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Author : Cheri Register
Publisher : Unknown
Page : 368 pages
File Size : 48,5 Mb
Release : 1999
Category : Health & Fitness
ISBN : 1568383460
The Chronic Illness Experience
Author : S. Kay Toombs,David Barnard,Ronald Alan Carson
Publisher : Indiana University Press
Page : 250 pages
File Size : 41,7 Mb
Release : 1995-07-22
Category : Medical
ISBN : 0253113555
"…excellent…" -- Choices - Choice on Dying Newsletter "Toombs, Barnard, and Carson have organized and edited a valuable series of papers that provide a rare perspective on the impact of chronic illness. Beginning with the person who is experiencing the chronic condition, they are able to weave an important blend of personal, social, and policy themes." -- Choice "This volume of collected essays is a solid contribution to the medical humanities literature on chronic illness... the contributors have produced a cohesive, systematic, and sensitive examination of issues in chronic illness and disability." -- Medical Humanities Review "Although it may seem to be intended largely for health care providers, this thought-provoking volume has much that will interest a wider lay audience." -- Medical and Health Annual An often moving exploration of the human, moral, and policy aspects of a health issue that affects each of us. Through first-person accounts and the perspectives of literature, medicine, philosophy, and religion, this book explores what it means to live with chronic illness and the implications of this experience for social policy, health care, bioethics, and the professions.
Author : Silvia Bonino
Publisher : Routledge
Page : 196 pages
File Size : 48,5 Mb
Release : 2020-12-20
Category : Psychology
ISBN : 9781000289107
This valuable book combines psychological theories of health with the lived experience of coping with chronic health conditions, focusing on the "ill person" as an actor of their own development. It draws on perspectives from developmental and health psychology alongside the author’s personal experience of chronic illness. Bonino considers all aspects of living with illness, from issues that impact on everyday functioning such as pain and fatigue, to the rebuilding of identity through meaningful new goals and effective actions, and the development of therapeutic relationships. Psychological theories are interweaved with descriptions of lived encounters to center the experience of the person living alongside illness and provide insightful points of reference that everyone could try to use when facing the challenges of chronic disease in the course of their daily lives. Coping with Chronic Illness is important reading for those living with chronic health conditions, as well as for healthcare professionals looking to gain awareness of the psychological issues caused by living with illness. It is also of interest for postgraduate students of health psychology.
Author : Liz Price,Liz Walker
Publisher : Routledge
Page : 168 pages
File Size : 42,6 Mb
Release : 2015-05-01
Category : Medical
ISBN : 9781136165467
Whilst the body has recently assumed greater sociological significance, there has been less engagement in social work and social care on the bodily experience of health, illness and disease. This innovative volume redresses the balance by exploring chronic illness and social work, through the specific lens of autoimmunity, engaging in wider debates around vulnerability, resistance and the lived experience of ongoing ill-health. Moving beyond existing conceptualisations of vulnerability as an issue of mental distress, ageing, child protection and poverty, Price and Walker demonstrate the role that society has to play in actively engaging the physical body, rather than working around and through it. The book focuses on auto-immune conditions such as lupus, multiple sclerosis, rheumatoid arthritis and scleroderma. Conditions like these allow for an exploration of the materiality of illness which exacerbates social and economic vulnerability and may precipitate personal and social crises, requiring a variety of interventions and support. The risks and challenges associated with chronic illness include disruptions to a sense of self and identity, altered relationships and the renegotiation of roles and responsibilities in a variety of relationships in addition to an economic impact, with the potential for disruption to employment status and financial insecurity. This text opens up a range of debates around some of the central concerns of the social work profession, including vulnerability, ill-health, and independence. It will be of interest to scholars and students of social work, nursing, disability studies, medicine and the social sciences.
