the clinic in this in-depth study of genetic medicine. Against current thinking that proselytises the rise of laboratory science, Professor Latimer shows how the genetic clinic is at the heart of the revolution in the new genetics. Tracing how work on the abnormal in an embryonic genetic science, dysmorphology, is changing our thinking about the normal, The Gene, the Clinic, and the Family charts new understandings about family, procreation and choice. Far from medicine experiencing the much-proclaimed ‘death of the clinic’, this book shows how medicine is both reasserting its status as a science and revitalising its dominance over society, not only for now but for societies in the future. This book will appeal to students, scholars and professionals interested in medical sociology, science and technology studies, the anthropology of science, medical science and genetics, as well as genetic counselling.

An Anthropology of Biomedicine

Margaret Lock,Vinh-Kim Nguyen
An Anthropology of Biomedicine Book PDF

Author : Margaret Lock,Vinh-Kim Nguyen
Publisher : John Wiley & Sons
Page : 521 pages
File Size : 49,7 Mb
Release : 2010-04-26
Category : Social Science
ISBN : 9781405110723

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An Anthropology of Biomedicine by Margaret Lock,Vinh-Kim Nguyen Pdf

An Anthropology of Biomedicine is an exciting new introduction to biomedicine and its global implications. Focusing on the ways in which the application of biomedical technologies bring about radical changes to societies at large, cultural anthropologist Margaret Lock and her co-author physician and medical anthropologist Vinh-Kim Nguyen develop and integrate the thesis that the human body in health and illness is the elusive product of nature and culture that refuses to be pinned down. Introduces biomedicine from an anthropological perspective, exploring the entanglement of material bodies with history, environment, culture, and politics Develops and integrates an original theory: that the human body in health and illness is not an ontological given but a moveable, malleable entity Makes extensive use of historical and contemporary ethnographic materials around the globe to illustrate the importance of this methodological approach Integrates key new research data with more classical material, covering the management of epidemics, famines, fertility and birth, by military doctors from colonial times on Uses numerous case studies to illustrate concepts such as the global commodification of human bodies and body parts, modern forms of population, and the extension of biomedical technologies into domestic and intimate domains Winner of the 2010 Prose Award for Archaeology and Anthropology

Saving Babies?

Stefan Timmermans,Mara Buchbinder
Saving Babies Book PDF

Author : Stefan Timmermans,Mara Buchbinder
Publisher : University of Chicago Press
Page : 320 pages
File Size : 43,6 Mb
Release : 2015-05-06
Category : Medical
ISBN : 9780226273617

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Saving Babies? by Stefan Timmermans,Mara Buchbinder Pdf

Introduction: the consequences of newborn screening -- The expansion of newborn screening -- Patients-in-waiting -- Shifting disease ontologies -- Is my baby normal? -- The limits of prevention -- Does expanded newborn screening save lives? -- Conclusion: the future of expanded newborn screening

Moral Laboratories

Cheryl Mattingly
Moral Laboratories Book PDF

Author : Cheryl Mattingly
Publisher : Univ of California Press
Page : 280 pages
File Size : 50,9 Mb
Release : 2014-10-03
Category : Social Science
ISBN : 9780520281196

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Moral Laboratories by Cheryl Mattingly Pdf

Moral Laboratories is an engaging ethnography and a groundbreaking foray into the anthropology of morality. It takes us on a journey into the lives of African American families caring for children with serious chronic medical conditions, and it foregrounds the uncertainty that affects their struggles for a good life. Challenging depictions of moral transformation as possible only in moments of breakdown or in radical breaches from the ordinary, it offers a compelling portrait of the transformative powers embedded in day-to-day existence. From soccer fields to dinner tables, the everyday emerges as a moral laboratory for reshaping moral life. Cheryl Mattingly offers vivid and heart-wrenching stories to elaborate a first-person ethical framework, forcefully showing the limits of third-person renderings of morality.Ê

An Anthropology of Biomedicine

Margaret Lock,Vinh-Kim Nguyen
An Anthropology of Biomedicine Book PDF

Author : Margaret Lock,Vinh-Kim Nguyen
Publisher : John Wiley & Sons
Page : 560 pages
File Size : 43,5 Mb
Release : 2018-01-09
Category : Social Science
ISBN : 9781119069140

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An Anthropology of Biomedicine by Margaret Lock,Vinh-Kim Nguyen Pdf

In this fully revised and updated second edition of An Anthropology of Biomedicine, authors Lock and Nguyen introduce biomedicine from an anthropological perspective, exploring the entanglement of material bodies with history, environment, culture, and politics. Drawing on historical and ethnographic work, the book critiques the assumption made by the biological sciences of a universal human body that can be uniformly standardized. It focuses on the ways in which the application of biomedical technologies brings about radical changes to societies at large based on socioeconomic inequalities and ethical disputes, and develops and integrates the theory that the human body in health and illness is not an ontological given but a moveable, malleable entity. This second edition includes new chapters on: microbiology and the microbiome; global health; and, the self as a socio-technical system. In addition, all chapters have been comprehensively revised to take account of developments from within this fast-paced field, in the intervening years between publications. References and figures have also been updated throughout. This highly-regarded and award-winning textbook (Winner of the 2010 Prose Award for Archaeology and Anthropology) retains the character and features of the previous edition. Its coverage remains broad, including discussion of: biomedical technologies in practice; anthropologies of medicine; biology and human experiments; infertility and assisted reproduction; genomics, epigenomics, and uncertain futures; and molecularizing racial difference, ensuring it remains the essential text for students of anthropology, medical anthropology as well as public and global health.

Knowing New Biotechnologies

Matthias Wienroth,Eugénia Rodrigues
Knowing New Biotechnologies Book PDF

Author : Matthias Wienroth,Eugénia Rodrigues
Publisher : Routledge
Page : 219 pages
File Size : 50,8 Mb
Release : 2015-02-20
Category : Social Science
ISBN : 9781317691518

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Knowing New Biotechnologies by Matthias Wienroth,Eugénia Rodrigues Pdf

The areas of personal genomics and citizen science draw on – and bring together – different cultures of producing and managing knowledge and meaning. They also cross local and global boundaries, are subjects and objects of transformation and mobility of research practices, evaluation and multi-stakeholder groups. Thirdly, they draw on logics of ‘convergence’: new links between, and new kinds of, stakeholders, spaces, knowledge, practices, challenges and opportunities. This themed collection of essays from nationally and internationally leading scholars and commentators advances and widens current debates in Science and Technology Studies and in Science Policy concerning ‘converging technologies’ by complementing the customary focus on technical aspirations for convergence with the analysis of the practices and logics of scientific, social and cultural knowledge production that constitute contemporary technoscience. In case studies from across the globe, contributors discuss the ways in which science and social order are linked in areas such as direct-to consumer genetic testing and do-it-yourself biotechnologies. Organised into thematic sections, ‘Knowing New Biotechnologies’ explores: • ways of understanding the dynamics and logics of convergences in emergent biotechnologies • governance and regulatory issues around technoscientific convergences • democratic aspects of converging technologies – lay involvement in scientific research and the co-production of biotechnology and social and cultural knowledge.

Risk, Reproduction, and Narratives of Experience

Lauren Fordyce,Aminata Maraësa
Risk Reproduction and Narratives of Experience Book PDF

Author : Lauren Fordyce,Aminata Maraësa
Publisher : Vanderbilt University Press
Page : 258 pages
File Size : 42,7 Mb
Release : 2012
Category : Health & Fitness
ISBN : 9780826518194

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Risk, Reproduction, and Narratives of Experience by Lauren Fordyce,Aminata Maraësa Pdf

Vivid ethnographies of reproductive risk and responsibility that speak to the conflicts between pregnant women and mothers and statesanctioned biomedicine

Negotiating Bioethics

Adèle Langlois
Negotiating Bioethics Book PDF

Author : Adèle Langlois
Publisher : Routledge
Page : 221 pages
File Size : 43,8 Mb
Release : 2013-08-15
Category : Political Science
ISBN : 9781136237003