Author : Lenore Manderson,Carolyn Smith-Morris
Publisher : Rutgers University Press
Page : 333 pages
File Size : 50,9 Mb
Release : 2010
Category : Medical
ISBN : 9780813547466
"A major collection of essays from leaders in the field of medical anthropology, Chronic Conditions, Fluid States pays much-needed attention to one of the greatest challenges currently faced by both the wealthiest and poorest of nations. For anyone wishing to think critically about chronic illness in cross-cultural perspective, the social forces shaping this issue, and its impact on the lived experiences of people worldwide, there is no better place to start than this pioneering volume."---Richard Parker, Columbia University, and editor-in-chief, Global Public Health --
Author : Pamala D. Larsen
Publisher : Jones & Bartlett Learning
Page : 634 pages
File Size : 45,9 Mb
Release : 2002
Category : Chronic Disease
ISBN : 0763715700
Focuses on the various aspects of chronic illness that influence both patients and their families. Topics include the sociological, psychological, ethical, organizational, and financial factors, as well as individual and system outcomes.
Author : Patricia A. Fennell
Publisher : John Wiley & Sons
Page : 456 pages
File Size : 46,5 Mb
Release : 2003-10-17
Category : Psychology
ISBN : 9780471462774
A pioneering book to help maximize the quality of life for chronically ill patients Written by a leading authority on chronic illness treatment and management, Managing Chronic Illness Using the Four-Phase Treatment Approach provides evidence-based practice guidelines for clinicians to help their clients with debilitating health problems embrace a new "normal," understand the cyclical nature of their illness, and function at the highest level possible. Patricia Fennell's groundbreaking model for understanding chronic illness identifies and describes four broad phases experienced by the chronically ill: crisis, stabilization, resolution, and integration. Using a broad array of case histories, Fennell vividly illustrates what clients need at each phase and how to assess and respond to them compassionately. Fennell also suggests how clinicians may best use their own changing experiences in their work to help clients transition through the four phases. The goal of the "Four-Phase Model" is to maximize a client's quality of life without offering false hope for a cure, making it an effective treatment strategy for diverse client populations, including people with physiological diseases; patients whose lives are being prolonged by modern medicine; and people who suffer from addiction, post-traumatic stress syndrome, intractable pain, and post-rape and abuse conditions. Complete with detailed treatment protocols for documenting a client's symptoms and quality of life at each phase, Managing Chronic Illness Using the Four-Phase Treatment Approach is a highly practical book for everyone working with chronically ill clients.
Author : Sean McHugh,T. Michael Vallis
Publisher : Springer Science & Business Media
Page : 421 pages
File Size : 54,8 Mb
Release : 2012-12-06
Category : Psychology
ISBN : 9781468452570
In August, 1985, the 2nd International Conference on Illness Behaviour was held in Toronto, Ontario, Canada. The first International Conference took place one year previous in Adelaide, South Australia, Australia. This book is based on the proceedings of the second conference. The purpose behind this conference was to facilitate the development of a single integrated model to account for illness experience and presentation. A major focus of the conference was to outline methodological issues related to current behaviour research. A multidiscipl~nary approach was emphasized because of the bias that collaborative efforts are likely to be the most successful in achieving greater understanding of illness behaviour. Significant advances in our knowledge are occurring in all areas of the biological and social sciences, albeit more slowly in the latter areas. Marked specialization in each of these areas has lead to greater difficulty in integrating new knowledge with that of other areas and the development of a meaningful cohesive model to which all can relate. Thus there is a major need for forums such as that provided by this conference.
Author : Institute of Medicine,Board on Population Health and Public Health Practice,Committee on Living Well with Chronic Disease: Public Health Action to Reduce Disability and Improve Functioning and Quality of Life
Publisher : National Academies Press
Page : 350 pages
File Size : 54,5 Mb
Release : 2011-06-30
Category : Medical
ISBN : 9780309221276
In the United States, chronic diseases currently account for 70 percent of all deaths, and close to 48 million Americans report a disability related to a chronic condition. Today, about one in four Americans have multiple diseases and the prevalence and burden of chronic disease in the elderly and racial/ethnic minorities are notably disproportionate. Chronic disease has now emerged as a major public health problem and it threatens not only population health, but our social and economic welfare. Living Well with Chronic Disease identifies the population-based public health actions that can help reduce disability and improve functioning and quality of life among individuals who are at risk of developing a chronic disease and those with one or more diseases. The book recommends that all major federally funded programmatic and research initiatives in health include an evaluation on health-related quality of life and functional status. Also, the book recommends increasing support for implementation research on how to disseminate effective longterm lifestyle interventions in community-based settings that improve living well with chronic disease. Living Well with Chronic Disease uses three frameworks and considers diseases such as heart disease and stroke, diabetes, depression, and respiratory problems. The book's recommendations will inform policy makers concerned with health reform in public- and private-sectors and also managers of communitybased and public-health intervention programs, private and public research funders, and patients living with one or more chronic conditions.
Author : Patricia Fennell
Publisher : Albany Health Management Publishing
Page : 0 pages
File Size : 49,9 Mb
Release : 2012
Category : Health & Fitness
ISBN : 0979640717
THE CHRONIC ILLNESS WORKBOOK brings clarity and order to what feels like an unmanageable and isolating experience. It shows both those who are ill and those who care for them how to live a full and meaningful life despite undeniable difficulties. Using her extensive experience with chronic illness patients, Patricia Fennell has created an original, comprehensive, research-validated approach that considers not only the physical aspects of chronic illness, but the psychological, social, and economic apsects as well.
Author : Robert Shuman
Publisher : Unknown
Page : 248 pages
File Size : 51,6 Mb
Release : 1996-12-09
Category : Psychology
ISBN : UOM:39015038523893
With the onset of chronic illness, an individual and family's world, previously taken for granted, is often undone. The actual and potential losses from illness impact on family, friends, physicians, therapists, nurses, and others in profound and unexpected ways. Through his own honest, personal account and the testimony of others, Robert Shuman takes us inside the illness experience to help us better grasp the daily inner lives of the ailing person and his or her family. As our aging population lives longer, chronic illness touches more and more of us. Whether as patient or parent, nurse or spouse, colleague or therapist, we need to have greater knowledge and understanding of the intricacies of chronic illness.Robert Shuman maps out the many dimensions of illness and invites the reader to explore its challenging terrain in a way that provides opportunities for self-discovery and reflection. In lyrical prose, he opens up new ways of thinking about the psychology of illness and healing. He suggests, for example, that illness symptoms can have a generative effect on a person's imaginative and creative possibilities, and that the socially despised events of illness and disability offer new ways of being once sought through the work of religion. Drawing on the fields of behavioral and family medicine, medical anthropology and sociology, moral and bioethical philosophies, and family, existential, cognitive, Jungian, and archetypal psychotherapies, among others, The Psychology of Chronic Illness raises provocative questions for the professional caregiver as well as for those living with illness and disability.This book will help anyone touched by illness, personally or professionally, to support those living with chronic illnesses and disabilities; to cope with multiple impacts on work, relationships, social roles, individual dreams, and disappointments; to listen to and voice suffering and fears, grief and anger, questions of values and moral doubts; and to acknowledge loss and mourning as a “common ground” that we all share. This book offerrs specific resources to the caregiver and aids the professional in his or her ethical obligation to give. Moreover, Shuman's voice is one of compassion, reminding us how to hold on to or recover hope, meaning, and morale during times of affliction and distress.
Author : Ilene Morof Lubkin,Pamala D. Larsen
Publisher : Jones & Bartlett Publishers
Page : 738 pages
File Size : 41,8 Mb
Release : 2013
Category : Medical
ISBN : 9780763799663
The newest edition of best-selling Chronic Illness continues to focus on the various aspects of chronic illness that influence both patients and their families. Topics include the sociological, psychological, ethical, organizational, and financial factors, as well as individual and system outcomes. This book is designed to teach students about the whole client or patient versus the physical status of the client with chronic illness. The study questions at the end of each chapter and the case studies help the students apply the information to real life. Evidence-based practice references are included in almost every chapter.