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Negotiating Bioethics by Adèle Langlois Pdf

A PDF version of this book is available for free in Open Access at www.tandfebooks.com. It has been made available under a Creative Commons Attribution-Non Commercial-No Derivatives 3.0 license. The sequencing of the entire human genome has opened up unprecedented possibilities for healthcare, but also ethical and social dilemmas about how these can be achieved, particularly in developing countries. UNESCO’s Bioethics Programme was established to address such issues in 1993. Since then, it has adopted three declarations on human genetics and bioethics (1997, 2003 and 2005), set up numerous training programmes around the world and debated the need for an international convention on human reproductive cloning. Negotiating Bioethics presents Langlois' research on the negotiation and implementation of the three declarations and the human cloning debate, based on fieldwork carried out in Kenya, South Africa, France and the UK, among policy-makers, geneticists, ethicists, civil society representatives and industry professionals. The book examines whether the UNESCO Bioethics Programme is an effective forum for (a) decision-making on bioethics issues and (b) ensuring ethical practice. Considering two different aspects of the UNESCO Bioethics Programme – deliberation and implementation – at international and national levels, Langlois explores: how relations between developed and developing countries can be made more equal who should be involved in global level decision-making and how this should proceed how overlap between initiatives can be avoided what can be done to improve the implementation of international norms by sovereign states how far universal norms can be contextualized what impact the efficacy of national level governance has at international level

Barcoding Nature

Claire Waterton,Rebecca Ellis,Brian Wynne
Barcoding Nature Book PDF

Author : Claire Waterton,Rebecca Ellis,Brian Wynne
Publisher : Routledge
Page : 254 pages
File Size : 41,6 Mb
Release : 2013-07-18
Category : Social Science
ISBN : 9781135202385

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Barcoding Nature by Claire Waterton,Rebecca Ellis,Brian Wynne Pdf

DNA Barcoding has been promoted since 2003 as a new, fast, digital genomics-based means of identifying natural species based on the idea that a small standard fragment of any organism’s genome (a so-called ‘micro-genome’) can faithfully identify and help to classify every species on the planet. The fear that species are becoming extinct before they have ever been known fuels barcoders, and the speed, scope, economy and ‘user-friendliness’ claimed for DNA barcoding, as part of the larger ferment around the ‘genomics revolution’, has also encouraged promises that it could inspire humanity to reverse its biodiversity-destructive habits. This book is based on six years of ethnographic research on changing practices in the identification and classification of natural species. Informed both by Science and Technology Studies (STS) and the anthropology of science, the authors analyse DNA barcoding in the context of a sense of crisis – concerning global biodiversity loss, but also the felt inadequacy of taxonomic science to address such loss. The authors chart the specific changes that this innovation is propelling in the collecting, organizing, analyzing, and archiving of biological specimens and biodiversity data. As they do so they highlight the many questions, ambiguities and contradictions that accompany the quest to create a genomics-based environmental technoscience dedicated to biodiversity protection. They ask what it might mean to recognise ambiguity, contradiction, and excess more publicly as a constitutive part of this and other genomic technosciences. Barcoding Nature will be of interest to students and scholars of sociology of science, science and technology studies, politics of the environment, genomics and post-genomics, philosophy and history of biology, and the anthropology of science.

Waiting for Cancer to Come

Sharlene Hesse-Biber,Sharlene Nagy Hesse-Biber
Waiting for Cancer to Come Book PDF

Author : Sharlene Hesse-Biber,Sharlene Nagy Hesse-Biber
Publisher : University of Michigan Press
Page : 227 pages
File Size : 49,7 Mb
Release : 2014-07-28
Category : Education
ISBN : 9780472052196

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Waiting for Cancer to Come by Sharlene Hesse-Biber,Sharlene Nagy Hesse-Biber Pdf

A narrative-driven exploration of the effects of BRCA genetic testing on the lives of at-risk women