Author : Joseph Osuji
Publisher : Jones & Bartlett Publishers
Page : 593 pages
File Size : 53,8 Mb
Release : 2012
Category : Medical
ISBN : 9781449681944
Adapted from our best-selling text, Chronic Illness: Impact and Intervention, Eighth Edition by Pamala D. Larsen and Ilene Morof Lubkin, this text includes recent definitions and models of care aimed towards chronic disease management (CDM) currently used in Canada. Canadian and global perspectives on chronic illness management are addressed throughout the text, and chapters on the role of primary health care in chronic care, family nursing, global health, and chronic illness are included to address the needs of nursing curriculum standards in Canada. Key Features *Chapter on complementary therapies within a Canadian health context *Every chapter is updated to include Canadian content and an emphasis on global healthcare *Contains theoretical and practical perspectives to address the continuing emergence of chronic illness in Canada and the world
Author : Meghan O'Rourke
Publisher : Penguin
Page : 337 pages
File Size : 53,8 Mb
Release : 2022-03-01
Category : Health & Fitness
ISBN : 9780698190764
A NEW YORK TIMES BESTSELLER FINALIST FOR THE 2022 NATIONAL BOOK AWARD FOR NONFICTION Named one of the BEST BOOKS OF 2022 by NPR, The New Yorker, Time, and Vogue “Remarkable.” –Andrew Solomon, The New York Times Book Review "At once a rigorous work of scholarship and a radical act of empathy.”—Esquire "A ray of light into those isolated cocoons of darkness that, at one time or another, may afflict us all.” —The Wall Street Journal "Essential."—The Boston Globe A landmark exploration of one of the most consequential and mysterious issues of our time: the rise of chronic illness and autoimmune diseases A silent epidemic of chronic illnesses afflicts tens of millions of Americans: these are diseases that are poorly understood, frequently marginalized, and can go undiagnosed and unrecognized altogether. Renowned writer Meghan O’Rourke delivers a revelatory investigation into this elusive category of “invisible” illness that encompasses autoimmune diseases, post-treatment Lyme disease syndrome, and now long COVID, synthesizing the personal and the universal to help all of us through this new frontier. Drawing on her own medical experiences as well as a decade of interviews with doctors, patients, researchers, and public health experts, O’Rourke traces the history of Western definitions of illness, and reveals how inherited ideas of cause, diagnosis, and treatment have led us to ignore a host of hard-to-understand medical conditions, ones that resist easy description or simple cures. And as America faces this health crisis of extraordinary proportions, the populations most likely to be neglected by our institutions include women, the working class, and people of color. Blending lyricism and erudition, candor and empathy, O’Rourke brings together her deep and disparate talents and roles as critic, journalist, poet, teacher, and patient, synthesizing the personal and universal into one monumental project arguing for a seismic shift in our approach to disease. The Invisible Kingdom offers hope for the sick, solace and insight for their loved ones, and a radical new understanding of our bodies and our health.
Author : Ilana Jacqueline
Publisher : New Harbinger Publications
Page : 178 pages
File Size : 54,9 Mb
Release : 2018-03-01
Category : Health & Fitness
ISBN : 9781626256019
“An important antidote to the dogmatic ‘kale and vitamins’ tone of most ‘self-help’ literature.” —Alexa Tsoulis-Reay, senior writer, New York magazine Popular blogger Ilana Jacqueline offers smart and savvy advice, humor, and practical tips for living with an invisible chronic illness. Do you live with a chronic, debilitating, yet invisible condition? You may feel isolated, out of step, judged, lonely, or misunderstood—and that’s on top of dealing with the symptoms of your actual illness. Take heart. You are not alone, although sometimes it can feel that way. Written by a blogger who suffers from an invisible chronic illness, Surviving and Thriving with an Invisible Chronic Illness offers peer-to-peer support to help you stay sane, be your own advocate, and get back to living your life. This compelling guide is written for anyone suffering with an illness no one can see—such as postural orthostatic tachycardia syndrome (POTS), chronic fatigue syndrome (CFS), fibromyalgia, multiple chemical sensitivity (MCS), Lyme disease, lupus, dysautonomia, or even multiple sclerosis (MP). This book will tell you everything you need to know about living with a complicated, invisible condition—from how to balance sex, dating, and relationships to handling work and school with unavoidable absences. You’ll also learn to navigate judg-y or skeptical relatives and strangers and—most importantly—manage your medical care. Suffering from a chronic illness doesn’t mean you can’t live an active, engaged life. This book will show you how.